Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Allergic To Wheat?


Cyanste

Recommended Posts

Cyanste Newbie

I tried looking around for some answers but it doesn't seem like there's much on this question. When I got my blood work done, I also got allergy testing done and my Ige for Wheat came out very positive.

Is it possible to be both celiac and allergic to wheat? Is this unusual?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

There are several folks here who have both. I'm sure they'll chime in soon.

 

Have you (before you went gluten-free) had allergic type reactions to wheat? You know, hives, breathing problems, that sort of thing? You should have an epi pen. Exposure to wheat on the celiac side can make you sick and damage your gut, but on the allergy side it can kill you quickly.

 

Be extra careful!!

Cyanste Newbie

I did have some episodes with difficulty breathing that didn't go away with albuterol, hmm... I will check with my pcp.

squirmingitch Veteran

Yes, you can be both celiac and allergic to wheat & I second what Bartful said about getting an epi pen.

StephanieL Enthusiast

Epi Pen STAT!  Seriously, with the things you described you need a set (always carry - ALWAYS!)  I hope you get things figured out!

Hank444 Newbie

Really wondering if I am allergic to Gluten or the Roundup weed killer that farmers use on wheat and other foods .

I seem to have gluten sensitivity .I have not tested myself yet with  fully organic bread that has gluten in it. I have night sweats after eating wheat and  bottom of feet go numb along with stomach sloshing around more than usual and lower intestines feel irritated/painful when pressing on them any.

Not had any allergy tests done,but some in my family have many allergies.

If your test came back positive,I would not doubt it if you already have celiac symptoms or problems.

I felt like I had food poisoning when I ate too many wheat products.

cyclinglady Grand Master

Really wondering if I am allergic to Gluten or the Roundup weed killer that farmers use on wheat and other foods .

I seem to have gluten sensitivity .I have not tested myself yet with  fully organic bread that has gluten in it. I have night sweats after eating wheat and  bottom of feet go numb along with stomach sloshing around more than usual and lower intestines feel irritated/painful when pressing on them any.

Not had any allergy tests done,but some in my family have many allergies.

If your test came back positive,I would not doubt it if you already have celiac symptoms or problems.

I felt like I had food poisoning when I ate too many wheat products.

 

 

 

Hank,

 

I would encourage you to visit the University of Chicago's celiac website.  It contains valuable information about celiac disease.  First of all  there is no allergy to gluten!  Celiac disease is an autoimmune disorder like Multiple Sclerosis or Lupus.  The body attacks the small intestinal tract damaging villi.   It is the only AI disorder that is triggered by gluten which is found in wheat, rye and barley.  Any medical doctor can order a celiac blood panel to test for celiac antibodies but you need to be consuming gluten daily.  

 

If testing is negative, you might have Non-celiac gluten sensitivity (symptoms but no intestinal damage).    Unfortunately, there is no specific test for that just adhering to the gluten free diet to see if all symptoms resolve.  

 

You could be allergic to wheat (not gluten) but that typically presents with breathing issues, swelling, hives, , passing out, anaphylaxis, itchy skin or eyes, sneezing, asthma, etc.  An allergist could help with a wheat allergy diagnosis.  

 

This is a great site for information too!  Ask away!  

 

Take care!  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Hank444 Newbie

 

 

I also did not say on this topic but I had pain in my side where my gallbladder is after I had too many processed wheat products.Pain has been there over 2 months and I had a Hida scan to check the function and they said it was 28% working,doc said need to be at least 35% to keep it.My gallbladder is feeling less numb and my bloating and constant burping has gone mostly away since I went on a gluten free diet for a little over 1 month.I have lost weight since the pain in my side came about and doctor wants to take my gallbladder out in 4 days from now.I'm not sure I should have it done.I'm feeling better than I was a month ago.Not sure if I should postpone the surgery or not.  I had an ultrasound done and I only have 2 small polyps in my gallbladder and no gallstones.

cyclinglady Grand Master

Hank,

I think you should discuss your concerns with your doctor about your gallbladder. I wish you well!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,901
    • Most Online (within 30 mins)
      7,748

    tessycork47
    Newest Member
    tessycork47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.