Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood work and ultrasound results came back.


Victor10

Recommended Posts

Victor10 Rookie

Okay just got my results back. All blood work was fine, everything negative. I don't think they did the full panel for celiac though. Said liver and kidney function was good. Ultrasound showed everything good except for a "slightly enlarged spleen" 

What does this mean, I'm so scared it's cancer. I'm 25yrs male 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Leigh17 Newbie

Don't worry until speaking with your physician. I had a tough bout with mono this past year, which can cause spleen enlargement. Best of luck. 

Victor10 Rookie

Don't worry until speaking with your physician. I had a tough bout with mono this past year, which can cause spleen enlargement. Best of luck. 

 

Wouldn't I have noticed if I had Mono? I had a really bad flu which became a pnuemonia a few months ago. Idk if that could have caused the spleen to swell.

Also a few days ago, right before the symptoms I fell racing motorcycles. I landed on my left rib and tumbled a good amount of times hitting both ribs each time. You think it could have been the trauma. I forgot to mention that to the doctor.

GF Lover Rising Star

Hi Victor :)

I gonna be straight with you.....'settle your ass down'.  Seriously, you're gonna be fine.  If there was a serious problem with your spleen the blood work would show it.  I put my money on the motorcycle fall. 

A lot of veterans here were close to being, or were, physically disabled and had little or no quality of life before diagnosis.  It took many of us 15 to 20 years of being sick until we were finally diagnosed correctly.  We certainly were not out riding motorcycles. 

Throughout your life you will experience injury, disease, stress and anxiety and so much more.  It's just how life is.  I am grateful for each day I wake up in the morning.  Then I'm thankful that I can get out of bed and take care of myself.  You know, you can live with disease, disabilities and many more issues that change your life.  I live with Cancer, Vitiligo, Celiac, Sjogrens, Reynaulds, Connective Tissue Disorder, Hypothyroidism, Bi-Polar Disease, ....Oh, and lesions showing up in my brain and more stuff you just don't want to know about.  To top it all off, I just started Menopause (that seriously sucks). 

Now, I live a great life.  I paint, draw, work with gem stones, meditate with bineural beats, read, play with my dogs, enjoy my parakeets, adore and spend every moment I can with my Husband and I'm about to become a Grandma :).  Life is great.  As we age we adapt to new normals.  Age and disease bring restrictions which we have to accept. 

There is a saying, "Don't borrow worry".  Look into a couple things while you wait for your Doc appt.  1.  Mindfulness, 2. Meditation, including bineural beats.  Alpha Waves, Theta Waves and Delta Waves for meditation.  Did you know that stress alone can effect the immune system?  Control the things you can, let the rest go.

Hang in there Victor :)

Colleen

Victor10 Rookie

Thank you so much for your post!! 

To be honest, I think I either have Celiac or IBS. I know stress is ruining me. I'm anxious and stressed 24/7 and its affecting my life.

I have all the common symptoms for celiac even down to the canker sores in the mouth, the gas and bloating, the D and brain fog, depression and etc... List goes on. .

I also don't think my spleen is too much of a worry. It's probably just the fall trauma or maybe I just have a big spleen, who knows. I just need to calm down and fast!! Only time and tests will tell. Next up is probably more blood tests and an endoscopy and maybe colonoscopy. Might as well check everything. 

Any specific tests or questions you think I should ask? 

mommida Enthusiast

I had mono without knowing I had mono. 

Why don't you start looking into gluten free recipes/ healthier eating?  When testing is over give the gluten free diet a try, especially if you get an IBS diagnoses.

Victor10 Rookie

I had mono without knowing I had mono. 

Why don't you start looking into gluten free recipes/ healthier eating?  When testing is over give the gluten free diet a try, especially if you get an IBS diagnoses.

interesting, so it can be possible I had or have mono causing the spleen to slightly enlarge. I read its very common in mono infections. 

I think my digestive issues are related to something else. Either IBS or a food intolerance. Maybe even my severe stress.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

No offense, but I'm gonna guess it's stress.

I believe someone suggested probiotics would be a good place to start. Scott just posted an article that shows negative gut bacteria and a greater link to Celiac.   Keep a food journal to help track down a food intolerance.

Victor10 Rookie

No offense, but I'm gonna guess it's stress.

I believe someone suggested probiotics would be a good place to start. Scott just posted an article that shows negative gut bacteria and a greater link to Celiac.   Keep a food journal to help track down a food intolerance.

but how would stress affect my spleen. Hmm

GF Lover Rising Star

Victor, Did the Doc test you for Celiac?  What were the results?  Why are you worried about an endoscope and colonoscopy already.  A colonoscopy does not test for Celiac.  Your bloodwork so far has been negative.  You really have to settle down and go thru the steps with your Doctor.  No one here knows what might or might not be wrong with you.  I do know one thing, the self-imposed stress and anxiety is going to make you feel sick.  Are you still eating gluten?  What has your Doctor said to you?  Do you have a followup appointment?

Probiotics are a good idea.  There are plenty of threads here on that topic so read them.  Don't worry about your spleen, your Doctor will tell you if and when to take action.  You are not dying Victor....you are going through testing.  One more thing.  STRESS and ANXIETY can cause all of the symptoms you have written here.  I will tell you again to read up on what I suggested.  It will reduce your stress.

Victor, this guessing game of yours has got to stop.  Go through the testing regimen like everyone else.  You will get answers and take action if needed.

Calm down...

Colleen

Victor10 Rookie

Your 110% right. I can't continue like this. I literally spent all day yesterday in bed just on my phone researching my symptoms, my spleen, all types of cancer and fatal disease. I'm not going to let this consume me anymore. 

I saw a GI today and he examined my stomach and listened to my symptoms. He didn't seem to concerned. He just wants me to feel better. I'm scheduled for a endoscopy. He was really informative on celiac and said he will be checking the stomach and the intestine for celiac damages and will be taking biopsys. He also informed me of false negatives in blood work. A really good informed doctor. He's also going to test for bacteria, infections and etc.. Like H. Pylori for example and check for ulcers, Div, UC and etc..

As far as my "slightly enlarged spleen" he said It not something I should be really worried about but to monitor it and if I want to see a specialist about it. I'm still a little concerned about it because all read online is cancer but then again that seems to be the diagnosis for anything you search. He said I don't have any alarming symptoms.

So have the endoscopy in about 12 days and I was wondering if I should eat abit of Gluten each day to make the endoscopy show any damage. 

Anything else I should do or see?

squirmingitch Veteran

Victor, Victor, we've told you before NOT to quit eating gluten until ALL testing is done but you did not listen. Instead you were obsessed with looking up horror stories of cancer & spleens & anything else you could find that was super dramatic. HERE:

Open Original Shared Link

It says:

  • Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten.
Victor10 Rookie

I know, I'm hopeless :(

the endoscopy is about two weeks away. I aatea burger today with regular wheat bread. I'm following the equivalent of 4 pieces of toast a day. Let's see what the endoscopy shows. 

I just want answers! From my GI issues to this damn spleen ha-ha. I seem to be the only one worried about it. 

Anyways I've been eating finally and wow each meal I want more, feel like I'm starving ha-ha. Although I am nauseousright now, but I'm sure it's because of the fast food burger. I get nauseous eating fast food or greasy food. What if its my gallbladder? Oh god you guys probably think I'm crazy.

I'm going to try some tea and meditation to relax. 

Victor10 Rookie

If this is all stress this is crazy! I really calmed myself down yesterday and had a great sleep. I woke up with a normal bowel movement after two weeks of D and anxiety. 

GF Lover Rising Star

Do the same today and everyday until your appointment.  Meditation, Music, and get some Chamomille Tea,.  Limit your caffeine and sugar.  Take walks, get exercise.  Eat good gluten food but try to stay away from fast food because it's greasy and just not good for you.  Make sure you get the equivalent of 2 slices of bread a day.  

Don't be surprised if it ends up being stress and anxiety.  You may still have an underlying condition but stress can make things a whole lot worse.

Congratulations on the sleep!  I'll end this the same way I began a few days ago....'Settle Your Ass Down' :) and I mean that in the best way!

Colleen

  • 2 weeks later...
mommida Enthusiast

Your spleen is a "mysterious" part of your immune system.  They don't know the exact amount of control it contributes to your immune system, but it is part of it.

Severe stress does wreck havoc on your immune system.  A recent mono infection, could still be taxing your immune system too. 

Calm down. Stress doesn't do anything good to your body.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

    2. - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

    3. - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    4. - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    5. - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,832
    • Most Online (within 30 mins)
      7,748

    Jackie5577
    Newest Member
    Jackie5577
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.