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Tender to touch stomach, abdominal pain, cramping, had anybody with gluten intolerance had those symptoms?

Debdas

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Debdas Newbie
Debdas
Posted

Hi all, 

I am having stomach pain since 3 months which is undiagnosed until now, 

first the stomach pain was in the lower left quadrant, now its in the upper stoamach left side and middle, the portion of stomach where it pains, is also sore to touch, i have gas and burping also.

Did anyone with gluten intolerance had the same symptoms?

I am planning to start a gluten free diet to see the results, how long should I eat glutenfree to know if i have gluten intolerance?

my endoscopy only showed gastritis.

none of the medicines have helped me till now.

appreciate your replies.

I am mother to a 6 month old and this stomach pain is really killing me.

Please help!

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jmssl Newbie
jmssl
Posted

Did they test for celiac?  

 

KJDx Rookie
KJDx
Posted
1 hour ago, Debdas said:

Hi all, 

I am having stomach pain since 3 months which is undiagnosed until now, 

first the stomach pain was in the lower left quadrant, now its in the upper stoamach left side and middle, the portion of stomach where it pains, is also sore to touch, i have gas and burping also.

Did anyone with gluten intolerance had the same symptoms?

I am planning to start a gluten free diet to see the results, how long should I eat glutenfree to know if i have gluten intolerance?

my endoscopy only showed gastritis.

none of the medicines have helped me till now.

appreciate your replies.

I am mother to a 6 month old and this stomach pain is really killing me.

Please help!

Hi, 

When you had your endoscopy did they take biopsies? So they can check for h-pylori and celiac etc? 

cyclinglady Grand Master
cyclinglady
Posted

I am sorry that you are sick!  

Please do not go gluten free until you have been tested for celiac disease!  These are the tests:

 
-Tissue Transglutaminase (tTG) IgA and (tTG) IgG
-Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG
-EMA IgA 
-total serum IgA and IgG (control test)
-AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests
 
-endoscopic biopsy - make sure at least 6 samples are taken
 
VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.  
 
(Source: NVSMOM -- ?)
 
You had an endoscopy, but did they take biopsies of the small intestine?  Get copies of all lab reports always!  
 
Read up more about celiac disease at the University of Chicago's celiac website.
 
Open Original Shared Link
 
why not go gluten free?  
 
Open Original Shared Link
 
rule out celiac disease first.  You may have other issues like Crohn's, SIBO, etc.  

 

Welcome to the forum and let us know how it goes! 

 
cyclinglady Grand Master
cyclinglady
Posted

Ugh!  The forum is acting up!  Please forgive my typing!  

Why not go gluten free now?  It can take a celiac months to years to recover.  It would be difficult to stick to a gluten free diet to test that theory.  Not impossible.  Just really hard!  celiac disease is genetic.  Kids, parents and siblings need to be tested every two years even if they have no symptoms.  Yes, some folks with celiac disease have intestinal damage, but have no symptoms. 

It it could be something else, but taking a simple blood test can rule out celiac disease.  Then your doctor can pursue other illnesses.  

Please do more research on celiac disease!  Find a celiac savvy doctor if possible.  From what you posted, it sounds like your GI was not celiac savvy!  

 

Debdas Newbie
Debdas
Posted
  • Author

Thank you for the replies!

yes my GI took samples from my stomach to test for hpylori and entritis and said they were negative.

he did a normal blood test to rule out allergies and infections.

i dont think he tested specifically for celiac.

Here in India, things are bit laid back so its difficult to get a good diagnoses.

so i have been looking at internet forums for some information and hope of getting diagnosed correctly and get treatment to recover from this pain.

Thanks!

SLLRunner Enthusiast
SLLRunner
Posted

@Debdas, I just read that part of the treatment for gastritis is eliminating wheat and lactose.  Did your doctor give you a treatment plan? Prescribe any medication?

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    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      I think you may be correct. The way the results are printed makes it appear as though it’s the ttg iga but I think you’re right—the 646 is total iga. So this would be indicative of another issue (another autoimmune condition, infection, cancer, etc.) and my doctor would need to do further testing. Thank you for saying this! 
    • RMJ
      ttg iga high (646 mg/dl) other results are normal

      By RMJ · Posted

      Are you sure that is the TTG IgA? Based on the units (mg/dL) and having an upper limit to the normal range, it looks like a total IgA result. 
    • kpf
      Vegetarians and vegans with celiac disease

      By kpf · Posted

      I am wondering if there are any vegetarians or vegans on this forum. I’ve been vegan for 15+ years and am just finding out I likely have celiac disease (blood panel done, need biopsy). My favorite foods—outside of vegetables, fruits, nuts, seeds—I will likely have to give up. Anyone else? 
    • trents
      Fiber Supplement

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      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
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