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So Glad I Found This Forum!

traveljunkie

By traveljunkie
in Coping with Celiac Disease

Recommended Posts

traveljunkie Rookie
traveljunkie
Posted

Hi everyone, I'm new to this forum and have found it to be very helpful. I have read through many threads and have learned a great deal on how to deal with such a limiting diet. I have found the support and advice you give each other very helpful. As I think back on my health, I realize I've had a problem with gluten my whole life. Doctors said it was...yes, I'll say it..I.B.S.!!! I always knew it had something to do with food but Dr. convinced me that's what causes I.B.S.

In Feb. of this year my son and I had bronchitis and were both put on antibiotics. That's when our bodies completely shut down. Through trial and error and no help from DR.s we realized we could no longer eat pasta, bread,etc. without having severe reactions. We are now gluten free and have never felt better. On occasion we have ingested gluten and right away we get diarrhea and a itchy rash. Ny ears also get red and hot!! Wierd!!

So anyways thank you all for the comments on this forum...they've helped tremendously!!!

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Lisa Mentor
Lisa
Posted

Welcome. I too have gain a vast knowledge from this site. I am now teaching my doctor about Celiac Disease.

I'm impressed that you have solved your gluten intollerance on your own. Good for you.

Feel free to post anytime.

Lisa B.

nettiebeads Apprentice
nettiebeads
Posted
Hi everyone, I'm new to this forum and have found it to be very helpful. I have read through many threads and have learned a great deal on how to deal with such a limiting diet. I have found the support and advice you give each other very helpful. As I think back on my health, I realize I've had a problem with gluten my whole life. Doctors said it was...yes, I'll say it..I.B.S.!!! I always knew it had something to do with food but Dr. convinced me that's what causes I.B.S.

In Feb. of this year my son and I had bronchitis and were both put on antibiotics. That's when our bodies completely shut down. Through trial and error and no help from DR.s we realized we could no longer eat pasta, bread,etc. without having severe reactions. We are now gluten free and have never felt better. On occasion we have ingested gluten and right away we get diarrhea and a itchy rash. Ny ears also get red and hot!! Wierd!!

So anyways thank you all for the comments on this forum...they've helped tremendously!!!

<{POST_SNAPBACK}>

I'm very thankful for this forum also. I was on my own for 9 yrs before breaking down and sought support online. Thank God I found this place!! My knowledge of celiac disease has improved considerably and so has my health. Welcome to the site, and please feel free to post any questions. None are to gross or silly! After all, it's only your health!

Annette

jenvan Collaborator
jenvan
Posted

glad you've fount it helpful! don't know what i would have done without it :) ah, the dreaded IBS mis-diagnosis...join the club of those of us with the same experience!

traveljunkie Rookie
traveljunkie
Posted
  • Author

Thanks, everyone! I know this will be just the first of many posts. Look forward to chatting with you all!! Been through a lot and have lots of stories to share!

beelzebubble Contributor
beelzebubble
Posted

welcome :)

i'm glad you found this site too. it's been a source of very necessary information and comfort to me these last few years. i know it will be to you too.

i just have to ask, just in case...have you done a round of probiotics to help your intestines get healthy after being on the antibiotics? i've found that it really helps. i know it was a while ago, but chances are you are still out of whack if you haven't taken steps to correct it.

anyway, be well.

bubble

traveljunkie Rookie
traveljunkie
Posted
  • Author

Hey Bubble,

Thanks for the warm welcome! Yes I do take probiotics, they seem to help a lot. In the beginning I never realized that gluten was making the situation worse. Now that I'm healing and watching my diet, taking vitamins and probiotics things are defineatly improving. The only problem I have is with cheese and I usually take a extra dose of probiotics if I do it eat. They usually curb the side effects of eating cheese.

Thanks again!

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KaitiUSA Enthusiast
KaitiUSA
Posted

Hope you find the forum helpful. Welcome :)

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Diagnosed with IBS... Ha, doesn't that sound familiar :P . Welcome to the board and feel free to ask every question no matter how stupid it may seam to you.

Hugs, Stef

judyk Newbie
judyk
Posted

I'm new here, too. I've had this problem for years. My mother was

allergic to wheat but I don't think they knew about celiac then. I was

tested for gall bladder and then my doctor had the blood test done.

No celiac! But I still vomit. Although my diarrhea has improved the

last couple days. The up side is I'm losing weight.

I was disappointed that nothing showed in my tests but from what I

have read on this site..sometimes it doesn't show.

I cheated Thanksgiving and this a.m. Yes, I got sick so back to wheat

and milk free.

JudyK

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Hello Judy,

welcome in our little "celiac community". Just listen to your body. If the test results didn't show anything, but you feel better on wheat and milk free, then do it. You might have read this already somewhere in here, but here it is again. Celiacs are sometimes (especially at the beginning of their diet) intolerant to milk. In a couple of weeks (or months) though, when the little hair in your small intestines are fine again you might be able to drink milk again. You might wanna give it a try in 6 months or so.

Hugs, Stef

Claire Collaborator
Claire
Posted
Hey Bubble,

Thanks for the warm welcome! Yes I do take probiotics, they seem to help a lot. In the beginning I never realized that gluten was making the situation worse. Now that I'm healing and watching my diet, taking vitamins and probiotics things are defineatly improving. The only problem I have is with cheese and I usually take a extra dose of probiotics if I do it eat. They usually curb the side effects of eating cheese.

Thanks again!

Try raw milk cheese (unpasteurized). Also very aged cheese. See if you can handle this. No processed cheese. Claire

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      By knitty kitty · Posted

      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
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      By knitty kitty · Posted

      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
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