Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

manasota

Recommended Posts

manasota Explorer

I've seen many posts where a Celiac whose gut has just healed is starving every 2 hours.  That's me, I guess.  Has anyone experienced accompanying EXTREME anxiety and abdominal pressure (as though a small child is standing on your gut)?  I also have Graves Disease and thought I was simply hyperthyroid.   Just got the results and not hyperthyroid.  I can't stand the constant feel of wanting to pull out my hair or scream.  I really wish this kid would get off my guts so I could breathe more easily...  Seriously, this has been going on for about 6 months.  Thanks for any responses.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psoy Newbie

I am  not sure what your gut is healing from, but Anxiety is common in Celiac's (The other day,I saw a Celiac in the store crying and looking at Labels,and I asked if she was a Celiac, "How did you know?" She said. "Only Celiac's panic over food Labels!" I replied, then I helped her find stuff). Yoga, breathing, Pot, exercise all help! See a psychiatrist if you can. This disease is panic inducing. As for the Belly pain/pressure (putting on my Biochem hat here), it's most likely gas pain, which is the worst pain there is because it makes your normal pain (my back broke, seizure from nausea meds) worse! See a *****recommended******* pain doc. Be careful, some docs erroneously hate pot, so maybe look into their stance?)

 

Simethicone tabs will help upper GI tract gas, Activated Charcoal helps lower, but will render inert ANY OTHER MEDS YOU TAKE! Move, believe it or not just getting up and walking or swimming playfully helps move gas through! You'll fart more than you ever thought possible but the pressure/pain will ease. You could be getting Glutened, so be diligent. It takes 1/119 of a slice of bread to provoke Celiac! Gluten Free sometimes is misleading, make sure it's prepared for us! The sad mantra is "If you don't know, then the answer is no!" Celiac Safe is the label we need. 

 

Our malady results from the fact that we all have no enzyme to Cleave the Gluten Protein. Your body needs Amino Acids which you usually break down from proteins. Since Gluten enters as a protein, you can't use it. Bacteria can , do, and secrete gas! We also have a lower metabolic rate. They say we actually absorb only 75% of what we eat!

 

 

Hope that helps, stay clear of High Fructose Corn Syrup too. Bloats and causes pain/gas. 

 

Paul Soychak, B.Sc., M.F.A.

 

 

 

 

 

 

 

 

 

.

 

 

icelandgirl Proficient

Hi Manasota and (((hugs)))...I remember having a feeling of an inflated balloon inside of me.  It drove me crazy and nothing helped.  Walking, yoga...nothing.  at that point I looked into what things cause bloating...I cut out all foods that did.  It helped some.  Then I looked into additives that cause bloating and found 2 things that I was ingesting every day...inulin and carageenan.  Inulin was in my probiotic and carageenan was in my almond milk.  Switching my probiotic and cutting almond milk reduced my balloon feeling so much.  I don't miss it at all.  So just something to think about...if you are eating anything with either of those 2 ingredients.  Inulin is also called chicory root fiber.  Carageenan is added to lots of dairy type things to make them creamier.

Best wishes...I hope you find your answer.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,799
    • Most Online (within 30 mins)
      7,748

    Liss Drisk
    Newest Member
    Liss Drisk
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • RMJ
      The normal ranges can vary for the tissue transglutaminase and gliadin antibody celiac tests because the units aren’t absolute.  Could you please tell us what the normal ranges are for the laboratory used? If her tissue transglutaminase results are 10-fold above the normal range some would diagnose her on that alone.  Endomysial antibody ranges are more standardized, and a titer of 1:5 would usually be normal.  Might that be the normal range and not her result?  Her total immunoglobulin A is normal for her age. (This is tested because if low, then the other IgA tests might not be valid).
    • Samanthaeileen1
      Hello there! New to celiac community, although I have lots of family in it.  My two year old was just diagnosed with celiac disease based on symptoms and bloodwork.  symptoms (swollen belly, stomach hurting, gagging all the time, regular small vomit, fatigue, irritability, bum hurting, etc) she got tests at 18 months and her bloodwork was normal. She just got tested again at 2 1/2  because her symptoms were getting worse and these were her results :   Tissue Transglutaminase Ab, IgA 58.8 Unit/mL (High) Endomysial Antibody IgA Titer 1:5 titer (Abnormal)   Gliadin Antibody IgA < 1.0 Unit/mL Gliadin Antibody IgG 8.5 Unit/mL Immunoglobulin A 66 mg/dL Her regular pediatrician diagnosed her with celiac and told us to put her on the strict gluten free diet and that we wouldn’t do an endoscopy since it was so positive and she is so little (26lbs and two years old). I’m honestly happy with this decision, but my family is saying I should push and get an endoscopy for her. It just seems unnecessary and an endoscopy has its own risks that make me nervous. I’m certain she has celiac especially with it running in mine and my husbands family. We are now thinking of testing ourselves and our 5 year old as well.  anyways what would y’all recommend though? Should we ask for an endoscopy and a GI referral? (We are moving soon in 5 months so I think that’s part of why she didn’t refer us to GI)    
    • olivia11
      This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense.   You are not confusing yourself  you have got it right. Thiamax (TTFD) plus a B-complex, and if you want benfotiamine, the Life Extension formula covers that at ~100 mg.
    • olivia11
      High fiber can definitely cause sudden GI distress especially if it’s a new addition but accidental gluten exposure can feel similar. Keeping a simple food/symptom log and introducing new gluten-free foods one at a time can really help you spot the pattern. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense.
    • xxnonamexx
      sorry a bit confused so I should take my B complex along with Objective Nutrients Thiamax for TTFD but what about a Benfotiamine to take. The Life extensions contains Benfotiamine and Thiamine together or im confusing myself. I am trying to see if I take Thiamax what should I take for Benfotiamine. Thanks EDITING after further research I see ones water soluble ones fat soluble. So I guess 100MG as you suggested of Life Extension contains Benfotiamine and Thiamine Hydrochloride. and the Objective Nutrients Thiamax contains TTFD.     would work for me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.