Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I need a Dr. for my Gluten Sensitive 7 year old in Norman, Oklahoma


Katharine

Recommended Posts

Katharine Newbie

I have a son that has exhibited gluten sentivity since he was very young.  I decided to put him on a gluten free diet on my own to see if his symptoms and behavior changed at all.   It was a wonderful improvement.  But, the Oklahoma Asthma and Allergy clinic tested him for Gluten Allergies and found nothing.  I went gluten free with my son 2 years ago and found that I felt much better too.  My problem is that my son's Dad (NOT MY HUSBAND)  does not understand or appreciate how important eating glutten free is for him.  He makes fun of me and asks me "are you a Doctor?".   Does anyone know of a Nutritionist or Doctor in Oklahoma that can help support my son and I in our quest to understand gluten sensitivity?  We are healthier and happier not eating gluten but we seem to be up against a difference of opinion from other family members that feed him gluten and tell him not to tell anyone.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Welcome!  Unfortunately, there is no such thing as a gluten allergy.  You can be allergic to wheat, but not to gluten.  Celiac Disease is an autoiummuine disease that happens to trigger "flare-up" when exposed to gluten (attacks the small intestine).  To get tested you have to be consuming gluten daily for a period of 8 to 12 weeks (blood tests).  Non-celiac gluten sensitivity  is determined after ruling out celiac disease and then trying the gluten free diet.  

For a child, a diagnosis is important so that schools can accommodate their gluten-free  diet (not to mention relatives....) 

Please learn more at the University of Chicago's celiac website:

Open Original Shared Link

Take care!  

Stephanie78 Newbie

Katherine I changed my sons diet to gluten free soy free dairy free because of his adhd and sensory disorder he was a completely changed child NO MEDICATIONS NEEDED it is the ASD diet!!! His school wasn't on board at first but they said they would try it and they admitted the wished they would have listened to me !!! 

Stephanie78 Newbie

I told them it was against my religion to give my child gluten and the teacher actually told me that wasn't fair for me to say that.. I told her if my son couldn't have pork due to his religion would they give it to him ?! That is when she agreed... Literally 3 days into school after Christmas break she sent a note home saying we are now enjoying a calmer and happier Dylan... His goal was to be able to sit during circle time ... And he did it!!!!!

stri8ed Rookie

As the others have alluded to, gluten sensitivity is not an allergy, which means it cannot be detected using the transitional means. That being said, there is growing research and many MD's who are beginning to acknowledge the many adverse effects gluten can have on susceptible individuals.

I suggest you encourage the dad to read up on the latest research on gluten sensitivity. If you are seeking out a doctor, your best bet may be a functional MD (I have seen one in Chicago who was well aware of gluten sensitivity).

A good recent article on this - Open Original Shared Link

Be sure to read the comments.

 

Gemini Experienced
On 8/5/2016 at 10:11 PM, Stephanie78 said:

I told them it was against my religion to give my child gluten and the teacher actually told me that wasn't fair for me to say that.. I told her if my son couldn't have pork due to his religion would they give it to him ?! That is when she agreed... Literally 3 days into school after Christmas break she sent a note home saying we are now enjoying a calmer and happier Dylan... His goal was to be able to sit during circle time ... And he did it!!!!!

I have to admit, that was a brilliant thing you said to the teacher!  ;)  I like the comparison to pork and I'm going to have to remember that one. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,915
    • Most Online (within 30 mins)
      7,748

    DRIZZE
    Newest Member
    DRIZZE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.