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TinkerbellSwt

By TinkerbellSwt
in Coping with Celiac Disease

Recommended Posts

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

Hello out there. I am new to this board and just wanted to say hi and introduce myself. I am 33 years old from NJ and have only been diagnosed with celiacs for about a month. What a month its been. I spent 8 long days in the hospital with no doctor knowing what was wrong with me. By the time they finally admitted me I had no potassium or vitamins left in my system. It was horrible. Now I am trying to cope with the disease and so far I am ok. I am constantly checking sites to get receipes for gluten-free cooking. I appreciate all help and feedback. I am glad I fell upon this site.

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Carriefaith Enthusiast
Carriefaith
Posted

Welcome to the board! I'm sorry that you had to go through that :( There are lots of great recipes on this board in the recipe section. If you need any recipes or meal ideas, please ask!

killernj13 Enthusiast
killernj13
Posted

Welcome,

I am from NJ also. Here are some places to shop for gluten-free food if they are near you.

Wegmans - By Woodbridger Center

Trader Joes - Westfield

Whole Foods - Short Hills - Milburn

Good luck with everything.

jenvan Collaborator
jenvan
Posted

welcome--we're glad you're here ! any issues your wanting to help with, any products you're looking for?

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

Thank you so much for the welcome. Now i know where to come to get some answers!!

jerseyangel Proficient
jerseyangel
Posted

Hi TinkerbellSwt--Welcome! I am from NJ, too. South Jersey, actually. Glad to hear that you're finally feeling better. As everyone said, this is a great place to come to ask questions, or just talk to some great people all in the same boat. I was DX in June and the board has been a lifesaver for me.

KaitiUSA Enthusiast
KaitiUSA
Posted

Welcome :) I am sure you will find this site so helpful. Would you like some lists to help as guidelines? If you would like you can contact me and I can send them to you.

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RiceGuy Collaborator
RiceGuy
Posted

A warm welcome from myself as well. Hope you recover quickly and completely. I'm finding this site to be a valuable source of information and support. I'm certain you will too.

Noelle126 Apprentice
Noelle126
Posted

Welcome! This site has done wonders for me. I use it all of the time and ask questions regularly. Everyone is always willing to help!

Rachel--24 Collaborator
Rachel--24
Posted

Looks like you've already got quite a welcoming. :)

I'm a little late but welcome to the board...sounds like you had a rough time. Hope you get better soon. :)

Becky6 Enthusiast
Becky6
Posted

Welcome! I am new here as well! This board has been so helpful the past few days in getting a gluten-free diet set up for my daughter! I am so glad I found this board!!

Becky

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author
Looks like you've already got quite a welcoming. :)

I'm a little late but welcome to the board...sounds like you had a rough time. Hope you get better soon. :)

Thank you. May I ask what everyone does when they have been "glutened"? I have been and am home suffering right now. I have a 6 1/2 month old son and he just doesnt seem to understand that mommy is sick yet. Is there anything I can do? Or do I just have to wait it out?

Rusla Enthusiast
Rusla
Posted

Welcome to the site. It has been great site for me and I hope you will find it the same for you.

Claire Collaborator
Claire
Posted

Do you feel welcome yet? If not, - welcome.

You are going to love this place. Information, support and genuine sharing goes on here. You definitely found the right place.

Come on in and stay awhile. Claire

jenvan Collaborator
jenvan
Posted

TinkerbellSwt -- unfortunately, there is no real quick fix for getting over being glutened. however, most people here have their own ways of coping--some break out the immodium, gingerale, chicken soup. alot of us try and sleep it off or take time out to rest. what are your symptoms ?

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

My symptoms are severe stomach distress. Constantly running to the bathroom. I get severe pain in my lower abdomen, like below my belly button. If its really really bad, I start throwing up too. I did not get it too bad this time. It is just hard to deal with the pain. It makes it hard to take care of my son too.

Claire Collaborator
Claire
Posted
TinkerbellSwt -- unfortunately, there is no real quick fix for getting over being glutened. however, most people here have their own ways of coping--some break out the immodium, gingerale, chicken soup. alot of us try and sleep it off or take time out to rest. what are your symptoms ?

Have you every tried charcoal tablets. These absorb. Doctor at Immuno Labs recommended this to me. Claire

jenvan Collaborator
jenvan
Posted

tinkerbell--

that sounds miserable :( you could try an antidiarrheal... i don't take meds myself...just drink sprite--it has always calmed down my system. i know gingerale or ginger root. i'm sure others will have ideas too...

this post might be encouraging to you :)Open Original Shared Link

and this one might give you some ideas to help with abdominal pain: Open Original Shared Link

Carriefaith Enthusiast
Carriefaith
Posted
I get severe pain in my lower abdomen, like below my belly button. If its really really bad, I start throwing up too. I did not get it too bad this time. It is just hard to deal with the pain. It makes it hard to take care of my son too.
I also get severe stomach pain (upper abdominal), so I know what you are going through. Pain killers don't work on me, so I usually just have to wait it out. I find that laying on my back and rubbing the area helps a lot for me. I would guess that ice packs would help too.
luvs2eat Collaborator
luvs2eat
Posted

Welcome from me too! Where in NJ are you ? I'm just across the river near New Hope, PA. This is an awesome site with all the answers you ever needed for questions you never thought you'd have to ask!!

pokerprincess Newbie
pokerprincess
Posted
My symptoms are severe stomach distress. Constantly running to the bathroom. I get severe pain in my lower abdomen, like below my belly button. If its really really bad, I start throwing up too. I did not get it too bad this time. It is just hard to deal with the pain. It makes it hard to take care of my son too.

This sounds insane; but my sister and I have found that

drinking a little potatoe vodka (there is a inexpensive one called

luksusowa or expensive Chopin.) speeds up the process. According to

my sisters Dr. it is kills the infection that has started. She

compared it to how the soldiers used alcohol to kill infection

in wounds. It doesn't take to much. It gets the whole bathroom cycle

over faster.

Good Luck!

K

p.s. I just moved from N.J. I miss it so much

that my friends here in colorado call me Jersey

girl. And guess what my favorite song is!

pokerprincess Newbie
pokerprincess
Posted
Hello out there. I am new to this board and just wanted to say hi and introduce myself. I am 33 years old from NJ and have only been diagnosed with celiacs for about a month. What a month its been. I spent 8 long days in the hospital with no doctor knowing what was wrong with me. By the time they finally admitted me I had no potassium or vitamins left in my system. It was horrible. Now I am trying to cope with the disease and so far I am ok. I am constantly checking sites to get receipes for gluten-free cooking. I appreciate all help and feedback. I am glad I fell upon this site.

You will be come infamous chef! It is now one

of my greatest hobbies and the only way I was

able to convince my brother in-law that I was not

so bad. (he was afraid I didn't have domestic bone

in my body and it would rub off on my sister.)

I wouldn't eat any other way even if I didn't have

celiac. I have found that we are probably ahead of

the rest of the world. slowly and surely I find other

people eating this way just to feel better. My boyfriend

has adopted the diet and kicks himself when he lets

temptation get the best of him.

You will do fine!

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

Thank you for all the ideas of different things to do when I dont feel well. Today I went to Whole Foods Market. WOW! I had no idea all of this stuff was out there! I got gluten free cookies. (I dont know how they taste yet though) I also purchased a gluten-free apple pie! These I thought were treats that were gone forever for me. Its amazing to me. I agree we are ahead of our time. The more and more people hear about this the more and more will start to live this way. I thank all of you for the warm welcomes I have received and hope to be friendly with all of you!

debmidge Rising Star
debmidge
Posted

Welcome Tinkerbell

Board has been a lifesaver and everyone is a good listener. You'll be very glad you stumbled upon us.

Deb

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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