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News: Celiac.com: Why Following a Gluten-Free Diet Is Difficult Long-Term


Scott Adams

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Scott Adams Grand Master

Turns out, going gluten-free is the hardest diet to stick with; only 12 percent of ... Bottom line: With the exception of those who have celiac disease, ...

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There is just so much wrong with this article, it's ANNOYING.  ;)  I think if you have Celiac Disease and are symptomatic, then it is not hard to stick to the diet long term. I don't know about you but having diarrhea and vomiting just isn't on my list of fun things to do, not to mention the severe anxiety and myriad of other symptoms that rear their ugly heads when I am even cc'd. I have been gluten-free for 11 1/2 years and, while it is not convenient at times, hard it is not. I realize if you are a person that likes to eat out often, that is going to have to change. You can still eat out safely but not every week or even every month.

The biggest hurdle I have seen from reading posts on this forum is that many people do not take the time to read the correct books and take the time to LEARN the diet correctly.  I see this in the other Celiac's in my family.  It's like Type 1 diabetes....they have classes when you are diagnosed that you have to go to and I really think that needs to happen when people are diagnosed with Celiac. It is as serious of a disease as diabetes is so the medical profession and insurance people need to get a clue.

As for weight loss, anyone can do it.  I know that is going to piss some people off but weight loss is hard and you have to stick to a plan and that is what makes people lose their mojo and quit.  With a good food plan and exercise, I have seen people lose more weight than I weigh myself so I know it can be done. You have to find the motivation to keep you on track, and that part might be harder than the actual diet and exercise.  There is no miracle diet out there and it is work but most things of value take hard work to get there.

The last crank from me..........why is it that if you don't eat a lot of carbs for fiber, they think you are doomed?  Has anyone ever heard of fruits and veggies for fiber?  That is where I get most of my fiber from and constipation is never a problem.  I do eat some whole grain carbs, of course, but way more fruits and veggies. Eat a salad and see what happens......:)

 

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    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
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    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
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