Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Headaches When First Going Gluten Free?


weekendwarrior

Recommended Posts

weekendwarrior Apprentice

Hi everyone!

I've been eating a fully gluten free diet for the past week - and yesterday (the 7 day mark), I ended up getting a headache from mid afternoon until evening.

I thought nothing of it until I got the exact same headache today. I read some sites that this could be a "wheat withdrawal?"

I was curious if anyone else dealt with this when starting out, or if this is (bad pun alert) all in my head?

Thanks guys!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



emma6 Enthusiast

yes i had a constant headache for the first two weeks along with dizzyness, fatigue, nausea it was really intense, i constantly felt like the room was spinnig even when i was lying down but it slowly got better :)

i went back to the doctor i was seeing because it was so bad she wouldn't believe me and said it was impossible to have withdrawls from gluten and i just wasn't eating enough. even though i was eating every hour and more than ever. it was definetely withdrawls i had the exact same reaction six months earlier when i had tried to go gluten free for a few days.

squirmingitch Veteran

Yep, lots of us have gone through gluten withdrawal. Headaches are one symptom reported, also stark raving, 24/7 starvation like you could eat a mountain of food & do & 20 min. later you're starving again, irritability to downright meanness, aches & pains..... & many others so if you get off with just headaches then you're not doing so bad. Please understand, I am not making light of your headaches AT ALL and I really hope they don't last too long for you.

I can hear you asking how long? Everyone is an individual so we have differing symptoms & time frames for getting through it. Most people, I would say, get off at about 2 weeks although some take longer. I was about 2 months.

weekendwarrior Apprentice

Well that explains a LOT!!

I've been hungry around the clock for the past few days! These headaches are the tension ones that run from the back of your neck, around the top of your head and into your eyes - it's not fun at all, but at least I know it's a temporary thing. 

I've increased my water and am trying to eat "filling" things (protein, etc) - I'm hoping things start to align and I feel back to normal.

 

 

squirmingitch Veteran

It will/can help if you sort of turn your meals upside down. In this, I mean, eat for breakfast something like you would eat for dinner. In the morning, eat protein & fat & plenty of it. Have fatty steak for breakfast along with fruit & whatever else. For snacks during the day, things like apple slices or bananas with peanut butter. For now, don't worry about how much you eat. Your body is trying to heal & absorb nutrients so don't hold back. Don't worry about weight or anything. EAT, just EAT. I was so bad, I would finish breakfast & I swear, within 10 minutes I was starving again. I would literally vacuum with one hand while eating an apple slathered with peanut butter with the other hand.

Whenever you eat protein make sure to have some fat with it. It will help but you still will be hungry a LOT until it finally all levels off. Nuts are a great snack, having protein & fat all in one shot. 

  • 1 month later...
hewitt Rookie

My daughter has been gluten free now for 18 months. She gets a migraine at least once a month. Her dr. gave her Imitrex however it doesnt seem to help her. Her headaches last for 4 to 5 days every time. When she visited her gastro specialist she mentioned her headaches and the specialist  said  headaches werent Celiac related. I find this hard to believe as everything Ive read says otherwise! 

kareng Grand Master
7 minutes ago, hewitt said:

My daughter has been gluten free now for 18 months. She gets a migraine at least once a month. Her dr. gave her Imitrex however it doesnt seem to help her. Her headaches last for 4 to 5 days every time. When she visited her gastro specialist she mentioned her headaches and the specialist  said  headaches werent Celiac related. I find this hard to believe as everything Ive read says otherwise! 

Some headaches are Celiac related.  But, if they are, they should go away on a gluten-free diet.  They might return if you eat gluten.

It is very possible to have migraines that have nothing to do with Celiac.  I don't know her age, but, for me, I got some that were  hormone related.  They can be related to certain foods.  You might want to read some reputable info about migraines (not people with names like "migraine Mommy" or people who call them selves doctors but are not MDs.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
2 hours ago, hewitt said:

My daughter has been gluten free now for 18 months. She gets a migraine at least once a month. Her dr. gave her Imitrex however it doesnt seem to help her. Her headaches last for 4 to 5 days every time. When she visited her gastro specialist she mentioned her headaches and the specialist  said  headaches werent Celiac related. I find this hard to believe as everything Ive read says otherwise! 

I am assuming her GI orders follow-up celiac antibodies testing since her initial diagnosis?  

tessa25 Rising Star
3 hours ago, hewitt said:

My daughter has been gluten free now for 18 months. She gets a migraine at least once a month. Her dr. gave her Imitrex however it doesnt seem to help her. Her headaches last for 4 to 5 days every time. When she visited her gastro specialist she mentioned her headaches and the specialist  said  headaches werent Celiac related. I find this hard to believe as everything Ive read says otherwise! 

Migraines can possibly be a sign of magnesium deficiency amongst other things. Once I started taking magnesium my migraines immediately stopped happening. I never got tested for it, just gave it a try. This was before celiac. Maybe her new diet has less magnesium or some other nutrient she needs.

 

  • 2 months later...
hewitt Rookie

Thanks for the advice. Yes my daughter had a follow up appointment with her gastro specialist . She goes every 6 months at first and then once a year after that. She is currently taking a magnesium suppliment so hopefully that will help with her migraines. Its definately a learning experience and a long road!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    5. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748

    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.