Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

celiac and food allergies


BlueRidgeAngie

Recommended Posts

BlueRidgeAngie Newbie

I have been diagnosed with multiple food allergies as well as celiac disease. Is there anyone else who cannot eat rice too? Just when I got the celiac diet down to a science, I now cannot eat rice, milk, eggs and 13 other foods. How  do I begin to bake vegan, gluten free and rice free ? I can't buy too many packaged gluten free products from the store because they all have rice or milk or eggs. Help! any suggestions on bread?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Google gluten free vegan recipes.  

 

I don't know what sort of diagnoses you got for " food allergies".  Most of them aren't very accurate.  You may find that once you heal the Celiac damage, you can eat some of these foods again.

BlueRidgeAngie Newbie

I had skin prick tests and reacted to 16 food items. I have an allergic reaction to eating these foods. Over the passed year and a half, I have had to do the elimination diet to see what (if any) reaction to these foods I have when eaten. I am definitely allergic to rice now. My intestines have had 12 years since the first diagnosis of celiac to heal. The food allergies are something new. When I eat rice now, I get a rash, blisters, itchy eyes and throat, difficulty breathing, and sneezing constantly.  I have these symptoms from the onset of eating rice and it continues for two or three days until it is completely out of my body. I was wondering if anyone else has multiple food allergies and how they deal with baking without rice on a gluten free diet. There are a ton of recipes on the internet of course, but you have to substitute one or more ingredients and this doesn't always work for the best.

 

GFinDC Veteran

About the only thing I bake is corn meal muffins sometimes.  I use corn meal and masa (corn) flour.  Works ok for me.  If you have a grinder you can grind your own flours from whatever you like.  They sell egg replacer in some stores.  I haven't tried it so not sure how it works.  There were some long threads on baking bread a while back.  You might find them by searching.

cyclinglady Grand Master

I am sorry that you are now dealing with all these allergies.  Have you heard about Mast Cell Activation Syndrome/Disorder?  How are you treating your allergies now?  

I have  some unresolved food intolerances, but have anaphylactic reactions to many medications and insect stings.  The severity of my reactions seem to be way worse during a glutening (lasting months)  or other illness.  Other allergies (pollen, some animals, etc.) can be managed with medication.  Can your food allergies be managed with medication or were you instructed by your doctor to avoid these foods at all costs or to avoid them for a while in hopes of your immune system calming down?  16 different foods is such a restriction!  Karen was pointing out that 50 to 60 % of skin prick testing can have false positives:

Open Original Shared Link

Consider asking your allergist for a food challenge in his/her office to confirm the skin prick results (at least for rice).   You already are on a restricted diet!  Ask too for a referral to a dietician who might be able to help.  It is a lot to take in!  

I know this sounds like a dumb question, but how are your celiac antibodies?  One of my glutenings caused daily hives, swelling and itching for months!    Have you had any repeat endoscopies to measure your progress?  I am not a doctor, but hidden gluten contamination can play havoc on our systems (e.g. Oats, eating out, etc.)

I hope this helps.  

 

kareng Grand Master

I do not like the grittiness of rice flour.  Research a bit more - there are lots of alternative flours with recipes.  I like a mix of sorghum, tapioca and arrowroot, maybe some millet.

 

add flax to help with the lack of eggs along with chia seeds or egg replacer

Ennis-TX Grand Master

I do nut flourbased breads a lot. Pretty much on a vegan, grain free diet myself. I posted a few recipes in the cooking section here. I have issues with carbs, allergic to corn and a whole list of other issues on top of celiac.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Really Newbie

Last summer an allergist tested me for foods to which I had exhibited reactions--itching, coughing, sudden congestion, post-nasal discharge, asthmatic response, rash... However, I showed no reactions to these allergens. When I asked why then was I reacting to these foods, he told me it may be histamine, that many foods contain histamine. One of those reactions is to eggs. 

For a number of years I have been using bread flour and recipes from www.BreadsFromAnna.com. Anna Sobaski has individual flour mixes, most without corn, dairy, rice, nuts, peanuts. The online recipes contain instructions about using baking powder and water as an egg substitute. I am certain you will be delighted with her products. She will return your phone call. She is located in Iowa City.

I found her product in my local grocery store in Iowa.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    5. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,190
    • Most Online (within 30 mins)
      7,748

    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.