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celiac and food allergies


BlueRidgeAngie

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BlueRidgeAngie Newbie

I have been diagnosed with multiple food allergies as well as celiac disease. Is there anyone else who cannot eat rice too? Just when I got the celiac diet down to a science, I now cannot eat rice, milk, eggs and 13 other foods. How  do I begin to bake vegan, gluten free and rice free ? I can't buy too many packaged gluten free products from the store because they all have rice or milk or eggs. Help! any suggestions on bread?


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kareng Grand Master

Google gluten free vegan recipes.  

 

I don't know what sort of diagnoses you got for " food allergies".  Most of them aren't very accurate.  You may find that once you heal the Celiac damage, you can eat some of these foods again.

BlueRidgeAngie Newbie

I had skin prick tests and reacted to 16 food items. I have an allergic reaction to eating these foods. Over the passed year and a half, I have had to do the elimination diet to see what (if any) reaction to these foods I have when eaten. I am definitely allergic to rice now. My intestines have had 12 years since the first diagnosis of celiac to heal. The food allergies are something new. When I eat rice now, I get a rash, blisters, itchy eyes and throat, difficulty breathing, and sneezing constantly.  I have these symptoms from the onset of eating rice and it continues for two or three days until it is completely out of my body. I was wondering if anyone else has multiple food allergies and how they deal with baking without rice on a gluten free diet. There are a ton of recipes on the internet of course, but you have to substitute one or more ingredients and this doesn't always work for the best.

 

GFinDC Veteran

About the only thing I bake is corn meal muffins sometimes.  I use corn meal and masa (corn) flour.  Works ok for me.  If you have a grinder you can grind your own flours from whatever you like.  They sell egg replacer in some stores.  I haven't tried it so not sure how it works.  There were some long threads on baking bread a while back.  You might find them by searching.

cyclinglady Grand Master

I am sorry that you are now dealing with all these allergies.  Have you heard about Mast Cell Activation Syndrome/Disorder?  How are you treating your allergies now?  

I have  some unresolved food intolerances, but have anaphylactic reactions to many medications and insect stings.  The severity of my reactions seem to be way worse during a glutening (lasting months)  or other illness.  Other allergies (pollen, some animals, etc.) can be managed with medication.  Can your food allergies be managed with medication or were you instructed by your doctor to avoid these foods at all costs or to avoid them for a while in hopes of your immune system calming down?  16 different foods is such a restriction!  Karen was pointing out that 50 to 60 % of skin prick testing can have false positives:

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Consider asking your allergist for a food challenge in his/her office to confirm the skin prick results (at least for rice).   You already are on a restricted diet!  Ask too for a referral to a dietician who might be able to help.  It is a lot to take in!  

I know this sounds like a dumb question, but how are your celiac antibodies?  One of my glutenings caused daily hives, swelling and itching for months!    Have you had any repeat endoscopies to measure your progress?  I am not a doctor, but hidden gluten contamination can play havoc on our systems (e.g. Oats, eating out, etc.)

I hope this helps.  

 

kareng Grand Master

I do not like the grittiness of rice flour.  Research a bit more - there are lots of alternative flours with recipes.  I like a mix of sorghum, tapioca and arrowroot, maybe some millet.

 

add flax to help with the lack of eggs along with chia seeds or egg replacer

Ennis-TX Grand Master

I do nut flourbased breads a lot. Pretty much on a vegan, grain free diet myself. I posted a few recipes in the cooking section here. I have issues with carbs, allergic to corn and a whole list of other issues on top of celiac.


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Really Newbie

Last summer an allergist tested me for foods to which I had exhibited reactions--itching, coughing, sudden congestion, post-nasal discharge, asthmatic response, rash... However, I showed no reactions to these allergens. When I asked why then was I reacting to these foods, he told me it may be histamine, that many foods contain histamine. One of those reactions is to eggs. 

For a number of years I have been using bread flour and recipes from www.BreadsFromAnna.com. Anna Sobaski has individual flour mixes, most without corn, dairy, rice, nuts, peanuts. The online recipes contain instructions about using baking powder and water as an egg substitute. I am certain you will be delighted with her products. She will return your phone call. She is located in Iowa City.

I found her product in my local grocery store in Iowa.

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    • Scott Adams
      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
    • trents
      Since you compromised the validity of the antibody testing by experimenting with gluten withdrawal ahead of the testing, you are faced with two options: 1. Reintroduce significant amounts of gluten into your diet for a period of weeks, i.e., undertake a "gluten challenge". The most recent guidelines are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat-based bread) for at least two weeks leading up to the day of testing. Note: I would certainly give it more than two weeks to be sure. 2. Be willing to live with the ambiguity of not knowing whether gluten causes you problems because you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no test for NCGS. Celiac disease must first be ruled out and we have tests for it. Celiac disease has an autoimmune base. NCGS does not. GI symptoms overlap. In the early stages of celiac disease, other body systems may not be showing stress or damage so, symptomatically, it would be difficult to distinguish between celiac disease and NCGS. Both conditions require elimination of gluten from the diet for symptom relief. Some experts feel that NCGS can be a precursor to celiac disease.
    • suek54
      Hi Kayla Huge sympathies. I was diagnosed in December, after 8 months of the most awful rash, literally top to toe. Mine is a work in progress. Im on just 50mg dapsone at the moment but probably need an increased dose to properly put the lid on it. As you have been now glutened, I wondered whether it might be worth asking for a skin biopsy to finally get a proper diagnosis? Sue  
    • MicG
      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol. 
    • trents
      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
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