Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Celiac

dalek100

Recommended Posts

cyclinglady Grand Master
cyclinglady
Posted
18 hours ago, dalek100 said:

Hi, 

Thank you to everyone for continuing to help me. I cannot thank the people on this forum enough. 

Through the post today, I received my report from my colonoscopy. It says "There was a lot of solid faeces in left colon despite taking full prep. Note elevated tTg - Celiac Disease."

I was wondering does this mean that they have diagnosed it as Celiac? Is it normal for the bowel preparation to not work as well? 

Thank you for everyone's help on this forum. 

I would take this as "celiac disease is suspected".  Yes.  Slow GI transit can be a result of celiac disease.  This happened to me too as I mentioned previously on my Sunday post (see above).  I can be possible to diagnose celiac disease from a colonoscopy if the GI was able to reach and enter the small intestine, but I do not think it is the norm.  My celiac disease was based on biopsies from the small intestine via endoscopy.  My colonoscopy biopsies just were screened for colon cancer.  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dalek100 Apprentice
dalek100
Posted
  • Author

Thank you for your help. I have had a few colonoscopy procedures done before and the bowel preparation started working near enough immediately. This time it made me feel awful and took a long time to work its way through. Can Celiac cause constipation as well as the opposite as my bowel habits have changed a lot and prior to the bowel preparation some hard stools caused bleeding. I also was wondering is it still possible for the TTG-IGA to be positive but the EMA not? My appointment to see the specialist isn't until 24th April so feel like I have such a huge wait and so worried about still being none the wiser or any chance of getting back to normality again as I am underweight as well. 

Thank you for all your help and support and do hope I am not a nuisance on here. 

dalek100 Apprentice
dalek100
Posted
  • Author

Hi again,

I was also wondering whether having the bowel preparation will have lowered the TTG level at all?

Thank you for everything.

 

cyclinglady Grand Master
cyclinglady
Posted
39 minutes ago, dalek100 said:

Hi again,

I was also wondering whether having the bowel preparation will have lowered the TTG level at all?

Thank you for everything.

 

No, the TTG antibodies are measured in the blood.  Yes, it is possible to have a negative EMA.  It is possible to be negative on ALL the celiac antibodies tests.   A celiac diagnosis can be confirmed with biopsies of the small intestine (looking for villi damage).  Constipation can be a symptom of celiac disease.  

I know it is hard to wait.  I waited for seven weeks before my endoscopy due to work constraints.  I took the time to eat all my old yummy favorite gluten-filled foods.  I knew in my heart that celiac disease was an issue for me once I got past the denial stages.  I was only anemic, but looking back, there were little signs.  Amazing how the body can adapt and continue to function.  

  • 2 months later...
Victoria1234 Experienced
Victoria1234
Posted
On 3/24/2017 at 10:21 AM, cyclinglady said:

No, the TTG antibodies are measured in the blood.  Yes, it is possible to have a negative EMA.  It is possible to be negative on ALL the celiac antibodies tests.   A celiac diagnosis can be confirmed with biopsies of the small intestine (looking for villi damage).  Constipation can be a symptom of celiac disease.  

I know it is hard to wait.  I waited for seven weeks before my endoscopy due to work constraints.  I took the time to eat all my old yummy favorite gluten-filled foods.  I knew in my heart that celiac disease was an issue for me once I got past the denial stages.  I was only anemic, but looking back, there were little signs.  Amazing how the body can adapt and continue to function.  

I've still got slow transit time, and have to work pretty hard to be regular. My last colonoscopy my doc complained about things not being very cleaned out. I had a horrible time with the prep. Thought everyone did till I spoke to my husband about his experience, and he's had a bunch of them. I have my big 50 colonoscopy coming up in December... any tips or tricks on making the prep more pleasant or work better so the doc doesn't yell at me again? (He almost stopped the procedure. I was pretty out of it but I do remember the angry tone of his voice.)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,895
    • Most Online (within 30 mins)
      7,748
    MLB1970
    Newest Member
    MLB1970
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      How Come Gluten Didnt Bother Me In Italy

      By trents · Posted

      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.