Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Celiac

dalek100

Recommended Posts

cyclinglady Grand Master
cyclinglady
Posted
18 hours ago, dalek100 said:

Hi, 

Thank you to everyone for continuing to help me. I cannot thank the people on this forum enough. 

Through the post today, I received my report from my colonoscopy. It says "There was a lot of solid faeces in left colon despite taking full prep. Note elevated tTg - Celiac Disease."

I was wondering does this mean that they have diagnosed it as Celiac? Is it normal for the bowel preparation to not work as well? 

Thank you for everyone's help on this forum. 

I would take this as "celiac disease is suspected".  Yes.  Slow GI transit can be a result of celiac disease.  This happened to me too as I mentioned previously on my Sunday post (see above).  I can be possible to diagnose celiac disease from a colonoscopy if the GI was able to reach and enter the small intestine, but I do not think it is the norm.  My celiac disease was based on biopsies from the small intestine via endoscopy.  My colonoscopy biopsies just were screened for colon cancer.  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dalek100 Apprentice
dalek100
Posted
  • Author

Thank you for your help. I have had a few colonoscopy procedures done before and the bowel preparation started working near enough immediately. This time it made me feel awful and took a long time to work its way through. Can Celiac cause constipation as well as the opposite as my bowel habits have changed a lot and prior to the bowel preparation some hard stools caused bleeding. I also was wondering is it still possible for the TTG-IGA to be positive but the EMA not? My appointment to see the specialist isn't until 24th April so feel like I have such a huge wait and so worried about still being none the wiser or any chance of getting back to normality again as I am underweight as well. 

Thank you for all your help and support and do hope I am not a nuisance on here. 

dalek100 Apprentice
dalek100
Posted
  • Author

Hi again,

I was also wondering whether having the bowel preparation will have lowered the TTG level at all?

Thank you for everything.

 

cyclinglady Grand Master
cyclinglady
Posted
39 minutes ago, dalek100 said:

Hi again,

I was also wondering whether having the bowel preparation will have lowered the TTG level at all?

Thank you for everything.

 

No, the TTG antibodies are measured in the blood.  Yes, it is possible to have a negative EMA.  It is possible to be negative on ALL the celiac antibodies tests.   A celiac diagnosis can be confirmed with biopsies of the small intestine (looking for villi damage).  Constipation can be a symptom of celiac disease.  

I know it is hard to wait.  I waited for seven weeks before my endoscopy due to work constraints.  I took the time to eat all my old yummy favorite gluten-filled foods.  I knew in my heart that celiac disease was an issue for me once I got past the denial stages.  I was only anemic, but looking back, there were little signs.  Amazing how the body can adapt and continue to function.  

  • 2 months later...
Victoria1234 Experienced
Victoria1234
Posted
On 3/24/2017 at 10:21 AM, cyclinglady said:

No, the TTG antibodies are measured in the blood.  Yes, it is possible to have a negative EMA.  It is possible to be negative on ALL the celiac antibodies tests.   A celiac diagnosis can be confirmed with biopsies of the small intestine (looking for villi damage).  Constipation can be a symptom of celiac disease.  

I know it is hard to wait.  I waited for seven weeks before my endoscopy due to work constraints.  I took the time to eat all my old yummy favorite gluten-filled foods.  I knew in my heart that celiac disease was an issue for me once I got past the denial stages.  I was only anemic, but looking back, there were little signs.  Amazing how the body can adapt and continue to function.  

I've still got slow transit time, and have to work pretty hard to be regular. My last colonoscopy my doc complained about things not being very cleaned out. I had a horrible time with the prep. Thought everyone did till I spoke to my husband about his experience, and he's had a bunch of them. I have my big 50 colonoscopy coming up in December... any tips or tricks on making the prep more pleasant or work better so the doc doesn't yell at me again? (He almost stopped the procedure. I was pretty out of it but I do remember the angry tone of his voice.)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,220
    • Most Online (within 30 mins)
      7,748
    kimchi1
    Newest Member
    kimchi1
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Watch this space!  😊
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Low iron and vitamin d

      By lizzie42 · Posted

      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.