Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

lab questions


croco

Recommended Posts

croco Newbie

I've seen two different doctors over the last 10 years who both said I have Celiac but after being gluten free for several months and taking all of their herbal pills I didn't really feel that much better.  I dug up my last results from 2015 and was curious if they look normal, abnormal, highly Celiac?  I've tried to find answers by reading articles online but can't really find what I was looking for.  Here's the relevant (I think) information:

Transglutaminase AB IGA 18.0  - doesn't provide a range, just states out of range

Transglutaminase AB IGG <.6  - doesn't provide a range, just states in range

Glucose serum 110  65-99 range

Insulin 25  0-17 range

Gliadin AB IGA 16.0  - doesn't provide a range, just states out of range

Gliadin AB IGG 74.0  - doesn't provide a range, just states out of range

If anyone has any thoughts on this it would be much appreciated, thanks!!

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tessa25 Rising Star

Test results show ranges as well. Can you post those as well? It would say  high is > 10 or whatever.

cyclinglady Grand Master

Why don't you believe two doctors telling you that you have celiac disease?  Were they actually Medical doctors?  Granted, you should have been referred to a GI for an endoscopy to obtain biopsies.  Was this ever suggested?  

Celiac disease can take months or YEARS to heal on a gluten free diet.  Seriously!  Why?  The learning curve for the gluten-free diet is very steep.  Even though the small intestine can heal fast, gluten exposures (e.g cross contamination, going out to eat) can create set-backs.  Don't forget that most celiacs have systemic damage (way beyond the gut) and things like nerve damage may be permanent or take years to heal.

Looks like you might be in your way to diabetes too.  ?

croco Newbie

Yes, he said I was pre-diabetic.  They were both MD's who transitioned to the holistic side.  I followed the first program for 6 months and the second one for 3 months.  Didn't really feel much better and spent many $1000's on supplements and appointments - none of it covered by insurance.  I've never really bought into the holistic approach so when I didn't see results I discounted their advice.  My MD said I could try the holistic approach but I would likely just end up out of pocket a lot of money without any results - which is basically what happened.  And I've never had luck on the traditional side either (which is why I pursued the holistic side).  Just very frustrated.  Been working on this for 10+ years and I'm in the same boat today as I was 10 years ago (less $7,000 and countless medical appointments).  I've read many online articles and forums but this is my first posting anywhere - guess this is my last option.

tessa25 Rising Star
3 hours ago, croco said:

Transglutaminase AB IGA 18.0  - doesn't provide a range, just states out of range

Transglutaminase AB IGG <.6  - doesn't provide a range, just states in range

Glucose serum 110  65-99 range

Insulin 25  0-17 range

Gliadin AB IGA 16.0  - doesn't provide a range, just states out of range

Gliadin AB IGG 74.0  - doesn't provide a range, just states out of range

If anyone has any thoughts on this it would be much appreciated, thanks!!

First off, I am not a doctor, just some stranger on the internet. When it says 'out of range' it means high. So your TTG IGA is high, DGP IGA is high, DGP IGG is high. I imagine the reason your doctors said you had celiac is because failing three tests means you have celiac. I don't think any other disease can cause so many fails and your DBP IGG is off by more than 5x, which is hard to be anything else. So, my uneducated opinion is that you definitely have celiac.

As to the solution to celiac. Herbs and medicines do not fix celiac. The only fix for celiac is strict adherance to the gluten free diet. No cheating whatsoever. This means you have to treat every little molecule of gluten as something to be avoided at all cost. It can take years to recover.

If you're tired of dealing with doctors and you really want proof that you have celiac, then go to walkinlab.com, sign up, and buy the "Celiac Discease Comprehensive Antibody Profile" blood test. Go to your nearest labcorp with the test requisition that you print out from the walkinlab website. Get the blood test, wait a week then print out your results from the website. You now have a baseline with ranges. Go on an extremely strict gluten free diet and keep it to simple foods like homemade stews and well cooked veggies. After two months, get the blood test done again. If your numbers have started to go down you have your proof. You will also have a way to monitor your success at the gluten free diet by getting your own blood tests done. The only reason I'm suggesting this is because you seem to need the proof. I get my blood tested every month because going gluten free was not enough to get my numbers down. I am on a very strict and unhealthy liquid diet until I get my numbers to reach normal (6 more weeks at this rate).

Anyway, it can take years for your symptoms to go away so no positive reaction to the gluten free diet can mean one of three things:

1.  Your getting glutened

2.  The food your eating is too irritating to your insides

3.  Refractory celiac. I doubt you have this one as you only went gluten free for several months.

 

Good luck. And remember, I'm not qualified for medical advice.

cyclinglady Grand Master

We are glad you found us Croco!  Tessa has given you some good advice too.  Changing your diet is hard, but not bad once it becomes a habit.  The benefit is feeling so much better!  Just simple Whole Foods (veggies, fruit, eggs, meat, fish, dairy, nuts, etc.) can improve your health.   Read our Newbie 101 thread.  It has lots of valuable tips.  

I also encourage you to read this site Blood Sugar 101 which is well-written and free!  You can buy the same information in a book form.  Learn how to control your blood sugar by reducing your carbs, based on eating to your meter.   I have both diabetes type 2 and celiac disease!  

Open Original Shared Link

You will get better!  

 

 

croco Newbie

Thanks for the feedback.  I like the idea of the monthly blood work.  I've never had an endoscopy.  I'm wondering if that's something I should do.  If so, should I keep eating gluten until I get those results.  Or should I just skip that procedure and go gluten-free immediately and start doing my own blood work every month starting tomorrow?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tessa25 Rising Star
1 hour ago, croco said:

Thanks for the feedback.  I like the idea of the monthly blood work.  I've never had an endoscopy.  I'm wondering if that's something I should do.  If so, should I keep eating gluten until I get those results.  Or should I just skip that procedure and go gluten-free immediately and start doing my own blood work every month starting tomorrow?

If you decide to get an endoscopy from a gastroenterologist you have to be eating gluten every day for a few weeks. It's up to you whether or not to get it.  Officially a high on any one celiac blood test should result in a gastro doing an endoscopy to make an official diagnosis. I don't know how much of that is to rule out cancer if at all. With your numbers even a clear endoscopy would probably lead to them saying to go gluten free since you have high numbers and symptoms.

I got the endoscopy, but I wasn't waiting for a while. Doc said go to a gastro, gastro tested for many things, celiac was found, endoscopy was done and I went gluten free. The process was very straightforward in my case. That's not the case for many other people.

And I still visit my gastro once a year. And I give her all of my blood tests for her records.

 

Almost forgot: insurance does not pay for blood test you order via a website.

Victoria5289 Apprentice
23 hours ago, tessa25 said:

Test results show ranges as well. Can you post those as well? It would say  high is > 10 or whatever.

 

19 hours ago, tessa25 said:

If you decide to get an endoscopy from a gastroenterologist you have to be eating gluten every day for a few weeks. It's up to you whether or not to get it.  Officially a high on any one celiac blood test should result in a gastro doing an endoscopy to make an official diagnosis. I don't know how much of that is to rule out cancer if at all. With your numbers even a clear endoscopy would probably lead to them saying to go gluten free since you have high numbers and symptoms.

I got the endoscopy, but I wasn't waiting for a while. Doc said go to a gastro, gastro tested for many things, celiac was found, endoscopy was done and I went gluten free. The process was very straightforward in my case. That's not the case for many other people.

And I still visit my gastro once a year. And I give her all of my blood tests for her records.

 

Almost forgot: insurance does not pay for blood test you order via a website.

I'm no specialist but I do know that an encospy doesn't tell you if your just allergic to something the herbal medicine will work if you have thin egg with it that helped me.

croco Newbie

These are the results from walkinlab:

 Deamidated Gliadin Abs, IgA           21  HIGH (20-30 weak positive)

Deamidated Gliadin Abs, IgG           38  HIGH (>30 moderate to strong positive)

t-Transglutaminase (tTG) IgA          13  HIGH (>10 positive)

t-Transglutaminase (tTG) IgG           2  NEGATIVE

Immunoglobulin A, Qn, Serum          271  POSITIVE ABNORMAL

Wish I knew if these were a "little" bad or "a lot" bad.

tessa25 Rising Star

Are you sure TTG IGA was 1?

Anyway, a high on any one test should lead to a gastroenterologist doing an endoscopy to confirm celiac. Your not supposed to go gluten free until after all testing is done.

Your results show high for dgp iga and dgp igg.

Not a doc, my opinion only.

croco Newbie

I changed from 1 to 13.

Decided to forgo the endoscopy.  Figured all the high scores were enough to warrant going gluten free.

tessa25 Rising Star

If you need any suggestions for gluten free equivalents just ask. Lots of different opinions on foods here.

ironictruth Proficient
On 5/22/2017 at 9:14 AM, croco said:

These are the results from walkinlab:

 Deamidated Gliadin Abs, IgA           21  HIGH (20-30 weak positive)

Deamidated Gliadin Abs, IgG           38  HIGH (>30 moderate to strong positive)

t-Transglutaminase (tTG) IgA          13  HIGH (>10 positive)

t-Transglutaminase (tTG) IgG           2  NEGATIVE

Immunoglobulin A, Qn, Serum          271  POSITIVE ABNORMAL

Wish I knew if these were a "little" bad or "a lot" bad.

These results, assuming you have been on a gluten free diet since the original tests in 2015, likely mean you are still being exposed to gluten which is why you still feel s$#&ty. 

Go see a GI or go on a non processed gluten free no going out to eat strict diet for 3 months and see how you feel. 

Ennis-TX Grand Master

My question was were you 100% gluten free, as in tossed out your contaminated cook ware, cutting boards, and used clean non contaminated cook ware, utensils etc. Did you get rid of all contaminated spices, condiment, jars with crumbs, clean out the house check your lotions, shampoo, etc. Stop eating out, changed to a whole foods diet. and supplemented for the common nutrients that cause issues for celiacs? Did you get tested for nutrient levels? Did you try removing dairy, and oats? On another note many of us develop food intolerance and random issues with other foods that normally has to be identified by keeping a food jounel and going through a elimination diet seeing how you feel eating different foods and eliminating the ones that cause you to feel bad.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    5. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748

    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.