Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test your children?


Deades

Recommended Posts

Deades Contributor

I was recently and surprisingly diagnosed June 1.  I am in my late 50s and have two children ages 21 and 19.  I understand Celiac is heredity.  I have no physical symptoms which is why I was surprised at the diagnosis.  My kids don't exhibit symptoms either.  I have always been anemic and my kids hemoglobin always was within range.  Do I have my kids get a blood test or not?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

All first degree relatives should be tested every 2 years in the absence of symptoms or immediately if symptoms present. It is hereditary and can present at any age. Make sure they are eating gluten daily for at least 3 months before testing if they have been gluten free. 

 

Welcome to the club you never wanted to be a part of. Check out our Newbie 101 pinned to the top of the Coping section.

cyclinglady Grand Master

Better to catch a celiac disease diagnosis early.  Experts do recommend the testing of all first-degree relatives even if asymptomatic and while on a full gluten-containing diet.   I had my kid screened and requested a full panel since I test oddly.  She was also screened for anemia.  That was about three years ago.  We are considering running the panel again, but Not until she is back at school and on a daily diet of gluten (our home is gluten free and she is gluten light in the summer).  

Celiac disease can cause long term issues.  You have osteoporosis besides anemia, right?  I bet you might have some other issues that can resolve on a gluten free diet that you just chocked up to getting old.  Wouldn't be nice to prevent such damage in your kids?  Wish I had known about celiac disease a long time ago!  

Fbmb Rising Star
On 6/24/2017 at 5:44 PM, Deades said:

I was recently and surprisingly diagnosed June 1.  I am in my late 50s and have two children ages 21 and 19.  I understand Celiac is heredity.  I have no physical symptoms which is why I was surprised at the diagnosis.  My kids don't exhibit symptoms either.  I have always been anemic and my kids hemoglobin always was within range.  Do I have my kids get a blood test or not?

I tested positive in November and immediately had my toddler tested, though he didn't have symptoms (aside from being really little). He has it.

Pegleg84 Collaborator

Yes, definitely! The sooner they find out if they have it, the sooner they can heal up and, as cyclinglady said, avoid a lot of potential long term health issues. Also be aware that, with bloodtests, false negatives are more common than false positives. I'd recommend they get a full bloodwork panel done to check for vitamin deficiencies, which could in itself be a sign of malabsorption problems. I had iron anemia as a teenager, which looking back was probably my first Celiac symptom. My mom and my sister both have Celiac as well.

You could also suggest that your parents or any siblings get tested as well.

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,025
    • Most Online (within 30 mins)
      7,748

    Amari Love
    Newest Member
    Amari Love
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.