Ororal lichen planus due to auto immune issues like celiac

[Ann Lewis]

Someone wrote about canker sores.  I've had celiac for 25 years, and as I got older I get oral lichen planus when I am under stress or haven't been resting enough.  I try natural remedies but when it's bad (sores inside cheeks) I need to use Dermovate Cream, which isn't for oral use, but Mouth specialist told me it's the only thing that makes it go away.  I would love to know a natural remedy to help.

[cyclinglady]

7 hours ago, Ann Lewis said:

Someone wrote about canker sores.  I've had celiac for 25 years, and as I got older I get oral lichen planus when I am under stress or haven't been resting enough.  I try natural remedies but when it's bad (sores inside cheeks) I need to use Dermovate Cream, which isn't for oral use, but Mouth specialist told me it's the only thing that makes it go away.  I would love to know a natural remedy to help.

Welcome to the forum.  

When were the last time your celiac antibodies were tested?  It might help to rule out active celiac disease as the culprit for your lichen Planus.  It can help determine if you are being exposed to hidden sources of gluten.  

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Sorry, I do not have a solution to your Lichen Planus, but maybe another member will!  

[cristiana]

I'm not sure if this will help but I've had quite a few issues with my mouth over the years with a sore areas and canker sores, burning and tingling.  The specialist that saw me about one particular lump this year told me I was vulnerable because my iron was low, and wrote in a follow-up letter to my gastroenterologist that I should aim to have ferritin levels at 40 (mine was nine at the time) and then things should improve.

I have had a bad year with my mouth and have just discovered that my celiac antibodies are way up.  So a combination of low iron and raised celiac antibodies may have been to blame.  Great tip from Cyclinglady about being tested.  My tip is get your iron tested, too.

[Feeneyja]

I get horrible sores in my mouth when I get glutened. It’s usually a day or two post glutening (after the nausea has past).  On the roof of my mouth, my tongue, my gums. During my gluten challenge they got so bad that my teeth started to get loose. I have no clue what kind of sores they are. But gluten is definitely the trigger. 

I have met folks with oral lichen planus that found relief on the Autoimmune Protocol diet (AIP).  It is restrictive, but it helps you identify food intolerances/triggers to help with healing.  Something to think about. 

[Posterboy]

On 12/19/2017 at 1:58 AM, Ann Lewis said:

Someone wrote about canker sores.  I've had celiac for 25 years, and as I got older I get oral lichen planus when I am under stress or haven't been resting enough.  I try natural remedies but when it's bad (sores inside cheeks) I need to use Dermovate Cream, which isn't for oral use, but Mouth specialist told me it's the only thing that makes it go away.  I would love to know a natural remedy to help.

Ann Lewis,

I don't know if you would call it a natural remedy or not but swilling with "salt water" can help your sores heal quicker.

I sware by the Amino Acid Lysine.  It usually got rid of my mouth sores in a two or three days. .   up to a week if needed.

1000mg Lsyine with each meal for two or three days can help get rid of them.

It can be taken at 500mg maintenance as well to keep them at bay.

Iron Deficiency Anemia does seem to be linked to mouth sores to follow up on others observation.

Here is a livestrong article about the connection between IDA and mouth sores.

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I would also recommend this thread to study more about IDA.

you may want to have your doctor perform a gastric acid function test to check your stomach acid levels.

when your stomach acid gets extremely low you can struggle with IDA.  You would remember if you had this test.  It would of involved swallowing a Pill with a string on it for easy retrieval.

here is research on the role stomach acid plays in Iron absorption.

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Here is my blog post that talks about my experience with low stomach acid.

we often don't test these things .  . . we just assume we have high stomach acid.

we can't know for sure unless the doctor test's us. . .

but i found timeline helped me to understand treating my low stomach acid with powdered stomach acid by taking betaineHCL helped me.

quoting from the above post to explain what I mean about timeline.

"How can we know if it truly high or low? You’ve heard the phrase timing is everything well it is here too!

Timeline is important in any diagnosis.

IF your stomach acid was HIGH as you often hear (everywhere) you hear take a Proton Pump Inhibitor aka acid reducer’s for heartburn/GERD

(medical name for heartburn) then eating food (carbs, greasy things) wouldn’t bother you.

The acid would cut it up but if it is already low/weak then even a little acid can burn your esophagus which is not coated like the stomach to protect you from high acid.

BUT if it is low to start with then food will WEAKEN our/your acid so that you lose the food fight your in and things (carbs/fats) become to ferment, rancidify and cause heart burn."

And what/how I think explains how low stomach acid leads to low iron levels.

most PPI's on the labels box warning explain that Magnesium levels become low when taking PPI"s more than 6 months.

It would seem this might be true too for Iron since it too is difficult to digest/absorb without strong stomach acid.

but to answer you immediate question for summary salt water and Lysine always helped me.

but I wanted to figure out in the first place why I was low in Magnesium in my case or why Lysine helped me.

It turns out my stomach acid was too low to absorb Lysine.

see this summary from dr. myatt. where she quotes dr. wright in her online article about this topic.

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quoting

Jonathan Wright, M.D., well-known and respected holistic physician, states that:

"Although research in this area is entirely inadequate, its been my clinical observation that calcium, magnesium, iron, zinc, copper, chromium, selenium, manganese, vanadium, molybdenum, cobalt, and many other micro-trace elements are not nearly as well-absorbed in those with poor stomach acid as they are in those whose acid levels are normal. When we test plasma amino acid levels for those with poor stomach function, we frequently find lower than usual levels of one or more of the eight essential amino acids: isoleucine, leucine, lysine, methionine, phenylalanine, threonine, tryptophan, and valine. Often there are functional insufficiencies of folic acid and/or vitamin B12."

Remember, these are essential nutrients. Deficiencies of any single one of them can cause serious health problems over time. Weak bones, diminish immune function, failing memory, loss of eyesight and many other "diseases of aging" are often the result of decreased stomach function.

Ulcers can even be caused by too little acid. Surprised? We know today that most ulcers are caused by a bacterium called h. pylori. This little beastie is killed by strong stomach acid. But when stomach acid is weak, watch out! Weak stomach acid is how h. pylori gets a foot-hold. (People with active ulcers should not supplement hydrochloric acid until the ulcer has healed)"

NOTE: if you have an ulcer don't take betaineHCL until it  has healed.

*****this is not medical advice but it has been my experience that treating my low stomach acid being misdiagnosed helped with relief of many of my nutrient deficiencies depending on strong stomach acid for absorption and why taking Lysine helped me.

because my body became low in my essential amino acids and Magnesium in my case.

I hope this is helpful and good luck with trying the Lysine.

2 Timothy 2:7 Consider what I say; and the Lord give thee understanding in all things.

posterboy by the grace of God,