Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I am lost what should i do


odai

Recommended Posts

odai Newbie

Hello all At first I apologized for my bad English My story is long since more than two years At first I dealt with high levels of stress I was very nervous and I knew that something bad would happen After two months after a period of immortality to sleep I woke up to feel the desire to itche in the abdomen to find a pumb think  or allergies tried to know the cause without finding any contrary to the sensitivity or tablet of the pill continued pill more than 3 days to go and left a slightly darker effect of the skin But a few days later the same pumbs appeared in different areas but were few One  under the right armpit and another on the left armpit the pumb is in the left elbow and the other on the right pumb was on the right and left foot too I cried out, and  asked my self, What is this thing? My parents told me he was probably hives I went all the pills after almost 6 days and after a long period of more than 6 months when I wash my hands after a short period began to notice very small heights on the finger was not burned at all, unlike the first appeared I thought maybe the hand lotion was the reason, and a week later I went and was no longer there A month ago I noticed a red area I knew every time something strange happened I could not imagine the stuff there was anything The red area was on the finger and remained red for a week and left a slightly darker area A month later I noticed on the back of the pumb on hand that I thought the hair was the reason, but it lasted a week to go too I do not know very much how I can be sure this may be dh or maybe something else Three months went by without any skin or even intestinal problems I live in Syria almost impossible to get a blood test or even a biopsy of the skin Even if there was a ability to get a biopsy I did not get the rash again It looks like a dh I can say with confidence that the pills at first differ greatly from the last time


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
1 hour ago, odai said:

Hello all At first I apologized for my bad English My story is long since more than two years At first I dealt with high levels of stress I was very nervous and I knew that something bad would happen After two months after a period of immortality to sleep I woke up to feel the desire to itche in the abdomen to find a pumb think  or allergies tried to know the cause without finding any contrary to the sensitivity or tablet of the pill continued pill more than 3 days to go and left a slightly darker effect of the skin But a few days later the same pumbs appeared in different areas but were few One  under the right armpit and another on the left armpit the pumb is in the left elbow and the other on the right pumb was on the right and left foot too I cried out, and  asked my self, What is this thing? My parents told me he was probably hives I went all the pills after almost 6 days and after a long period of more than 6 months when I wash my hands after a short period began to notice very small heights on the finger was not burned at all, unlike the first appeared I thought maybe the hand lotion was the reason, and a week later I went and was no longer there A month ago I noticed a red area I knew every time something strange happened I could not imagine the stuff there was anything The red area was on the finger and remained red for a week and left a slightly darker area A month later I noticed on the back of the pumb on hand that I thought the hair was the reason, but it lasted a week to go too I do not know very much how I can be sure this may be dh or maybe something else Three months went by without any skin or even intestinal problems I live in Syria almost impossible to get a blood test or even a biopsy of the skin Even if there was a ability to get a biopsy I did not get the rash again It looks like a dh I can say with confidence that the pills at first differ greatly from the last time

I am sorry you are not well.  If you do not have access to medical testing and suspect DH or celiac disease, you can try the gluten free diet which is the only known cure.  

 

odai Newbie

Thnx you for re

I was free of any digestive or skin problems and even my skin problems were intermittent over a long period of time Food here is about 90 percent wheat is almost impossible to persuade my family to give up wheat Maybe I have to wait to see what can happen I'm confused, I do not know what I should do

Jmg Mentor
12 hours ago, odai said:

Maybe I have to wait to see what can happen I'm confused, I do not know what I should do

Welcome Odai :)

You do not need to apologise for your English, it's much better than our Arabic!

It's difficult to advise you given your situation. You may be describing celiac/gluten related illness but it may be something else. Obviously we are not doctors and we are not there so it would be wrong of us to say either way.

One thing you can do is gather evidence. Keep a diary of when and what you eat, and when you notice new skin or other issues. Take photos also. A doctor may be able to use this. 

If I think of anything else I will reply here. In the meantime I send you my best wishes.

Matt

odai Newbie
21 minutes ago, Jmg said:

Welcome Odai :)

You do not need to apologise for your English, it's much better than our Arabic!

It's difficult to advise you given your situation. You may be describing celiac/gluten related illness but it may be something else. Obviously we are not doctors and we are not there so it would be wrong of us to say either way.

One thing you can do is gather evidence. Keep a diary of when and what you eat, and when you notice new skin or other issues. Take photos also. A doctor may be able to use this. 

If I think of anything else I will reply here. In the meantime I send you my best wishes.

Matt

thank you very much

I eat wheat every day

And i hope that not dh or celiac until no think 

I will updata any chang ???

Jmg Mentor
3 hours ago, odai said:

thank you very much

I eat wheat every day

And i hope that not dh or celiac until no think 

I will updata any chang ???

Ok that sounds like a plan :)

Start to keep a food diary - this site will tell you how:

Open Original Shared Link

Finally a couple of suggestions, I apologise if they're not suitable. 

I looked and Open Original Shared Link is at similar levels to us here in the West.

"Middle Eastern countries, including Iran, Turkey, Israel and Syria, seem to have similar frequency rates of celiac disease to those of Western countries.[36"

So it maybe that there are others in your community or country who may be able to help with advice, support or information about doctors/foods etc.? Maybe a web search of Syrian Arabic websites will reveal a local group? Make sure if you are young that you take care about revealing personal information and do not contact people without your parents knowing, be safe!

I understand your diet is mostly wheat and that won't change for now, and don't expect or ask your parents to change their diet as it would probably be very difficult for them, but start to note what things you could possibly eat if you absolutely needed to. Maybe fruit, vegetables, rice or corn (if available). Are vitamin tablets available?

I always wanted to visit your country and have been very upset to see what's happened there. I wish you all the good luck there is from here in the UK. :)

Matt

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,477
    • Most Online (within 30 mins)
      7,748

    Kaleyah Celiac
    Newest Member
    Kaleyah Celiac
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Thiamine interacts with all the other B vitamins.  Thiamine and B 6 make a very important enzyme together. With more thiamine and other vitamins available from the supplements your body is absorbing the ones you need more of.  The body can control which vitamins to absorb or not.  You're absorbing more and it's being transported through the blood.   It's common to have both a Thiamine and a Pyridoxine deficiency.  Keep taking the B Complex. This is why it's best to stop taking supplements for six to eight weeks before testing vitamin levels.  
    • badastronaut
      Yes I took a supplement that had B6 in it, low dosage though. I've stopped taking that. B1 doesn't affect other B vitamin levels? 
    • knitty kitty
      Have you tried lip balm made from tallow?  It's been used for thousands of years and works better than those with waxes. I prefer Vintage Traditions brand tallow balm products.  
    • knitty kitty
      Are you taking a B 6 supplement or a supplement containing B 6 like a B Complex?  Do you have pins and needles in your toes?   Don't worry about the thiamine being high.  The blood is a transport system that carries thiamine to the cells so they can store it.  It's fine.  
    • badastronaut
      Quick question, had some blood tests done again and once again my zinc was too low but now ofcourse my B1 was too high and so was my B6. The doc said to  immediately  stop all supplements that contain B6. Can using thiamine raise the levels of B6 too?
×
×
  • Create New...