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Recent Diagnosis

Kristy Lee Coeliac Newbie

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Kristy Lee Coeliac Newbie Newbie
Kristy Lee Coeliac Newbie
Posted

Hi guys,  feeling a bit lost. I've recently been told by GP that I've 99% coeliac. I was screened after ongoing anaemia and failure to get ferritin stores up despite months of supplementation and dietary changes. 

My bloods were at follows:

Deaminated gliadin igg 330cu
Tissue transglutamise iga 72cu 

The diagnosis has caught me off guard as I've never had any GI issues and don't tend to eat a high gluten diet. 

To complicate things further, I'm 7 months pregnant.

My questions are: how abnormal are my bloods and are they very suggestive of coeliac as I read biopsy is only way to truly diagnose.... 

Is it unrealistic to think I can cut out gluten and get my iron stores up within the month, otherwise I'm looking at a transfusion. 

And if I cut out gluten would you recommend going back on gluten to get 100% diagnoses once I've had my baby? Or if I'm feeling better and iron comes up just continue as is.... 

 

Thanks ?

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cyclinglady Grand Master
cyclinglady
Posted
2 hours ago, Kristy Lee Coeliac Newbie said:

Hi guys,  feeling a bit lost. I've recently been told by GP that I've 99% coeliac. I was screened after ongoing anaemia and failure to get ferritin stores up despite months of supplementation and dietary changes. 

My bloods were at follows:

Deaminated gliadin igg 330cu
Tissue transglutamise iga 72cu 

The diagnosis has caught me off guard as I've never had any GI issues and don't tend to eat a high gluten diet. 

To complicate things further, I'm 7 months pregnant.

My questions are: how abnormal are my bloods and are they very suggestive of coeliac as I read biopsy is only way to truly diagnose.... 

Is it unrealistic to think I can cut out gluten and get my iron stores up within the month, otherwise I'm looking at a transfusion. 

And if I cut out gluten would you recommend going back on gluten to get 100% diagnoses once I've had my baby? Or if I'm feeling better and iron comes up just continue as is.... 

 

Thanks ?

Congratulations on your pregnancy!  

Hard to say how high your results are, but they seem high if you were basing it on my lab’s ranges and the fact your doctor said he was 99% sure you had celiac disease.   Do you have the lab ranges?  

I agree, I would not want to do the biopsy while pregnant.  I would not want to even do a gluten challenge or a biopsy until my kid was up and walking!  You need all of your energy.  Did your doctor advise you to go gluten free?  If so, do it immediately.  It took me a few months (I refused transfusions, but your case could be different)  until I felt well after taking iron supplements.  I had both iron-deficiency and Thalassemia (genetic anemia).  Like you, no GI Symptoms.

If your anemia resolves on a gluten free diet, chances  are you have celiac disease.  Worry about a formal diagnosis later when you are strong and can afford to be sick.  The good news is baby usually takes everything from Mom, so baby should be okay.  Eat nutritionally dense foods as every bite counts.  Enjoy that baby!  

Have your doctor run a nutrition (vitamins/minerals) on you and consider a celiac-savvy dietician.  

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