Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

HELP.... Can't stop binging gluten

Farrah3

By Farrah3
in Coping with Celiac Disease

Recommended Posts

Farrah3 Newbie
Farrah3
Posted

Hi, I am 16 years old and have been gluten free for about 4 months now however I was just officially diagnosed with celiac a month ago. I was completely gluten free for the first week however now I cannot seem to cope with the idea of not eating gluten. And yes I know how damaging it is to my body and it makes me so sick for so long however, I can't seem to stop eating it. I keep putting on a ton of weight and my stomach is so bloated it looks as if Im pregnant (which let me make very clear, I am not). I just don't know what to do. I have suffered from an eating disorder before my diagnosis and am worried that I am going to develop it again. My gluten eating binges usually end with me so sick I can't move or focus and me crying in a bathroom. My entire house is gluten free because my parents are so so supportive of me. I just really need help because as I am typing this I just ate a panini and a croissant. I really need help I can't keep living like this and I thought that someone on here would be able to offer me some much needed advice. Please Please Please help me. 
 

ps... I should also mention that I suffer from many other food sensitivities, mainly dairy, soy and coconut.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Farrah3 Newbie
Farrah3
Posted
  • Author

I honestly can't stop crying and eating gluten and I have no idea to adjust to this lifestyle. 

cyclinglady Grand Master
cyclinglady
Posted
34 minutes ago, Farrah3 said:

Hi, I am 16 years old and have been gluten free for about 4 months now however I was just officially diagnosed with celiac a month ago. I was completely gluten free for the first week however now I cannot seem to cope with the idea of not eating gluten. And yes I know how damaging it is to my body and it makes me so sick for so long however, I can't seem to stop eating it. I keep putting on a ton of weight and my stomach is so bloated it looks as if Im pregnant (which let me make very clear, I am not). I just don't know what to do. I have suffered from an eating disorder before my diagnosis and am worried that I am going to develop it again. My gluten eating binges usually end with me so sick I can't move or focus and me crying in a bathroom. My entire house is gluten free because my parents are so so supportive of me. I just really need help because as I am typing this I just ate a panini and a croissant. I really need help I can't keep living like this and I thought that someone on here would be able to offer me some much needed advice. Please Please Please help me. 
 

ps... I should also mention that I suffer from many other food sensitivities, mainly dairy, soy and coconut.

Hi!  

Did your doctor refer you to a dietitian who is celiac savvy?  A local celiac support group?  Is he/she aware of your past eating disorder?  Are you getting current help for that?  

It is hard to get a celiac disease diagnosis.  You will go through a grieving process just as if you would if a family member or friend died.  It is okay to have the feelings you are experiencing.  Do your parents know how unhappy you are and that you are eating gluten?  

My daughter who is 17 has one of her friends who was just diagnosed with celiac disease in December.   We baked holiday cookies together and oddly enough, she will text me with questions.  She is the only celiac in her family.  When I bake, I pack extra gluten-free goodies in my daughter’s lunch so that she can share with her friend or I drop it off at her home.  

Consider getting into a group.  You will be surprised how many people actually have celiac disease.  You are NOT alone!  Heck, there are even a gluten-free camps for celiac kids!  I wanna go!  

Please try to talk to your supportive parents.  They love you and can help you!  You found us.  We are here to support you too!  

 

Ennis-TX Grand Master
Ennis-TX
Posted

There is gluten free everything now days no reason to poison yourself, while a whole food diet is normally suggested you can look to this list for treats when you get these urges. https://www.celiac.com/forums/topic/120402-gluten-free-food-alternative-list-2018-q1/

Oh and those food issues, they get worse and evolve the longer you eat gluten....Hey look at me I got a allergy to corn, intolerant to soy, peanuts, dairy....I had some others but they went away on the gluten free diet after a few years. My pancreas does not produce enzymes like it should, so I can not eat red meats, and poultry and fish, crab require to take porcine pancreas enzymes to digest them. OH and I developed other auto immune diseases....Ulcerative Colitis...one that flares up if I eat sugars or CARBS no flour, bread, potatoes, starches, grain, rice etc. Or I distend and start shitting blood.  I also ended up with gluten ataxia....now this is evil..imagine if you eat gluten and you immune system starts to attack your brain and neverous system...and you lose the ablity to do things you take for granted...I lost feelings in my hands and feet..so video games and hobbies that require intricate work I had to give up...and I lost the ability to do certain things...like math, computer coding, other languages I knew, sometimes I even have trouble reading.....

Wish I had known earlier before these all set in...but at least I got under control. I have read worse things like lymphoma, cancers, and intestinal ruptures....

Get it under control now or it gets worse....your very blessed to have a supporting family...mine was not so much and I had to move out....but I did start my own bakery and I now make and sell grain free baked goods, nut butters, etc. and do chef work. I loved food and now I work to make it WHERE I can eat it without getting sick recreating all kinds of other foods. >.> Mine are mostly nut and coconut base.

 

 

pschwab Enthusiast
pschwab
Posted

I’m a high school teacher, someone who had an eating disorder as a teenager and a mom to a celiac superstar (he’s 4). I do and will continue to do everything I can for my son; I’m already trying to plan ahead to make college a seemless transition for him. ? Please, please, please talk to your parents! They are obviously supportive because they made your home gluten free. It might help to talk with a psychiatrist. With your prior eating disorder you know food is an issue for you, so discussing why you are feeling the need to binge gluten might help. You seem like a smart, responsible kid based on the fact that you know you shouldn’t be binging gluten and you reached out for help. It sucks to be a teenager and have something that makes you different, but a gluten free diet isn’t so bad these days. Our family went gluten free when my son was diagnosed and we’ve been able to replace all our favorites with gluten free alternatives. I can’t emphasize enough how important it is to talk to your parents. I wish you the best of luck!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Flash1970
      - Flash1970 commented on Scott Adams's article in Additional Concerns
      1

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

      He should have gotten millions. How much is your life worth?
    2. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

      @cristiana, I react the same way. Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies. This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies. We have opioid receptors throughout our...
    3. knitty kitty
      0

      About Celiac Remission

    4. TheDHhurts
      - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing...
    5. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated. So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly. I came off dairy completely next and it worked like a charm...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,107
    • Most Online (within 30 mins)
      7,748
    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      need help understanding testing result for Naked Nutrition Creatine please

      By TheDHhurts · Posted

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      Insomnia help

      By cristiana · Posted

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      nothing has changed

      By wellthatsfun · Posted

      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.