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Just diagnosed with Celiac Disease in 2017

JessicaG

By JessicaG
in Coping with Celiac Disease

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JessicaG Newbie
JessicaG
Posted

Hey everyone, 

  I was recently diagnosed with Celiac Disease in October of 2017. Since then I have been extremely careful with what I eat and always ask the servers at restaurants if something has gluten in it. This weekend, I went out to eat and the waiter gave me a sauce with gluten in it, and he remembered after I ingested almost all of it, that it had flour in it. The next 24 hours were the most painful and excruciating hours of my life, and I would say almost as bad as my contractions when I had my daughter. I went to the ER due to intestinal/stomach cramping so bad that I was screaming in pain and couldn't move. They did all sorts of tests and ultrasounds, xrays, etc.... Because the doctor said that a gluten allergic reaction would not cause this much pain. And again just like my visits before, tests came back negative. Well it's been 4 days since then and the pain is slowly going away. I've read that people have these pains for days on end, just like me.. But has anyone found a solution? If you have, I would love to know what you've found.. Or even if you've experienced this and found something to calm the cramping, bloating, gas pains, and vommiting. I've tried gas-x, hot tea, hot baths, intestinal massages to relieve gas, peptobismal, dyciclomine, heating pad, zofran, and lots of water. Thank you in advance! And I wish you all good health!

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Ennis-TX Grand Master
Ennis-TX
Posted

They make a enzyme that can break down some of the gluten and lessen reactions, GlidenX is the one I tried this last exposure, I still had symptoms but nothing horrific and painful. Star Anise I used to use for gas, other wise it is laying down and massaging my gut hoping for a quick pass. You mentioned all the others....seems like you tried about it all....I will admit I have been tempted in the past to just down a whole bottle of laxatives and flush my guts....but I do not think that would help once the antibody wild cat reaction in your system starts.

We always say eating out is like playing russian roulette. I have stopped eating out, only a few places I would consider that are 100% dedicated now days to gluten free. Since your new have you seen the newbie 101 thread? I also have been working on and about 2-4 times a year post a updated gluten free alternative list of products.

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