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Want to get diagnosed, but unable to eat gluten without becoming violently ill for days

seebeeeeeeeeee

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seebeeeeeeeeee Newbie
seebeeeeeeeeee
Posted

Hello all,
So, long story short, in 2011 I started getting really really sick, with no discernible cause.  Violent vomiting daily, rapid weight gain (40 pounds in one month) unbelievable exhaustion, depression, social anxiety to the point of not being able to leave the house, hives, acne, rashes, brain fog, and my LEAST favorite, the all-over bruised body feeling you get when you have the flu (that horrible bone deep aching that makes it uncomfortable to move at all, and any clothing touching you hurts.)  Oh, and monstrous swelling of my face and stomach.
I wound up figuring out through elimination of certain things in my diet that what was doing it was gluten and dairy.  So, over the years I've cut them out (at first, after I cut them out, I was still getting horrendously sick, just less often and it took me too long to realize CROSS CONTAMINATION WAS A THING)
So fast forward to now, I'm able to function like a human again by being INCREDIBLY strict with my diet and making almost all of my food myself and NEVER taking any chances with anything that was "processed in the same facility with..." etc etc
I've also recently started going back to school, which means I have to be EXTRA careful, or I won't be able to attend classes or study because my brain, and my body just don't function when I've been exposed.
However, I've always been a do it yourself girl, so after having endoscopies and colonoscopies years ago, and having a doctor tell me I had "acid reflux" (way to diagnose the symptom, not the cause, ya jerk) and having no doctors know why I was getting so sick, and eventually figuring it out myself, I never was tested for Celiac's Disease.
So obviously, I'm scarred for life, and terrified to death of gluten and I was wondering; does anyone know of some way that I could be tested for it WITHOUT exposing myself to it?
Thank you so much in advance

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RMJ Mentor
RMJ
Posted

Researchers are working on some future tests for those not eating gluten, but right now you have to eat gluten to get accurate test results.

cyclinglady Grand Master
cyclinglady
Posted

While I was diagnosed five years ago with celiac disease, my hubby went gluten free 17 years ago per the poor advice from 2 medical doctors (poor meaning not getting tested).  The diet worked.  He refuses to do a challenge.  Why do you want to get tested now when it is obvious that gluten is making you sick?  

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    • trents
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