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Jenm072289
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Jenm072289 Rookie
Jenm072289
Posted

I was recently referred to a rheumatologist because of some joint pain I had been having. He was unable to determine the source of the pain so I was tested for many different things. I was vitamin D deficient and started on supplements to bring my levels back to normal. Today I went back to the rheumatologist for a follow up appointment. He had ordered a Celiac Disease Panel and told me the results came back with a gluten intolerance and I should begin a gluten free diet. Can a celiac panel show a gluten intolerance? What is the difference between that and Celiac Disease? Should I have been referred for a scope to make sure I don't in fact have Celiac? I also developed a rash recently on both of my elbows that is very itchy. I am concerned it might be DM which would point to celiac as well. Just feeling a bit confused and not really sure if I should just start the diet or if I need follow up and make sure I have and intolerance and not celiac. Thank you for your advice and help.

 

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RMJ Mentor
RMJ
Posted

There is no lab test for gluten intolerance  Could you post your results, or at least the names of the tests within the celiac panel?  Probably good to keep eating gluten and see a gastroenterologist for further testing.

squirmingitch Veteran
squirmingitch
Posted

If the  rheumatologist ordered a celiac panel then he ordered a celiac panel b/c as Ennis stated, there is no such thing as a non celiac gluten intolerance test. So the rheumy was saying you have celiac disease. Yes, you really should get an endoscopic biopsy so you will need to see a gastroenterologist. YOU NEED TO CONTINUE EATING GLUTEN EVERY SINGLE DAY UNTIL THE ENDOSCOPY IS DONE.

Yes, it sounds like you have dh. As long as you have a celiac dx then you do not need to get a separate dx of dh. DH IS celiac disease & the prescription is the same --- a strict gluten free diet. 

Be glad that the rheumy knew what he was doing & ordered a celiac panel for you. Keep that doctor! Also thank him for saving you a mountain of pain. I had joint & bone pain so severely that I was positive I would be in a wheelchair for life in 6 months time. That was just before I found out it was all due to celiac. All that is gone now. 

  • 1 month later...
Jenm072289 Rookie
Jenm072289
Posted
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Sorry it has taken me awhile to reply and thank you both for your help! The panel that was done included Gliadin IgA which was in normal range, tTG IgA which was in normal range, Gliadin IgG which was in normal range, and tTG IgG which was high. Unfortunately a IgA serum was not done so I do not know if I have a deficiency. I unfortunately went gluten free at the encouragement of my rheumatologist and wasn't able to get in to see a dermatologist until 4 days after being gluten free. She took a biopsy anyway and it came back saying I have psoriasis. I am now going back to the rheumatologist to see if my joint pain could be psoriatic arthritis. I feel better on the gluten free diet but would still like to know if I am gluten intolerant or have celiacs. I am a little apprehensive about eating gluten again as I do not want the psoriasis to flare up again. The psoriasis began to clear up within days of starting the gluten free diet. Anyone have a similar experience? Should I pursue further testing or just continue on the gluten free diet?

frieze Community Regular
frieze
Posted
Quote
Quote

go to pubmed and type in celiac psoriasis

 

 

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      By trents · Posted

      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
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      By knitty kitty · Posted

      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
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    • Julie 911
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      By Julie 911 · Posted

      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Medication

      By trents · Posted

      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
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