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Neurothapy/ Numbness Nerve Pains - Gluten?

Matty101
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Matty101 Newbie
Matty101
Posted

 

 

Hi all,

im having a bad time at the moment and have stumbled across your site through a search for neurothapy symptoms relating to Gluten sensitivity 

I was diagnosed with EOE 5 years ago and have never found out what causes my throat to swell up. And then 2 months ago I had terrible hand pain, with arm/hand numbness at night. Tingling through body. Inner ear pain etc. I believe this is all nerve related pains.

 

Just wondering if anyone else has had this? Please help! I’m 29 and feel like there’s no hope at the moment.

matt

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Ennis-TX Grand Master
Ennis-TX
Posted

Celiac related nerve issues can have multiple causes and even be more then one.
Celiacs and sometimes non celiacs can get something called Gluten Ataxia, in my case my immune system attacks my nervous system in reactions to gluten, this has caused numbness, along with nerve and brain damage. With the brain part it will show up as white spots on a MRI from the damage.
Celiacs also have nutrient absorption issues with our damaged intestines, Magnesium and various B-Vitamins when deficient can cause all kinds of havoc on our body, brain fog, numbness, cramps, tingling, etc. This can often be helped with extra supplementing of a full spectrum b-vitamin like say a blend of Liquid Health Energy & Stress and Neurological Support 1tbsp each 3 times a day,

If your concerned about celiac you should get tested, you have to be eating gluten daily and a simple blood test is done for the initial screening, do make sure they do the full panel.
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cristiana Veteran
cristiana
Posted

Hi Matt, and welcome to the forum!

I'm so sorry you are going through this.

I have had arm and hand numbness at night and was diagnosed with ulnar compression.  When it struck, it took a few moments for my hands to feel normal after waking.   This started about six months before I was diagnosed with celiac disease.

It comes back from time to time - not sure why.

Another type of nerve compression - carpal tunnel - can cause pain in the hand.  This is quite a common condition in the general population, and celiacs.

The tingling you mention could be a thyroid problem - I'd get this checked out when you have your celiac panel. Often celiacs have thyroid problems too, but of course it is quite common in the general population too.

I'd definitely go and see a doctor as Ennis suggests as celiac might be the missing piece of the jigsaw puzzle.

Do post if you have any further queries - there are some really helpful people on this site!

Matty101 Newbie
Matty101
Posted
  • Author

 

Thankyou so much to both of you for the replies!

i have seen the doctor and am being referred to a neurologist in October. I thought at first about carpal tunnel or nerve entrapment but it’s not localised enough to be that I don’t think. It’s my toes, arms hands and legs. Have noticed brain function affected also. Some days better than others. 

This all came about 1.5 months after reintroduction of the 6 food diet I was undertaking for my EOE. Wheat was in there also. I did it for 6 weeks. I’m just wondering if my body hasn’t agreed with the reintroduction of all these foods. Possibly one being the cause. 

 

Thankyou 

matt

Wheatwacked Veteran
Wheatwacked
Posted
23 minutes ago, Matty101 said:

This all came about 1.5 months after reintroduction of the 6 food diet I was undertaking for my EOE. Wheat was in there also. I did it for 6 weeks. I’m just wondering if my body hasn’t agreed with the reintroduction of all these foods. Possibly one being the cause. 

Elephant in the room.

Quote

Dietary Therapy for Eosinophilic Esophagitis. In our study, the most common food to trigger EoE was wheat, which affected 60% of patients. This was followed by milk, which affected 50% of patients. Open Original Shared Link

This was how my infant son was diagnosed and treated for celiac disease, back in 1976. Nutramagen infant formula only for 6 months, then gluten free solid food. Your neurology consult is not likely to find any conclusive answer either because you are in a state of multiple deficiencies for all 28 essential vitamins and minerals and he is not likely to investigate your nutrition except as a last resort. Get a nutrition consult. You already know that when you follow the EOE diet you feel better. Magnesium oxide, Pantothenic Acid (B5), Choline, D3, C, Iodine all are likely to be deficient and have an effect on peripheral neuropathy.

Matty101 Newbie
Matty101
Posted
  • Author

 

Hi Wheatwacked thanks for the reply

annoyingly I did the 6 food diet for 6 weeks and noticed no improvement for the throat, specialist said to come off diet. And a week after I noticed slight improvement, so was thinking maybe the diet didn’t have long enough to kick in (meant to be 8-12weeks)

 

How Long does gluten take to get out of the system?

i had a few blood tests which all came back fine from docs - shouldn’t they pick up and lack in vitamins etc

thanks for your time!

 

Posterboy Mentor
Posterboy
Posted
On 8/30/2018 at 12:06 PM, Ennis_TX said:

Magnesium and various B-Vitamins when deficient can cause all kinds of havoc on our body, brain fog, numbness, cramps, tingling, etc. This can often be helped with extra supplementing of a full spectrum b-vitamin like say a blend of Liquid Health Energy & Stress and Neurological Support 1tbsp each 3 times a day,

Matty101,

Ennis_tx has given you good advice.

A good B-complex and Magnesium as a Citrate or Glycinate will help a lot of things plus a Vitamin D.

see this thread on B-Vitamins and celiac disease.

https://www.celiac.com/celiac-disease/celiac-disease-diagnosis-testing-amp-treatment/b-vitamins-beneficial-for-celiacs-on-gluten-free-diet-r1416/

and this online article on Vitamin D and EoE.

Open Original Shared Link

B-Vitamins and Magnesium should be taken with each meal for 3 months for best results then they can be scaled back to twice  a day for most people down to a maintenance dose of once a day after your Vitamin D levels and Pernicious Anemia symptom's (burning pins and needles) in your extremities have gotten better.

Magnesium helps fatigue and muscle cramps.

I hope this is helpful but it is not medical advice just some of the things that I have supplemented with and sware by that it helped me.

Any body with stress issues should/could be helped taking a B-complex with meals unless you have an MTHFR gene defect for Folic Acid then you should have take the Folate or enzymic/methyl B-vitamin form.

Good luck on your continued journey.

2 Timothy 2: 7  “Consider what I say; and the Lord give thee understanding in all things”, this included.

Posterboy by the grace of God,

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