Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seeing Small Improvements!


dlp252

Recommended Posts

dlp252 Apprentice

I've been noticing a few improvements since going gluten-free and I thought it might be helpful to list them...it's easy for me to get caught up in looking for the major improvements and miss the smaller ones. So while I'm waiting for some of the major issues to resolve, I wanted to note the other changes. Now some of these may have nothing to do with gluten-free or casein-free, but I've noticed them since going gluten/casein free. (As a reference I went gluten-free in November (although didn't obsess about cross-contamination), then added casein-free and became more cautious of cross-contamination around the middle of December after I got my Enterolab results.)

Sense smell: I haven't had sense of smell in years, I mean years--something has to be incredibly strong for me to smell it. Since going gluten and/or casein-free I've been catching whifs of stuff here and there--like my shampoo, soap, lotion which aren't really scented, lol. It's been kind of fun.

Nasal congestion/constriction: My nasal passages were always slightly swollen...they've been clearer than they have in years in the past few weeks--not completely clear yet, but definitely better.

Knee pain: a few months ago I developed a pain in both knees, with the right being the worst. It was bad enough to stop me from taking another step a couple of times and for my GP doctor to refer me to a surgeon who didn't think surgery would help. The pain is virtually gone--I've only felt it once in the last 4 weeks, and that was only slightly.

Dizziness/lightheadedness: I've suffered from dizziness and lightheadedness for at least a couple of years now--even while sitting, eyes open and not moving, I could sometimes feel it, and it would get much worse when I'd get one of my chronic sinus infections. I haven't felt it at all in the last 4 weeks.

Sleep: I've had insomnia for years, and have always been a light sleeper--getting up at least once per night to go to the bathroom. In the last two or three weeks, I've actually slept straight through--nearly 8 hours without waking or getting up--at least three or four times!

I was so happy, I just wanted to share! Thanks for letting me ramble on! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



i canary Rookie

Hi Donna,

Thanks for sharing! We all need to hear good news like yours, it is encouraging. And it reminds me to quit harping on what I still can't do and look at the many many small improvements in my life. :)

Regina

Becky6 Enthusiast

That's great!! I went gluten-free a month ago and too have noticed some improvement! Isn't it exciting???

Guest nini

I am so excited for all of you "newbies" that are seeing results from your efforts! I'm coming up on almost 3 years into this and I am still amazed with things that I always just assumed I would have to live with that have just vanished! Chronic sinusitus being one of them! Oh on the sense of smell returning, I think mine is now in OVERDRIVE! And cheap perfumes REALLY irritate me! It makes me aware of just how much CRAP is out there in our consumer driven society! I'm thinking they make these horrible cheap perfumes so strong because most people CAN'T smell the subtle fragrances! I absolutely LOVE essential oils now.

dlp252 Apprentice

One more thing I noticed today:

Itching - I am having much less itching on my legs and bottom of my foot!

Nini - it's funny because I'd be out in public with a friend, and my eyes would start burning and my nose would feel funny...and then my friend would turn around and say "someone is wearing perfume"...I couldn't smell it, but I'd react nonetheless.

Guest nini

oh the itching! I used to get really really bad itching on my upper arms and the tops of my feet... I'm so glad that is gone!

jerseyangel Proficient

How the heck long does it take for the itching to go? My back, sides, upper arms, upper legs still itch--although I notice it much more if I'm sitting still or lying down.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

I don't remember how long it took, I just know that one day I realized that I wasn't itching anymore...

GC1 Rookie

Love this thread... Good to see more people finding relief from wheat. I've been gluten-free only 5 months, so some of these issues are still with me, or many have just become non-problematic. The itching (especially scalp), burning eyes/nose, smell, even my hearing was to a point that I called myself an "old fart". I [really] don't miss the knee problem at all... having the joint slide out, and having to stop, put my foot up on something, and bend my leg until the knee popped back into place. Haven't have that thanks to gluten-free, even using a 'stair-stepper' as exercise... granted, the knees got/still get sore if I overdo, but nothing like before. Looking forward to doing squats and lunges, but that's "down the road".

Good luck, and glad you're feeling better.

GC

dlp252 Apprentice

I am so thrilled to see people experiencing some improvements, even if not major.

I found another one yesterday...color in my cheeks! I haven't had color to my face in ages and yesterday (granted I had just cleaned the stove a bit before that, but still NOTHING has given me rosy cheeks--not even working out, lol) I noticed a little color in my cheeks!

teebs in WV Apprentice

This is a really encouraging thread to read! My biggest issue has been itching - more so than GI issues. I was diagnosed with dh before celiac disease. My itching initially got better, but the past week has been horrific. I have tried so hard to be careful about cross-contamination. I just read this morning that iodine, including iodized salt, can irritate people with dh. I am a salt addict - maybe that is my problem?

The color in my face - that was something my co-workers commented to me about. And they also commented that my face had looked swollen over the past year, and now it doesn't anymore.

I really appreciate hearing everyone's experiences - it makes what I am going through a little easier. Thanks!

StrongerToday Enthusiast
I am so thrilled to see people experiencing some improvements, even if not major.

I found another one yesterday...color in my cheeks! I haven't had color to my face in ages and yesterday (granted I had just cleaned the stove a bit before that, but still NOTHING has given me rosy cheeks--not even working out, lol) I noticed a little color in my cheeks!

Now that you mention it, I've been getting a lot of compliments on my skin "glowing" - people even asking me if I'm in love (ha!). While my skin has usually been clear and blemish free - I couldn't understand why I was getting all the "glowing" compliments. Not that I was complaining mind you :D

Rusla Enthusiast

When I was gluten-free for two weeks people at work started telling me I looked better. I have now been gluten-free slightly over a month and I, the person who got up minimum of 6 times a night since being a child now only gets up a couple of times or not at all. Also my butt and other places used to itch like mad, especially in the middle of the night and it doesn't happen anymore unless I have been glutened. Another noticable thing is my head which itched and broke out in sores does not do that any more. I have a lot less instances of the big "d" now also.

Lovinglife Rookie

I'm glad, so glad, to hear about people's improvements. THANK GOD!

dlp252 Apprentice
I'm glad, so glad, to hear about people's improvements. THANK GOD!

Yes, I agree!!! I thought of another one while posting to the poll thread about personality...I am finding that I am in a lighter mood much more often than I was a few weeks ago. Now, that's something my friends can get behind, lol. :P

sillyyak Enthusiast

I am actually seeing some improvements also. Generally speaking, I feel as if my head was lifted off of my glutened body and placed onto a non-gluten one. I no longer feel dizzy and lightheaded. I do have a slight hunchback and some back and bone pain but I feel "lighter" bodywise. It is amzing to me what a change of diet can do.

Todaywas hard though -a group of people were eating bread. Hard but then I reminded myself that I could eat bread too BUT I would have to pay the price of major diarrhea and a return of all my symptoms. I decided it was too hard a price to pay and reminded myself I could still eat chocolate and also that I was eating healthier now.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748

    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.