Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Casein Intolerant Too, But What Does That Mean?


Nancym

Recommended Posts

Nancym Enthusiast

Just curious, there's tons of information out there about how gluten intolerance is related to various diseases but I haven't seen much on casein intolerance. Is it not as bad as gluten intolerance? My impression is that it either isn't as bad or else it just hasn't been studied. I'm wondering whether I can tolerate an occassional casein-ing and just suffer the bloating and flatulence etc or whether I'm really undermining my health by doing that.

Anyone know?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular

I'm not too up to date on the casien thing, but when I first had celiac disease, I was also lactose intolerant. What happens is that the part of our intestines that break down lactose are on the very tip of the villi that gets destroyed. When you go on the gluten free diet, eventually your villi grow back, and once that happens, you can again tolerate lactose. I am not sure if this also applies to casien.

I'm sure someone else will pipe in with more knowledge about casien than I have!

Karen

shayesmom Rookie
Just curious, there's tons of information out there about how gluten intolerance is related to various diseases but I haven't seen much on casein intolerance. Is it not as bad as gluten intolerance? My impression is that it either isn't as bad or else it just hasn't been studied. I'm wondering whether I can tolerate an occassional casein-ing and just suffer the bloating and flatulence etc or whether I'm really undermining my health by doing that.

Anyone know?

I don't know about disease and casein intolerance. However, there is plenty of info out there linking most conventional dairy to disease.....heart disease, osteoporosis and cancer to name a few.

Anyway, there is speculation on whether or not casein intolerance is as pronounced when using raw milk. Apparently, casein is changed during normal commercial processing and many individuals who switched to raw milk are saying that their allergies/intolerances are gone and that they can now have it regularly.

Bear in mind that they are not drinking raw milk, just purchasing it raw and boiling it themselves (at lower temps for shorter periods of time than commercial pasteurization). That renders the milk safe for consumption, without overdoing it and destroying the beneficial properties of dairy. I have seen raw cheese sold in health food stores, but raw milk has to be purchased directly from a dairy farm. It cannot be sold in stores....at least where I am at in Ohio.

I know that doesn't exactly answer your question, but hopefully it gives you an option to look into as far as your own preferences in how to proceed.

kabowman Explorer

I am lactose and casein intolerant. I cannot have any dairy products, at all. All animal milk protein (casein) is similar (or the same - maybe Tiffany can clarify) and I cannot have goats milk or cheese either. Both make me just as sick. A pill can help with the lactose but there isn't anything to help with casein intolerance.

I don't know that this is a disease but is more likely an intolerance.

julie5914 Contributor

Good question. I don't think enough research has been done to know if casein is as bad as gluten. It depends on if it is a straight up allergy or if it is an auto-immune response that also damages your intestine lining. Most people think that it does not cause damage although the symptoms are just as severe. I think that for some celiacs the casein is being detected as gluten and the reaction is the same and therfore a damaging one. Rye, barely and oats all have similar proteins to gluten but not the same. They cause the same reaction though. It my opinion/theory that casein does the same in those that extra sensitive. Perhaps we celiacs have different degrees of how hyper-reactive our immune system is.

tarnalberry Community Regular

From what I've read, a casein intolerance almost never causes intestinal damage. It's possible, but highly unlikely. It can certainly cause a variety of symptoms, and just because it isn't likely to cause villi bluting doesn't mean you should have dairy when you have a casein intolerance, just that it's not an autoimmune condition like celiac disease.

The intolerance is to the casein protein - a substance found in all mammalian milk. There are different types of casein, however, and different species of mammals have milk that contains different proportions of the different types of casein. Most people are only sensitive to one (or maybe two or three) subtypes of casein, which means that some people find that they can tolerate the milk of another species. It's not true for everyone, and there isn't a good way to find out unless you test yourself on it (and that can get tough too - I'm trying it right now! ;-) )

shayesmom Rookie
The intolerance is to the casein protein - a substance found in all mammalian milk. There are different types of casein, however, and different species of mammals have milk that contains different proportions of the different types of casein. Most people are only sensitive to one (or maybe two or three) subtypes of casein, which means that some people find that they can tolerate the milk of another species. It's not true for everyone, and there isn't a good way to find out unless you test yourself on it (and that can get tough too - I'm trying it right now! ;-) )

There is some really interesting research being done on raw milk products and how many people with documented milk allergies are doing fine with raw milk. Also interesting is the fact that The Lancet has several studies on its site which show raw milk as preventing asthma and allergies as well as offering other health benefits. Raw milk was even used to aid diabetics before injectable insulin was available.

Realmilk.com has info on how to get hold of raw dairy (for those who are experimenting with their intolerances). I finally located a dairy farm somewhat nearby and plan on offering to do a "cow share" program for a while. LOL!! Dd, dh and I are pretty sensitive to dairy so I figured I'd try it on myself first (maybe dh) and see how it turns out.

Casein proteins in dairy are changed during pasteurization, supposedly at the high temps used for conventional dairy products. From what I understand, heating raw dairy at lower temps can destroy most pathogens, but will not denature the milk proteins and render them as "toxic" to humans. Once again, this really is an individual thing. No one can predict how they'll react until they actually try it. And there is a lot of controversy surrounding this issue.

The Weston A. Price Foundation has some interesting literature out that may be of more help to those looking into the casein/allergy connection. I also find Dr. Mercola's site helpful, interesting and accurate. And as a final reference, I go to The Lancet and PubMed (dry reading but the studies are often there and many articles on The Lancet are free, though not all).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nancym Enthusiast

Oh! Here's an interesting article at wikipedia about the different sorts of pasteurizing.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748

    Patty6133
    Newest Member
    Patty6133
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Xravith
      Yes, you are right. Indeed, I’ve been feeling anemic since the beginning of this week, and today I felt horrible during a lecture at the university, I was trembling a lot and felt all my body incredibly heavy, so I had to come back home. I’ll do a blood test tomorrow, but I’m just worried about the possibility of it coming back negative. I’ve been eating two cookies in the morning as my only source of gluten over the past two weeks—could that affect the final result?
    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.