Really Getting Frustrated Again!

[danikali]

Okay, so I've been eating nothing but WHOLE FOODS. Here is a list in the past few days:

Apples

Grapes

Oranges

Bananas

carrots

celery

onions

beans

tomatos

potatos

rice

(also Pacific almond milk)

Nuts, of all kinds

rasins

just water

meat, fish with only salt and pepper

asparagus

and more veggies I can't think of right now

WEll, today I had

1 apple

2 bananas

peanut butter and carrots

peanuts/almonds/rasins

1 potato

And my knee pains are back so bad when I sit down, and I have foul gas again. I've had it for the past 4 or 5 days or so!

Yesterday, all I had was applesauce, rice cakes, peanut butter and carrots! And still.........

I am taking

calcium/magnesium/zinc supps.

glucosamine supps.

acidopholis

and they are all 'supposed' to be gluten/soy/dairy/etc. etc. free!

What the heck am I doing wrong????

I haven't changed any of my lotions or make-up. I did change my toothpaste for one day to "Go SMile" whatever that is, and it didn't have any weird things in the ingredients. So why are my symptoms slowly coming back????/ I was doing so well! I'm going to start eating everything again if this keeps happening! I'm so, excuse me, but PI$S#D off!!!!!!!!!!

I'm leaving work right now, but if anyone could please help me with any advice at all, I would love you so much! I won't get a chance to reply tonight, but Help me!!!

P.S. I had that toothpaste about a week ago already and the beans and all of the 'gassy' foods on Saturday. But my symptoms started last week, and they just aren't going away!

[Rachel--24]

It sounds to me like you have other intolerances. You're eating quite a variety so it would be hard to pinpoint the cause. It could really be anything on that list causing your symptoms. This is why food diaries can be helpful. Have you had any testing done for food sensitivities? You could be eating the most healthy gluten-free diet but still feel sick if your body isnt liking something in your diet. I would start eliminating some of those foods temporarily. The ones I'd probably exclude are the nuts (including peanut butter), potatoes, tomatos and bananas since those are more allergenic than the rest. You could see how you feel after eliminating a few things for a couple weeks and then try adding them back in one at a time...like about 4 days apart. If you notice no difference from any of those foods focus on some of the other foods on your list. Its not easy figuring out food intolerances and it takes some time.

[darlindeb25]

Dani--To begin with, your body hasnt had time to heal yet. Maybe you are eating too much fruit and too much gassy veggies. I cant eat gassy veggies and I have been gluten-free for over 4 yrs. I cant eat tomato in any form. Are you dairy free too? In the beginning I ate cottage cheese with fruit in it a lot of the time. I had my rice cake with peanut butter every morning, still do, to this day. Dont give up--it hasnt been 2 months yet--keep at it hun. Deb

[Guest Viola]

I've had major problems with gluten contaminated nuts. Dry roasted peanuts and all other nuts have gluten! Make sure of your nut source and double check. The only ones I seem to get away with are Planters cashews and any nut in the shell.

Sorry ... that's all other nuts that are dry roasted!

[Carriefaith]

I would guess that you may just need more time to heal. My symptoms continued for about one year after I started the diet. For the first 4 months or so, I was sick almost every day. Slowly, I started having good days and bad days. And eventually, my symptoms just disappeared.

Also, are you 100% sure that the Pacific almond milk and nuts are safe? I believe that I have been contaminated from two products that have "gluten free" on the label. One of those companies even stated on their website that they detect gluten in their "gluten free" products.

[mookie03]

Dani--To begin with, your body hasnt had time to heal yet. Maybe you are eating too much fruit and too much gassy veggies. I cant eat gassy veggies and I have been gluten-free for over 4 yrs. I cant eat tomato in any form. Are you dairy free too? In the beginning I ate cottage cheese with fruit in it a lot of the time. I had my rice cake with peanut butter every morning, still do, to this day. Dont give up--it hasnt been 2 months yet--keep at it hun. Deb

Dani Im so sorry! but i agree w/ deb-- veggies and fruits are really tough on ur digestive system, id try to stick to easier foods to digest. And give it some time-- feel better!!!

[Bonnie]

Dani,

I have been gluten-free for 9 months now and am still having problems with other intolerances.

As the others mentioned, fruit can be a problem. Any fruit other than bananas upset my stomach - gas and bloating.

I am VERY intolerant of rice so perhaps eliminate that for a while too.

I also have a problem with sulphites which are often on fruit and especially raisins. Peanut butter can be full of sugar which can also cause intestinal gas and bloating.

No easy answers to your problem I'm afraid. Just stick with it - it will get easier!

P.S. Darlindeb - I was wondering if I have a problem with tomatoes - what symptoms do you have if you ear them?

Yvonne

[happygirl]

My guess would be that you are still healing. It didn't matter what the heck I ate (all gluten-free) when I started the diet, I just felt like crap from being sick for so long. It took me a few months to feel somewhat normal. I remember I would eat very simple, plain things and then freak out because I was still feeling awful.

If, after being super gluten-free for awhile, then I would look into other intolerances. It seems like there are many people on this board with multiple intolerances, and many that are "only" Celiacs.

Hope that you start feeling better soon.

[Rusla]

Dani,

I have been gluten-free over a month and I still get that from time to time also. I also get it when I get a minor glutening, like from the desk at work. Perhaps your glucosamine or other supps have a wheat based filler.

[danikali]

Thank you everyone, so much!

Well, I'm feeling a little better today. I couldn't sleep last night at all due to really bad heartburn (like a knife going into my chest) and stomach pains. I kept getting up to go to the bathroom, too. Anyway, for some reason, in the middle of all of my thoughts, I heard my Mom saying "you need something to coat your stomach from all of the acid, have one glass of milk, REAL milk." I don't know what came over me, but I did it. I had one glass of my fiance's REAL milk, and guess what? IT HELPED!!!!!!!!!!!!!!!!!!!!!

I have been staying away from dairy because I have a problem with constipation and always thought I had a problem with dairy. But now I'm wondering if I really do.......I just couldn't believe how 'normal' I felt after drinking that huge glass of milk. I haven't felt so 'normal' laying down in months! (that's usually when I get the worst heartburn)

So, I'm thinking maybe my diet just isn't balanced enough..........all I'm really eating these days is a lot of fruits, a lot of veggies, some starchy things like rice cakes and potatos (barely any though), and A LOT OF NUTS and peanut butter! The peanut butter is natural organic and in the ingrediants only says 'peanuts.' But I had no clue that roasted nuts that don't specifically say gluten free, are made with gluten! That's horrible! I could be glutening myself everyday! I do have some nuts in the shells at home, I guess I will stick to those and see how it goes. But I've been buying those bagged nuts and mixes that you buy at any convience store or deli.......hmmmm......

Also, today, I was thinking about getting sushi, is that okay for me? I know if I get the 'imitation' meats, there could be gluten in there, but what about the raw salmon, avocado and cucumber sushi? If I have him make it for me in front of me, would this be okay??

I also made an appointment to see a dietician because I need some guidance on balanced meals. And I think I'm going to have one serving of real milk or yougart a day to help break down the acid. I don't want to eat a lot of it, but it really really really really really helped last night!

[lonewolf]

I suffered from really bad arthritis for a while and discovered that potatoes (and all nightshade vegetables) and peanuts were not good for me. I survived for quite a while on fish (just salt), rice, some vegies and fruits and sunflower seed butter. It helped a lot. I have been able to add potatoes back in, but still avoid peanuts (as well as gluten, dairy, citrus, eggs and soy) and have no joint pain whatsoever. You probably need to continue to be REALLY restricted until your system has more of a chance to heal, then start adding back things you think will be safe.

Good luck!

Liz

[danikali]

I suffered from really bad arthritis for a while and discovered that potatoes (and all nightshade vegetables) and peanuts were not good for me. I survived for quite a while on fish (just salt), rice, some vegies and fruits and sunflower seed butter. It helped a lot. I have been able to add potatoes back in, but still avoid peanuts (as well as gluten, dairy, citrus, eggs and soy) and have no joint pain whatsoever. You probably need to continue to be REALLY restricted until your system has more of a chance to heal, then start adding back things you think will be safe.

Good luck!

Liz

May I ask why so many Celiacs and gluten intolerant people have problems with peanuts? I'm staying away from all nuts for a few days now, and I'll add the peanuts last but can peanuts alone really cause stomach and acid problems? Do nuts have acid? And are ALL roasted nuts made with gluten?

[Rachel--24]

I agree with Lonewolf about being restrictive until you've been gluten-free awhile. I also think you're asking for trouble with the dairy. Every doctor I've seen stated that dairy is off-limits during the first months. Personally, I dont think its a good idea especially if you're having problems.

[danikali]

I agree with Lonewolf about being restrictive until you've been gluten-free awhile. I also think you're asking for trouble with the dairy. Every doctor I've seen stated that dairy is off-limits during the first months. Personally, I dont think its a good idea especially if you're having problems.

Then how come the milk helped me so much last night? I don't get it........aren't some Celiacs okay with dairy? At least every once in a while?

[Rachel--24]

I'm staying away from all nuts for a few days now, and I'll add the peanuts last but can peanuts alone really cause stomach and acid problems?

Basically any food intolerance can cause stomach problems and also slow healing process.

[lonewolf]

May I ask why so many Celiacs and gluten intolerant people have problems with peanuts? I'm staying away from all nuts for a few days now, and I'll add the peanuts last but can peanuts alone really cause stomach and acid problems?

Nuts can just be plain hard to digest. As for peanuts and joint pain, they contain something called Arachodonic acid, which can cause or make worse inflammation. Peanuts also contain a lot of mold - even organic ones. They make lots of lists of "foods to never eat".

Liz

[mookie03]

Dani,

While i agree that dairy can be a problem for some once they go gluten-free, i just have to play devils advocate for a second-- i thought i was lactose intolerant my whole life until i realized it was just gluten, and now i have found that having a glass of milk can help me a lot when im glutened or just not feeling 100%. The verdict is still out on dairy and soy for me- sometimes i think it helps, sometimes i think it hurts. I think the lesson is to listen to your body and keep in mind that every food will help or hurt at some point as your body tries to heal. I always just eat what my body craves- if it is craving milk, i find that milk makes me feel better, and the same with meat, sugar, fruit, etc.

[danikali]

Dani,

While i agree that dairy can be a problem for some once they go gluten-free, i just have to play devils advocate for a second-- i thought i was lactose intolerant my whole life until i realized it was just gluten, and now i have found that having a glass of milk can help me a lot when im glutened or just not feeling 100%. The verdict is still out on dairy and soy for me- sometimes i think it helps, sometimes i think it hurts. I think the lesson is to listen to your body and keep in mind that every food will help or hurt at some point as your body tries to heal. I always just eat what my body craves- if it is craving milk, i find that milk makes me feel better, and the same with meat, sugar, fruit, etc.

I agree, and I remember you saying this at dinner when we went out. And the more I thought about it, I realized that the times when "milk" hurt me the worst, was when I would eat it with cereal! Duh! Regular, gluten containing ceral! And then I tried the soy milk which was okay at first, and I liked it so much that I would drink it straight (no cereal-I never used to drink a glass of regular milk, plain, I just never craved it) and that's when I noticed that it bothered me a lot. So someone suggested casein because that could be in soymilk. So I decided I should not have all dairy. But now, I'm realizing, it's probably the soy because other soy products bother me! Sheesh!

Anyway, I think I am going to just have dairy in moderation for now. But if I get those pains tonight, I'm def. going straight for the REAL milk again. That REALLY REALLY REALLY helped! I couldn't believe it! I even woke Danny (my finace) up to tell him what just happened! hahah

[Guest Viola]

No ... not all roasted nuts have gluten, just if it says DRY roasted. Also smoked almonds have gluten.

I don't have a problem with dairy, but lots do. If you can drink milk with no problems, then by all means go for it

[danikali]

No ... not all roasted nuts have gluten, just if it says DRY roasted. Also smoked almonds have gluten.

I don't have a problem with dairy, but lots do. If you can drink milk with no problems, then by all means go for it

I can't belielve I never knew this! Thank you so much! There are so many things to learn, it's insane!

[jerseyangel]

Hi Dani--To add my 2 cents to this, I think that because we, as Celiacs, are routinely told to stay away from dairy for the first 6 months, we tend to automaticly blame it for the additional symptoms we may get after going gluten-free. Now, I'm dairy free, by choice, since before my Dx. But the point of all of this eliminating and experimenting with the different foods is to find the combination that works for you. I would listen to your body and go with the milk if you feel it's helping. The worst thing that can happen is that you find that it is not helping as you thought and then you can always cut it back out. I had a strange thing happen today--I've been cutting out all grains and sugar the past couple of weeks in order to lose a little weight and help with my lingering upper GI symptoms. The last few days, I've had a lot of pressure, and gas that would build up and not go anywhere. Today, I said--the heck with it and had several Dove dark chocolate pieces. And I feel better! The pressure is releasing upward and it happened after the chocolate. I don't understand how, but I really don't care. Hope you are on to something and get some lasting relief.

[danikali]

Thank you so much Patti! That makes me feel a lot better knowing that depriving myself of everything may only be making things worse. My stomach is completely normal today, after having weird stuff get worse and worse everyday for the past week. (I think it also may be those nuts that I've been eating, dry roasted). I think the most frustrating part of Celiac is all of the hidden sources of gluten, and of course finding other food intolerances. But you think you're doing so well, and then all of a sudden, you are feeling like crap again, and you don't know why.

Thanks everyone for replying to me. I totally knew that you would all understand and help me figure SOMETHING out. I got a lot of answers today, and last night, by listening to my body. I am going to have a little dairy once a day because it just helped so so much that I can't ignore it.

Thanks!!!

[jerseyangel]

I know--it's so depressing to be going along so well and then hit another wall. Those dry roasted nuts were probably trouble, it's good that you found out about those. Keep feeling good

[celiacat35]

Well, just to add to the nuts concern.I bought a container of mixed nuts not thinking that it may have any glutin, but once I was reaching for it I found a warning that it may contain WHAET!.

So becarefull with some brands.

Celiacat35