Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm New And Stupid!


ssMarilyn

Recommended Posts

ssMarilyn Newbie

I'm still trying to figure out how to get around on this board. It doesn't take much to confuse me! Here's my problem. The past year or so, I get kind of sick whenever I eat pasta, corn, peas, bread, etc. Last week, we went to Happy Hour at our local bar, and I had pizza and one bottle of beer. I was up all night, bloated, felt awful. Last night we had pizza here at home, no beer. I was up all night, AM STILL UP , it's 6am, feeling horribly bloated and uncomfortable. Is this celiac? I'm 54, and started having problems with wheat a couple of years ago. I used to be able to eat anything, anytime. What's going on here, I hate it!

I've read that as we get older, our stomachs lose some of the enzymes it needs to digest foods, so we start having problems. Thats not considered celiac is it?

Marilyn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

it sounds like you could have Celiac or a gluten intolerance. If you want to try for a firm diagnosis, find a Dr. that is extremely knowledgeable about Celiac. Continue to eat gluten if you are going to have testing done, as if you go gluten free, any test results will not be accurate. OR you could simply try the diet and see if it helps you if you don't want to mess with Dr.s. Keeping in mind that if you choose that route, you probably will not be able to get a firm dx of Celiac.

celiachap Apprentice

I'm still trying to figure out how to get around on this board. It doesn't take much to confuse me! Here's my problem. The past year or so, I get kind of sick whenever I eat pasta, corn, peas, bread, etc. Last week, we went to Happy Hour at our local bar, and I had pizza and one bottle of beer. I was up all night, bloated, felt awful. Last night we had pizza here at home, no beer. I was up all night, AM STILL UP , it's 6am, feeling horribly bloated and uncomfortable. Is this celiac? I'm 54, and started having problems with wheat a couple of years ago. I used to be able to eat anything, anytime. What's going on here, I hate it!

I've read that as we get older, our stomachs lose some of the enzymes it needs to digest foods, so we start having problems. Thats not considered celiac is it?Marilyn

It certainly could be celiac! There have been times in my life when I had what I described to people as a "Cast Iron Stomach", and I could eat anything (or so I thought) - and other times the complete opposite was true. I always had trouble with beer, though.

First, I think that you should try some Lactaid, or another Lactase Enzyme supplement. If I don't take them, I have problems, even though I am totally gluten free. I make gluten-free pizza - but I can't eat it more than once or twice a week becase the dairy in the cheeses gives me trouble, even with the lactase enzymes. Whether you have Celiac or not, the digestive enzymes for dairy may help until you find out more.

I also take other enzyme supplements, but that is because I don't know if my villi (in the small intestines) are 100% normal yet (if they ever were "normal", lol).

This sounds like you have a dairy intolerance - but don't rule out Celiac as being the root cause. I had many of your symptoms, and I could live with them for most of my life - but eventually it caught up with me and my digestive system went off the deep end - almost taking me with it.

Good luck, and feel free to keep us updated on your quest for a solution.

ssMarilyn Newbie

Thank you so much....I hadn't even thought about the dairy part of the pizza. Hmmmm......something else to consider now.

M :)

Lisa Mentor

M.

Just wanted to say that there are no stupid questions here so ask away.

It is obvious that you have a reaction to either wheat or cassin products. As stated before, if you choose to be tested continue as usual although painful to you.

If you choose to go gluten free, we can send you the Delfi Product List, that lists product by brand name and it is easier for you to shop for appropriate foods.

We all can get you started.

Let us know. Lisa

  • 8 years later...
ssMarilyn Newbie

M.

Just wanted to say that there are no stupid questions here so ask away.

It is obvious that you have a reaction to either wheat or cassin products. As stated before, if you choose to be tested continue as usual although painful to you.

If you choose to go gluten free, we can send you the Delfi Product List, that lists product by brand name and it is easier for you to shop for appropriate foods.

We all can get you started.

Let us know. Lisa

I just now found this old thread from years ago. Lisa are you still there and do you have the product list?

kareng Grand Master

I just now found this old thread from years ago. Lisa are you still there and do you have the product list?

 

 

I don't know what list she is referring to - but you wouldn't want a list that is 8 years old.  Products change over time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

Yeah, the best thing is to learn how to read labels. And it's a lot easier now than it was years ago. In the US, wheat MUST be listed on the ingredients label because it is one of the top eight allergens. Rye is pretty much only in rye bread. Barley is the only one you have to watch out for. Sometimes a product will contain malt but it won't say from barley. (Often it WILL say from barley because barley is expensive and companies want you to know they use expensive ingredients, but not always.) Oh yeah, and oats are usually contaminated unless they are marked certified gluten-free.

 

But if you're new to the diet you should be sticking to whole foods right now anyway - you know - meats, veggies, fruit, potatoes, rice. Processed foods are hard to digest with all the garbage they put into most of them. Give yourself time to heal. And DO go to the coping section here and read the Newbie 101 thread. It will give you a wealth of information about the diet and cross-contamination and so much more.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748

    Jamie0230
    Newest Member
    Jamie0230
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...