Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why The Varied Reactions?


jnifred

Recommended Posts

jnifred Explorer

I am asking this because last night I ate something and have NO IDEA what it was and I was SICK, gurlging stomach, nauseous, cramps like crazy, on the toilet but not going all night!!!! It was awful. I haven;t felt that bad in a long time!!! I still feel a little blech today, but just at food. I am almost afraid to eat, I've had popcorn and corn tortilla chips and juice mostly today.

I have eaten a very low gluten diet for years, without realizing it. I cut out all the rest in early November, had a few oops, with different reactions, some mild, some big, but not as bad as last night. I got mad over Christmas and ate a whole store bought cookie, got lethargic, crampy (although not as bad as last nignt) and had the big D for a day or so.

Drank about 1/2 cup beer while on the cruise last week without even thinking and was just a little gurgly and bloated for the evening, but nothing I couldn't deal with.

And then last night was hubby's b-day, made a huge dinner, there are only a few options as to what made me sick and they are so minor, I can't beleive I was as bad as I was. One choice is I made him a "real" cake, I made another for me to eat and I wonder if maybe some of his crumbs got on my cake. Second choice is that the prime rib I made (and was pre-seasoned) had something in it, like flavoring or etc. I checked the label before buying it, but did not notice anything that seemed out of the ordinary, and I only ate a few bites anyway, I prefered the crab legs and potato.

So it seems odd to me that a few bites of meat that may have been seasoned with something bad, or a slice of cake that may have had some gluten crumbs on it made me as sick as I was, especially since in the last several weeks, I have had a lot of gluten knowingly and not gotten that sick.

A friend suggested that MSG may have been the culprit, I don't know if it was in the meat or not, but is that even a possibility????

Thanks for any help anyone has to offer.....I am so confused by this. The differences in the reactions I get are so crazy, I just keep wondering if it IS all in my head!!!!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



glutenboy Newbie

I've been trying to be gluten-free since last fall, with varying success. After Christmas I really cranked up my efforts and became more disciplined and careful about what I ate. Yet, I've still had a few very bad days.

My current daily gluten-free meals incorporate rice, meat that I've cooked, and sometimes eggs. I do miss my snack foods though, which used to be things like cookies or multigrain chips. So, I've been eating more potato and corn chips (known to be gluten-free). A few times I've cooked gluten-free cornbread too. This is all in the past three weeks.

I haven't been keeping a diary, but I've realized that my bad days over the past three weeks correlate to the days when I've had corn chips or cornbread. Days with potato chips don't seem as bad, but aren't really good either. So I think I've learned that in addition to gluten problems, I may have corn and/or nightshade problems. I'm going to do this week completely corn & nightshade free and see how it goes.

Clearly if you're eating popcorn to feel better you probably don't have corn problems, but perhaps you have another food issue (in addition to gluten) that you didn't realize before. Maybe take another look at that seasoning and the gluten-free cake mix to see if there are any other potential problem foods in there - nightshade, soy, etc.

Hope you feel better,

Dave

Carriefaith Enthusiast

I believe that beer is made from barley, so maybe you react differently to different types of grains. Therefore, maybe your reaction to wheat is worse than barley. I personally can have varying reactions to gluten. I think my reaction depends on the amount and the concentration of gluten.

jnifred Explorer

That's what I was wondering, if different types of gluten cause different reactions be it a difference in the severity, or just a difference in the type of reaction.

It makes sense I guess about the beer thing, but why didn't I get as severe of a reaction from that stupid cookie I ate a few weeks ago????? I really wonder what was in that meat, I may have to go find it at Sams and copy down all the ingredients again. Everything else I had that night was simple, nothing added.....

BTW....the cake was fine, I decided to try it again, and I didn't have any reaction like the other night. I am going NO WHERE near that leftover meat though.....YUCK!!! I felt trully AWFUL!!!!!

CMCM Rising Star
I am asking this because last night I ate something and have NO IDEA what it was and I was SICK, gurlging stomach, nauseous, cramps like crazy, on the toilet but not going all night!!!! It was awful. I haven;t felt that bad in a long time!!! I still feel a little blech today, but just at food. I am almost afraid to eat, I've had popcorn and corn tortilla chips and juice mostly today.

I have eaten a very low gluten diet for years, without realizing it. I cut out all the rest in early November, had a few oops, with different reactions, some mild, some big, but not as bad as last night. I got mad over Christmas and ate a whole store bought cookie, got lethargic, crampy (although not as bad as last nignt) and had the big D for a day or so.

Drank about 1/2 cup beer while on the cruise last week without even thinking and was just a little gurgly and bloated for the evening, but nothing I couldn't deal with.

And then last night was hubby's b-day, made a huge dinner, there are only a few options as to what made me sick and they are so minor, I can't beleive I was as bad as I was. One choice is I made him a "real" cake, I made another for me to eat and I wonder if maybe some of his crumbs got on my cake. Second choice is that the prime rib I made (and was pre-seasoned) had something in it, like flavoring or etc. I checked the label before buying it, but did not notice anything that seemed out of the ordinary, and I only ate a few bites anyway, I prefered the crab legs and potato.

So it seems odd to me that a few bites of meat that may have been seasoned with something bad, or a slice of cake that may have had some gluten crumbs on it made me as sick as I was, especially since in the last several weeks, I have had a lot of gluten knowingly and not gotten that sick.

A friend suggested that MSG may have been the culprit, I don't know if it was in the meat or not, but is that even a possibility????

Thanks for any help anyone has to offer.....I am so confused by this. The differences in the reactions I get are so crazy, I just keep wondering if it IS all in my head!!!!!!!!

This is what drives me bonkers...the unpredictibility of reactions. I got my positive lab results back Jan. 18 and my son's birthday was Jan. 19. I made a big white cake for him, and being mad about the lab results I ate SEVERAL pieces of it. No ice cream because I KNOW ice cream will give me trouble. I also ate macaroni and cheese for dinner (my son's request for a birthday meal!!). Well, next day or two I felt kind of bad, some almost D, but nothing major. Just my usual low level feeling lousy. Then a day or two later I went to a Mongolian BBQ (where they say no MSG) and added a small amount of soy sauce mix to my food and got weak and had a couple of egg rolls. By the time I walked out the door of the restaurant I was bloated, felt lousy and had terrible stomach pains. Oddly enough, though, that stuff diminished over a couple of hours and my digestive system wasn't terribly messed up. Other times in the past I've eaten wheat, and several hours later I had such nausea I had to lay down for a couple of hours. Also the D episodes to go along with it. So go figure.....there doesn't seem to be any rhyme or reason to any of it.

Of of the books I read said when you are eating gluten (or whatever) your body actually builds up a kind of adaptation to it (or maladaptation!). Even though it is doing damage to you, your body deals with it the best it can. I guess people reach a saturation point, though, and their bodies can no longer adapt and that's when the symptoms get really bad.

For myself, in the last few years I have minimized the gluten and dairy I would eat, but didn't entirely eliminate it. So perhaps when I had the big reactions, those were just periods of time when I'd been eating more than usual or something. Wish I knew...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,933
    • Most Online (within 30 mins)
      7,748

    Kazwal
    Newest Member
    Kazwal
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
    • Wheatwacked
      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.