Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why The Varied Reactions?


jnifred

Recommended Posts

jnifred Explorer

I am asking this because last night I ate something and have NO IDEA what it was and I was SICK, gurlging stomach, nauseous, cramps like crazy, on the toilet but not going all night!!!! It was awful. I haven;t felt that bad in a long time!!! I still feel a little blech today, but just at food. I am almost afraid to eat, I've had popcorn and corn tortilla chips and juice mostly today.

I have eaten a very low gluten diet for years, without realizing it. I cut out all the rest in early November, had a few oops, with different reactions, some mild, some big, but not as bad as last night. I got mad over Christmas and ate a whole store bought cookie, got lethargic, crampy (although not as bad as last nignt) and had the big D for a day or so.

Drank about 1/2 cup beer while on the cruise last week without even thinking and was just a little gurgly and bloated for the evening, but nothing I couldn't deal with.

And then last night was hubby's b-day, made a huge dinner, there are only a few options as to what made me sick and they are so minor, I can't beleive I was as bad as I was. One choice is I made him a "real" cake, I made another for me to eat and I wonder if maybe some of his crumbs got on my cake. Second choice is that the prime rib I made (and was pre-seasoned) had something in it, like flavoring or etc. I checked the label before buying it, but did not notice anything that seemed out of the ordinary, and I only ate a few bites anyway, I prefered the crab legs and potato.

So it seems odd to me that a few bites of meat that may have been seasoned with something bad, or a slice of cake that may have had some gluten crumbs on it made me as sick as I was, especially since in the last several weeks, I have had a lot of gluten knowingly and not gotten that sick.

A friend suggested that MSG may have been the culprit, I don't know if it was in the meat or not, but is that even a possibility????

Thanks for any help anyone has to offer.....I am so confused by this. The differences in the reactions I get are so crazy, I just keep wondering if it IS all in my head!!!!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



glutenboy Newbie

I've been trying to be gluten-free since last fall, with varying success. After Christmas I really cranked up my efforts and became more disciplined and careful about what I ate. Yet, I've still had a few very bad days.

My current daily gluten-free meals incorporate rice, meat that I've cooked, and sometimes eggs. I do miss my snack foods though, which used to be things like cookies or multigrain chips. So, I've been eating more potato and corn chips (known to be gluten-free). A few times I've cooked gluten-free cornbread too. This is all in the past three weeks.

I haven't been keeping a diary, but I've realized that my bad days over the past three weeks correlate to the days when I've had corn chips or cornbread. Days with potato chips don't seem as bad, but aren't really good either. So I think I've learned that in addition to gluten problems, I may have corn and/or nightshade problems. I'm going to do this week completely corn & nightshade free and see how it goes.

Clearly if you're eating popcorn to feel better you probably don't have corn problems, but perhaps you have another food issue (in addition to gluten) that you didn't realize before. Maybe take another look at that seasoning and the gluten-free cake mix to see if there are any other potential problem foods in there - nightshade, soy, etc.

Hope you feel better,

Dave

Carriefaith Enthusiast

I believe that beer is made from barley, so maybe you react differently to different types of grains. Therefore, maybe your reaction to wheat is worse than barley. I personally can have varying reactions to gluten. I think my reaction depends on the amount and the concentration of gluten.

jnifred Explorer

That's what I was wondering, if different types of gluten cause different reactions be it a difference in the severity, or just a difference in the type of reaction.

It makes sense I guess about the beer thing, but why didn't I get as severe of a reaction from that stupid cookie I ate a few weeks ago????? I really wonder what was in that meat, I may have to go find it at Sams and copy down all the ingredients again. Everything else I had that night was simple, nothing added.....

BTW....the cake was fine, I decided to try it again, and I didn't have any reaction like the other night. I am going NO WHERE near that leftover meat though.....YUCK!!! I felt trully AWFUL!!!!!

CMCM Rising Star
I am asking this because last night I ate something and have NO IDEA what it was and I was SICK, gurlging stomach, nauseous, cramps like crazy, on the toilet but not going all night!!!! It was awful. I haven;t felt that bad in a long time!!! I still feel a little blech today, but just at food. I am almost afraid to eat, I've had popcorn and corn tortilla chips and juice mostly today.

I have eaten a very low gluten diet for years, without realizing it. I cut out all the rest in early November, had a few oops, with different reactions, some mild, some big, but not as bad as last night. I got mad over Christmas and ate a whole store bought cookie, got lethargic, crampy (although not as bad as last nignt) and had the big D for a day or so.

Drank about 1/2 cup beer while on the cruise last week without even thinking and was just a little gurgly and bloated for the evening, but nothing I couldn't deal with.

And then last night was hubby's b-day, made a huge dinner, there are only a few options as to what made me sick and they are so minor, I can't beleive I was as bad as I was. One choice is I made him a "real" cake, I made another for me to eat and I wonder if maybe some of his crumbs got on my cake. Second choice is that the prime rib I made (and was pre-seasoned) had something in it, like flavoring or etc. I checked the label before buying it, but did not notice anything that seemed out of the ordinary, and I only ate a few bites anyway, I prefered the crab legs and potato.

So it seems odd to me that a few bites of meat that may have been seasoned with something bad, or a slice of cake that may have had some gluten crumbs on it made me as sick as I was, especially since in the last several weeks, I have had a lot of gluten knowingly and not gotten that sick.

A friend suggested that MSG may have been the culprit, I don't know if it was in the meat or not, but is that even a possibility????

Thanks for any help anyone has to offer.....I am so confused by this. The differences in the reactions I get are so crazy, I just keep wondering if it IS all in my head!!!!!!!!

This is what drives me bonkers...the unpredictibility of reactions. I got my positive lab results back Jan. 18 and my son's birthday was Jan. 19. I made a big white cake for him, and being mad about the lab results I ate SEVERAL pieces of it. No ice cream because I KNOW ice cream will give me trouble. I also ate macaroni and cheese for dinner (my son's request for a birthday meal!!). Well, next day or two I felt kind of bad, some almost D, but nothing major. Just my usual low level feeling lousy. Then a day or two later I went to a Mongolian BBQ (where they say no MSG) and added a small amount of soy sauce mix to my food and got weak and had a couple of egg rolls. By the time I walked out the door of the restaurant I was bloated, felt lousy and had terrible stomach pains. Oddly enough, though, that stuff diminished over a couple of hours and my digestive system wasn't terribly messed up. Other times in the past I've eaten wheat, and several hours later I had such nausea I had to lay down for a couple of hours. Also the D episodes to go along with it. So go figure.....there doesn't seem to be any rhyme or reason to any of it.

Of of the books I read said when you are eating gluten (or whatever) your body actually builds up a kind of adaptation to it (or maladaptation!). Even though it is doing damage to you, your body deals with it the best it can. I guess people reach a saturation point, though, and their bodies can no longer adapt and that's when the symptoms get really bad.

For myself, in the last few years I have minimized the gluten and dairy I would eat, but didn't entirely eliminate it. So perhaps when I had the big reactions, those were just periods of time when I'd been eating more than usual or something. Wish I knew...

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,243
    • Most Online (within 30 mins)
      7,748

    Maya Baum
    Newest Member
    Maya Baum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.