Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stomach bloating and joint pain


mistermuffin

Recommended Posts

mistermuffin Newbie

I just gotta say that I'm really struggling with Celiac and healing from this diagnosis has been the hardest thing I've tried to do. I was diagnosed last year in May and I think it took until October or November of that year until I finally managed to get all sources of gluten out of my diet. My main symptoms are stomach bloating, brain fog, and really painful joints, and when I've got the joint pains I start to get seriously depressed. That's definitely the hardest part. While on the diet, the joint pains haven't gone away completely, but I felt like they were getting better. Lately, I'm struggling because I'm no longer certain. Last year when I was in the thick of it and really struggling with pain, I stopped playing guitar because my fingers just couldn't handle it. Two weeks ago I tried to pick up the guitar again and I felt fine while playing it for 30 minutes, but the next morning I woke up and my fingers were hurting like crazy again. It's got me second guessing myself and thinking that the only reason my joints were better is because I stopped using them like I used to. Idk. My rheumatologist has run every test in the book and says she doesn't see any sign of any rheumatic issue, but when I'm suffering with the joint pains and feeling depressed it's really hard to keep the positive attitude and trust my doctors. 

I guess I'm writing this now because I'm really struggling in this particular moment and I'm trying to reassure myself that this is just a bump in the whole healing process. I've been told that it can take months, or even years to recover from joint inflammation caused by celiac so I'm just gonna try and stay as positive as possible and not expect too much too soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran
(edited)

You are right, healing can take quite a while.  Part of the slowness can be caused by lack of important nutrients our bodies need to heal and function.  And also the immune system is very sensitive and can react to tiny amounts of gluten cross contamination.  The immune reactions don't stop right away but can continue for weeks or months.

Something you can try for joint pain is eliminating all nightshades and soy from your diet.  Nightshades are tomatoes, potatoes, peppers, and eggplant.  They all contain alkaloid chemicals that some people can not process well.  Soy is just plain bad for people IMHO.

Another important thing is vitamin D.  Vitamin D deficiency can cause joint pain and is fairly common in celiac.  You could try some Nature Made 1000 IU vitamin daily for a few months to see if it helps.  Boron may help also as it interacts with calcium and vitamin D.

Sweet potatoes are ok as they are not nightshades.  Black pepper is ok too.

Edited by GFinDC
cyclinglady Grand Master

Hang in there!  Listen to the wise advice from GFinDC.  It takes time to heal.  ?

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - DebD5 replied to Bebygirl01's topic in Related Issues & Disorders
      26

      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

    2. - DebD5 replied to ohmichael's topic in Super Sensitive People
      12

      Curious if I should quit my job

    3. - DebD5 replied to annirosex's topic in Related Issues & Disorders
      2

      Dealing with celiac and menstrual cycle

    4. - DebD5 replied to Katiexox's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Advice please

    5. - DebD5 replied to StevieP.'s topic in Related Issues & Disorders
      5

      Fodzyme


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,637
    • Most Online (within 30 mins)
      7,748

    Alice 6
    Newest Member
    Alice 6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DebD5
      I would like to say you saved me. I’ve been so sick the last few years, celiac since 1997. And reading your post about the other glutens/grains that can be sensitive to celiacs, is the only thing that has ever helped me. Since going off a carbohydrates/grains, even gluten-free ones, My chronic pain is  85% better. I’m actually losing weight which, that’s a long story but was impossible. I definitely am like you. Thank you so very much for posting. For some of celiacs I do believe this is the magic key. 
    • DebD5
      I 100% believe if you were sticking gluten items, especially flour, and breathed it in you could be glutened. I’m a celiac for almost 30 years. For the first ten years as a celiac I’d help my polish family make pierogis at Christmas time. I would only cook them at the stove and I didn’t touch anything with my hands using spoons. But the flour is in the air. And I’d get violently ill for 1-2 weeks after the last few years I did it. Wearing a back is a great suggestion and washing your clothes and showering when you get home. Good luck. And I’m so sorry your parents are emotionally supporting you. 
    • DebD5
      Have you had your thyroid checked? I was diagnosed at 24 with celiac. Lost my period permanently at 32. Found out six months after I lost my period that I had 1 ovary with 1 follicle. I had a child already but wanted more. Ended up having two more children with one ovary and one follicle. But my doctors theories are if I would have gotten my thyroid checked sooner and fixed through medication, maybe things would look different. Who knows. I only share my experience so you question your doctors and advocate. Always see an endocrinologist for thyroid care fyi. Actually always see the specific Dr for your specific ailments. I’d also consider seeing a gynecologist that specializes in female hormones/menopausal symptoms. Early ovarian failure happens in celiacs so I read  on the celiac disease center in Chicago website. 
    • DebD5
      This. Scott said it beautifully. Document and start a trial gluten-free diet. I can also recommend an inflammation dietitian I saw last summer if interested. She’s the only one who helped me on a path to healing through an elimination diet. Which is tricky with your little one. But I completely trust her, she’s very expensive though. I figured out I’m sensitive to so many things and follow a gluten-free diet religiously. Just had an upper and lower endoscopy/colonoscopy and zero signs of celiac disease so they said. I’m a celiac since 1997. But my 33 yr old daughter is very gluten intolerant since 20 yrs old. 
    • DebD5
      I so appreciate you talking about this. Honestly I’m so sick the most part of the last 15 years, I’m going to cross reference your list with my own. Celiac since 24 yrs old diagnosed in 1997. I just saw a specific celiac GI specialist at the celiac disease center in Chicago and when I told her all the food reactions I was having she said she believed me but there was no clinical evidence to support my reactions(I felt so unseen, she recommended I see a gut psychologist, what the heck). I react with severe body aches to bloating and dizziness to exhaustion:  most lectins except berries and low lectin veg, no eggs, no nightshade veg, no dairy, all carbohydrates including no gluten-free carbs or grains, though a little coconut flour seems ok now, need to test other non grains, certain alcohols that say gluten-free but looking into their process further I get horribly sick if distilled through a gluten grain example Costco vodka….. Because I had an upper and lower GI in 1997(I was 24 and 84#s) and my GI doc came back with celiac disease, this new doc suggested I may not be a celiac. Is running some blood test. Omg. I can’t even. I’m so beyond frustrated. 
×
×
  • Create New...