Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stomach bloating and joint pain


mistermuffin

Recommended Posts

mistermuffin Newbie

I just gotta say that I'm really struggling with Celiac and healing from this diagnosis has been the hardest thing I've tried to do. I was diagnosed last year in May and I think it took until October or November of that year until I finally managed to get all sources of gluten out of my diet. My main symptoms are stomach bloating, brain fog, and really painful joints, and when I've got the joint pains I start to get seriously depressed. That's definitely the hardest part. While on the diet, the joint pains haven't gone away completely, but I felt like they were getting better. Lately, I'm struggling because I'm no longer certain. Last year when I was in the thick of it and really struggling with pain, I stopped playing guitar because my fingers just couldn't handle it. Two weeks ago I tried to pick up the guitar again and I felt fine while playing it for 30 minutes, but the next morning I woke up and my fingers were hurting like crazy again. It's got me second guessing myself and thinking that the only reason my joints were better is because I stopped using them like I used to. Idk. My rheumatologist has run every test in the book and says she doesn't see any sign of any rheumatic issue, but when I'm suffering with the joint pains and feeling depressed it's really hard to keep the positive attitude and trust my doctors. 

I guess I'm writing this now because I'm really struggling in this particular moment and I'm trying to reassure myself that this is just a bump in the whole healing process. I've been told that it can take months, or even years to recover from joint inflammation caused by celiac so I'm just gonna try and stay as positive as possible and not expect too much too soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran
(edited)

You are right, healing can take quite a while.  Part of the slowness can be caused by lack of important nutrients our bodies need to heal and function.  And also the immune system is very sensitive and can react to tiny amounts of gluten cross contamination.  The immune reactions don't stop right away but can continue for weeks or months.

Something you can try for joint pain is eliminating all nightshades and soy from your diet.  Nightshades are tomatoes, potatoes, peppers, and eggplant.  They all contain alkaloid chemicals that some people can not process well.  Soy is just plain bad for people IMHO.

Another important thing is vitamin D.  Vitamin D deficiency can cause joint pain and is fairly common in celiac.  You could try some Nature Made 1000 IU vitamin daily for a few months to see if it helps.  Boron may help also as it interacts with calcium and vitamin D.

Sweet potatoes are ok as they are not nightshades.  Black pepper is ok too.

Edited by GFinDC
cyclinglady Grand Master

Hang in there!  Listen to the wise advice from GFinDC.  It takes time to heal.  ?

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,674
    • Most Online (within 30 mins)
      7,748

    Susieq2
    Newest Member
    Susieq2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • StevieP.
      Thanks so much for that information!! That helps me out alot!!
    • Scott Adams
      It’s completely understandable to feel confused and anxious—colonoscopy prep can feel overwhelming, especially when you’re already dealing with symptoms like loose stools and elevated inflammation markers (that high calprotectin and CRP definitely warrant further investigation!). Regarding the senna tablets: The warning about avoiding senna with IBD (like Crohn’s or colitis) is typically because it can irritate an already inflamed colon. Since you don’t yet have a confirmed diagnosis—but your brother has colitis—it might be worth calling your gastroenterologist’s office today to clarify if you should skip the senna given your symptoms and family history. Some clinics have an on-call nurse who can advise quickly. For the prep itself: Plenvu is strong, so if your bowels are already loose, the senna might be overkill. Stick to clear liquids tomorrow (broth, apple juice, etc.) and stay near a bathroom! For anxiety, remember the procedure itself is painless (you’ll likely be sedated), and the prep is the hardest part. Bring a phone charger or book to the clinic, and treat yourself afterward to something gentle on your stomach (like mashed potatoes or yogurt). Hang in there—this is a big step toward answers. You’re doing great advocating for yourself!
    • Scott Adams
      Great question! Wheat straw dishes are typically made from the stalks of wheat plants (which are naturally gluten-free) combined with a binding resin. While the straw itself shouldn’t contain gluten, the safety depends on how the product is processed. Some manufacturers may use wheat-based binders or process the straw in facilities that handle gluten, creating cross-contact risks. To be safe, I’d recommend reaching out to the company directly to ask: 1) If their wheat straw material is tested to confirm it’s free of gluten proteins, and 2) Whether the production line avoids cross-contamination with gluten-containing ingredients. Many brands now cater to gluten-free consumers and will provide detailed answers. If you’re uncomfortable with the uncertainty, alternatives like bamboo, ceramic, or glass dishes are inherently gluten-free and worry-free. Always better to double-check—your diligence is totally justified!
    • Scott Adams
      I’m so sorry you’ve been struggling for so long without the answers or relief you deserve. It’s incredibly frustrating to have a celiac diagnosis yet still face debilitating symptoms, especially after decades of strict gluten-free living. Your history of chronic health issues—SIBO, food allergies, recurrent infections, and now potential complications like nerve pain (left leg) and mucosal ulcers—suggests there may be overlapping conditions at play, such as autoimmune comorbidities (e.g., Hashimoto’s, Sjögren’s), nutrient deficiencies, or even refractory celiac disease (though rare). Stanford is an excellent step forward, as their specialists may uncover missed connections. The medical gaslighting you’ve endured is unacceptable, and while legal action is an option, focusing on thorough testing (e.g., repeat endoscopy, micronutrient panels, autoimmune markers, skin biopsy for dermatitis herpetiformis) might be more immediately helpful. Menopause can absolutely exacerbate underlying inflammation, so hormonal imbalances should also be explored. For symptom relief, some in the celiac community find low-dose naltrexone (LDN) or mast cell stabilizers helpful for systemic issues, but a functional medicine doctor (if accessible) could tailor supplements to your needs. You’re not alone in this fight—keep advocating fiercely at Stanford. Document everything meticulously; it strengthens both medical and potential disability claims. Sending you strength—this shouldn’t be so hard, and you deserve real solutions.
    • Scott Adams
      Since you have a confirmed celiac disease diagnosis alongside severe IgA deficiency, consulting an immunologist is a reasonable step to better understand the implications of your immune status. While many IgA-deficient individuals remain asymptomatic, the deficiency can occasionally be linked to increased susceptibility to infections, autoimmune conditions, or other immune-related concerns. An immunologist can assess whether additional monitoring or preventive measures (e.g., vaccinations, infection screening) are warranted. Given your location in Atlanta, academic medical centers like Emory University may have immunologists familiar with IgA deficiency, even if they don’t specialize exclusively in it. Telemedicine is also a great option—consider reaching out to specialists at institutions like the NIH, Mayo Clinic, or Cleveland Clinic, many of whom offer remote consultations. If you haven’t already, checking with the Immune Deficiency Foundation (IDF) for provider recommendations might help. It’s always wise to gather expert insight, especially since celiac and IgA deficiency can coexist with other immune dysregulation.
×
×
  • Create New...