Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Body Pain And A Drained Feeling


Kim UPST NY

Recommended Posts

Kim UPST NY Apprentice

Does any one eles free insaine bone pains? like in shoulder blades, hips, Spine? I was diagnosed Jan, 18th and I am trying to recover I eat one meal a day because I can't eat while I'm at work I feel pain , and kinda stoned by the end of the day and I just want to feel better. is this part of healing?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sillyyak Enthusiast

It is normal. I have a lot of bone pain as well. And the muscles in the backs of my legs are often sore. This is a daily thing. It is hard but things will get better. Give it time.

nederlandse Newbie

My advice also is give it time. You should stick with. Eat healthy, balanced gluten-free meals and in time you should feel better.

GL and hang in there.

It is normal. I have a lot of bone pain as well. And the muscles in the backs of my legs are often sore. This is a daily thing. It is hard but things will get better. Give it time.
Rusla Enthusiast

I have big time pain in my hips. Some days I can barely walk. I used to race walk and would like to get back to it but right now it is not feasible with the pain.

jerseyangel Proficient

I have hip pain that is especially bad in the morning. Sometimes it hurts to just roll over. The worst, though, is the neck pain that I get right at the base of my skull. That used to be horrible before I was Dx--it would be worse lying down and in the morning. Since being gluten-free, that is slowly improving.

jenvan Collaborator

Kim-

What kind of pain exactly? I think you wrote insane--so if the pain is excruitating and is affecting your ability to do everyday things or work, you should see a doctor. I deal with chronic pain due to Fibromyalgia, but I am able to continue my life and manage it with pain relieving techniques at home.

minibabe Contributor

I get a lot of pain in my joints. It is so bad sometimes that I have trouble walking. And I also walk up and down stairs all day long and carry a backpack that is about 20 pounds. I am exhausted by the end of the week. I know how you guys feel and it is really stinky :( .

Does anyone take anything for it like tyleno or motrin?

Thank you

Amanda NY


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Before being diagnosed, I was in bed most of the day due to my unbelievable bone and muscle pain. I was seeing a rheumatologist, in particular for my severe spinal pain. I had been diagnosed with fibromyalgia, also.

Once I went gluten-free, it was an improvement!! It took me a few months to "heal" and not have the everday pain. Now, I am ok. If I eat any gluten (miniscule amounts, like from cross contamination), the bone pain comes back. As long as I am 100% gluten-free, I don't have any symptoms of arthritis or fibro (luckily). I now know that I was misdiagnosed with various issues on my way to being diagnosed with Celiac. However, others like JenVan, have pain beyond the Celiac. Since you have only been gluten-free for a couple of weeks, I would see how your symptoms improve with the gluten-free diet. Then, re-evaluate and potentially look for other diagnoses.

I sure hope you feel better-I know that the pain can make you miserable. Unfortunately, nothing helped my pain (tylenol/advil, etc. or various arthritis drugs). The only two things that gave me momentary relief were hot baths and strong massages.

julie5914 Contributor

Yeah, those seem to be the celiac sore spots: shoulder blades, neck, hips/lower back/almost glute area.

I am six months out and still have trouble, but it has gotten better since cutting out dairy. Yoga helps me as well. I do take tylenol a lot. Just don't take Ibuprofen. I got a tempupedic pillow also.

ebrbetty Rising Star

I too get pain..somedays like today my elbow burns

julie, the spots you mention are also fibro spots..funny how many ppl with celiac have fibro..I'm one myself, was diagnosed 4 years ago..makes you wonder if it really is..like IBS, fibromyalgia is another "disease" doctors diagnose when they can't find anything else wrong.

I'm hoping as I heal my body pain will get better

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,590
    • Most Online (within 30 mins)
      7,748

    uhlissuh
    Newest Member
    uhlissuh
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.