Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Time/warner Ceo

Lisa

By Lisa
in Publications & Publicity

Recommended Posts

Lisa Mentor
Lisa
Posted

With a little reservation, I would like to say that I grew up across the street from her and I am still in contact with her family.

I can get information to her. Please keep in mind that she is in the business of finance with her position, but she could certainly direct our interest to writers that could help us in our publicity issues.

Talk about a big fish.

Can we brain storm and find a way to get Time Mag. to do an article, yes. I am not the same person I was before Celiac. I was alway proud of the way I spoke and wrote, it's not the same now.

Several, well worded letter mailed to Ann would get her attention and I could write a cover letter asking for reseach from her team to reseach Celiac Disease.

If we can get a packet together, I will send it off to her.

What do you all think?

Lisa

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

sounds like a good idea to me... I'm too sleepy to have a coherent thought tonight though...

Canadian Karen Community Regular
Canadian Karen
Posted

You can count me in! Does it matter that it's coming from Canada?

Karen

Lisa Mentor
Lisa
Posted
  • Author

It is late, and I will wait for other replys, US or Canadian. If so, a personal letter from those who have interest should be sent to my by personal E-mail....jimbaker@aol.com. in order to copy and add to the portfolio.

Personal stories about Dr.

McD' fiasco

Labeling issues

Health care issues

Unknowlegable Doctors!!!

Lack of Understanding of celiac disease

Children with developmental issues........etc.

Please address these issues to Mrs. Ann S. Moore, Chairman and Chief Executive of Time/Warner Inc. New York, New York.

Or pick up a Time Magazine and look up the address. I can get it to her.

mouse Enthusiast
mouse
Posted

You can also count me in. I will email you within the next couple of days.

Rusla Enthusiast
Rusla
Posted

I am in on this one too.

jenvan Collaborator
jenvan
Posted

Good idea--I would also mention something about the delay in diagnosis or not being diagnosed and how it causes many to develop diseases that were probably able to be prevented, and how that ends up costing them, insurance companies and the rest of us $$$ down the line.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
tiredofdoctors Enthusiast
tiredofdoctors
Posted

Count me in!

happygirl Collaborator
happygirl
Posted

Just so you know, there was a two page article about Celiac Disease in Time Magazine in July 2004. I don't have the name of the author off-hand.

The reason I know this is it is the reason I was diagnosed, thanks to my mom reading it :)

Turtle Enthusiast
Turtle
Posted

Brilliant!

Let me know how I can help!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,198
    • Most Online (within 30 mins)
      7,748
    Mya H
    Newest Member
    Mya H
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.