Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thank God For Insurance!


penguin

Recommended Posts

penguin Community Regular

I was casually looking over my health insurance website looking to see if there were any nutritionists took my insurance when I saw a statement of my claims...

HOLY SPIT, BATMAN! :o

The celiac panel cost $625.75 to run!?!?! :blink:

My doctor charges $90 for an office visit?!?!? :blink:

Sorry, I've never had my own insurance before...first real job and all B)

I only had to pay $2.90 out of pocket for my blood test...

Um, anyone know about what a consult with a nutritionist without insurance would cost? My insurance apparently is not very fond of nutritional counseling unless one is diabetic... <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

I had a crappy meeting with a dietician that cost me like $35 out of my own pocket. After having been a diagnosed Celiac for 3 weeks, I knew more than she did. :) I should have never paid, honestly.

Hope that your dietician/nutritionist is worth the $$!

SharonF Contributor

I'm going to echo what Laura said; except I think I paid FIFTY dollars for a useless dietician. Honestly, I think you'd do better to just look at this site. All my dietician did was print me out a bunch of mostly useless lists.

i canary Rookie

I paid $100 to find out I need to eat more protein. :angry: I didn't go back for the $50 follow up. (She was recommended as a gluten free diet expert --- she wasn't) :(

Rachel--24 Collaborator

I paid nothing to see the nutritionalist...and thats exactly what I got out of it...nothing. I guess I got what I paid for! :rolleyes:

tiffjake Enthusiast

I paid 30.00 for an allergist specialist that my doc recomended, and this guy told me to do the elimination diet....I was like "excuse me????"....and he wanted me to quit taking my claratin (for allergy reactions in the spring) and come back in 2 weeks for a "scratch test" for another 30.00.....all because I had questions about food allergies and intolerences....what a waste.....BUT, for you, I hope if you do go to a R.D. that you get a good one!

lovegrov Collaborator

When I was diagnosed I was first extremely ill and was in the hopsital for 11 days. Without insurance, my bill would have been almost $40,000. That was just the hospital bill.

richard


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Robbin

Sometimes insurance pays at a different rate for an "out of network" provider. Mine will pay at 75% if it is out of their network. I had my son to alot of different dieticians/nutritionists (we moved alot) and to tell you the truth, I did much better by printing my own lists, researching the libraries, comparing cookbooks, etc. With the internet, you have so many resources AND you know your own body and how different foods affect you. The huge resources on this forum are so helpful because you have the real experiences of a lot of people in the same situation. Actual experience with different menus and food options beats the heck out of someone looking at you and printing out a "cookie cutter" diet plan! Hope this helps and good luck!

mmaccartney Explorer

I think you need to argue your case more with your insurance company. In a nutshell, the ONLY treatment available for celiac disease is a gluten free diet! In order to apply that treatment you may need to see a nutrionist or dietician. If you have been formally diagnosed by a docter with Celiac disease, then your doctor can attest that the change in diet is your only medical option, and therefore is medically necesarry. The insurace should cover it at that point.

My guess is that they don't normally cover every person that wants to see a nutrionist or dietician BUT if you have bona fide medical necessity, backed up by your doctor, then I would guess that they have no choice but to cover your visits!!

Find a good one though... In Cleveland Ohio I understand the Trischa Lyons at the Metro Health Center is a registered dietician, and she is very active in the Northeast Ohio Celiac Support Group. I'd have to check to be 100% sure, but I believe she has Celiac disease as well!!!

Let us know how it turns out...

Moongirl Community Regular

I work for a health insurance company, and I have to say that most people do not know the costs of health care. They did a study and asked people how much they think their doctors visit actually cost, and they said $10!!! They thought it was really the co-pay amount. Well needless to say I think there is going to be a huge change in the way health care is administered in the next 5 or so years.

Anyways to agree with everyone here, I went to a nutrionalist as well, paid my $15 copay and what a waste, she gave me outdated sheets, and told me i had to eat more protein, blablabla. I knew way more than her going into the appt. I agree that this forum has been the most helpful and lifesaving thing. If I were you I would go out and buy a good book on celiac disease instead, much more informational and up to date!

penguin Community Regular
I work for a health insurance company, and I have to say that most people do not know the costs of health care. They did a study and asked people how much they think their doctors visit actually cost, and they said $10!!! They thought it was really the co-pay amount. Well needless to say I think there is going to be a huge change in the way health care is administered in the next 5 or so years.

Anyways to agree with everyone here, I went to a nutrionalist as well, paid my $15 copay and what a waste, she gave me outdated sheets, and told me i had to eat more protein, blablabla. I knew way more than her going into the appt. I agree that this forum has been the most helpful and lifesaving thing. If I were you I would go out and buy a good book on celiac disease instead, much more informational and up to date!

I have a feeling my insurance would cover a nuritionist if I fought for it, but I'm not officially diagnosed, I'm on a gluten-free challenge to see if that is what's wrong with me.

My doctor wasn't really psyched about giving me a reccomendation. She basically said that I could see a nutritionist if I wanted to, but I was much more likely to find all the information I need on the internet. My doctor is a smart lady ;)

About the insurance thing, I thought my doctor would charge $60-$70 for an office visit, but $90?!?! Dang!

New York state is kind of sneaking socialized medicine through the back door. It started with Child Health Plus, which is state subsidized real insurance (United Heathcare), then they did family health plus, and a program for seniors that did the same thing. It has nothing to do with medicaid, it's for people who make too much for medicaid but don't have insurance. I had it when I was a teenager and it was great.

I've always been really impressed with United, I have them now, and they're fantastic. My mom has it, too and she had a double knee replacement at a top hospital that specializes in joint replacements, and I think she had to pay $2000 for a $200,000 procedure :o . My boss' wife even had stem cell transplants (from her own marrow) covered!

debmidge Rising Star

For us 2.5 yrs ago it cost $160 for nutritionist to tell us what we already found out by medical textbooks and internet sources. Claims her family has celiac in it and knows about it & everything. We weren't impressed. Fortunately we got insurer to reverse their decision and pay for it. So we ended up paying $25 co pay. It wasn't even worth that much.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.