Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Geographic Tongue

Moongirl

By Moongirl
in Related Issues & Disorders

Recommended Posts

Moongirl Community Regular
Moongirl
Posted

I have had this for as long as i can remember, well i had it but had no idea what it was, my tongue would react to walnuts, pineapples, kiwis, and some other acidic things....

but just recently i did some research and realized it was GT.....i wonder if this is related to celiac disease?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Carriefaith Enthusiast
Carriefaith
Posted

I will get geographic tongue once in a while. I've noticed that I get geographic tongue when I have a lot of citrus.

AmandaD Community Regular
AmandaD
Posted

I get GT when I have citrus and 2 days before my period every month.

In my Celiac Sprue Association packet I was stunned to read it's a symptom of celiac. However, my mom has GT and does not have Celiac Disease. So, who knows.

I will get geographic tongue once in a while. I've noticed that I get geographic tongue when I have a lot of citrus.
Rachel--24 Collaborator
Rachel--24
Posted

I had geographic tongue for awhile but I just looked in the mirror and its gone. :huh: Maybe cuz I've been good on the diet? My mom has geographic tongue too...she's never been tested.

popoki321 Rookie
popoki321
Posted

I get this too.

I always get it when I eat pineapple but only sometimes with other citrus. When I was eating nuts I know that walnuts bothered me too! How interesting to learn it's a symptom of Celiac.

Moongirl Community Regular
Moongirl
Posted
  • Author

Is there anything to do to make it feel better or go away faster, ive read a lot of info on it, and it seems that people do all kinds of different things, one thing i noticed is that most people had a B-12 deficency. I think right before i was Dx my level was a 485 (which falls in the normal range, more on the lower end though). So i am completely lost with this GT thing. :blink:

skinnyminny Enthusiast
skinnyminny
Posted

I actually have the same thing and I notice it appears about a week before my period also, I eat lots of fruit so maybe the acid does it I am on a very strict gluten free diet so I dont think gluten is the cause I have been gluten free for 5 years, but if ya'll figure out what causes it I would LOVE to know!

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tiredofdoctors Enthusiast
tiredofdoctors
Posted

My son's pediatrician (a bazillion years ago) told me that GT was due to allergic rhinitis, and that the pH of the mouth changes because of the post-nasal drip. Don't know if it was true or not, the guy was a jerk . . .. :lol: . . . Lynne

Mango04 Enthusiast
Mango04
Posted

I get this too. I was going to post a thread asking about it. So far I notice that tomatoes, citrus and foods with yeast trigger it for me. I ate some celery earlier today and that for some reason made it feel much better. Propolis losenges make it feel better as well.

Moongirl Community Regular
Moongirl
Posted
  • Author
My son's pediatrician (a bazillion years ago) told me that GT was due to allergic rhinitis, and that the pH of the mouth changes because of the post-nasal drip. Don't know if it was true or not, the guy was a jerk . . .. :lol: . . . Lynne

As much as a jerk he was he might have been onto something, b/c my tongue really started acting up like a day before i got a full blown cold, post nasal drip was my first symptom. ;)

Mango04 Enthusiast
Mango04
Posted
As much as a jerk he was he might have been onto something, b/c my tongue really started acting up like a day before i got a full blown cold, post nasal drip was my first symptom. ;)

That's when mine started too. It started last October when I had a really nasty cold, and now it seems to be triggered randomly by certain foods.

2Boys4Me Enthusiast
2Boys4Me
Posted

What is geographic tongue?

kabowman Explorer
kabowman
Posted

I have had a geographic tongue my whole life - my mom asked the doc and he said that's what it is...nothing more, nothing less and I have never noticed any specific changes other than the appearance changes but nothing I can pinpoint to. However, since I have had it since birth, now almost 40, I don't really pay attention to it. I have horrible allergies and have had stomach problems since my teens.

My GT looks like fuzzy white-ish patches/large splotches covering a large portion of my tongue with other areas that look more normal. It doesn't do anything or taste anything or feel anything...more of a look. One of my two kids inherited - strangly, the one with the worst allergies.

Mango04 Enthusiast
Mango04
Posted

If I can actually feel it when I get it do you think it's something else? It doesn't hurt - it just feels kinda icky - for lack of a better explanation. I always know when it's there even before I look in the mirror.

Moongirl Community Regular
Moongirl
Posted
  • Author
If I can actually feel it when I get it do you think it's something else? It doesn't hurt - it just feels kinda icky - for lack of a better explanation. I always know when it's there even before I look in the mirror.

Could it be, maybe, but mine acts like yours, it kinda feels like when u burn ur tounge u get that weird texture or feeling, but it doesnt hurt. I know i have it too before i look in the mirror....strange thing this is...Triggered mostly to foods, i just thought about how much i love sour patch kids and when i was younger ate them all the time, and i used to get the biggest patches on my tongue..but it didnt bother me. they are just there.

  • 2 years later...
Ms. Skinny Chic Explorer
Ms. Skinny Chic
Posted

I have geographic tongue too and pernicious anemia

  • 6 months later...
kschauer Rookie
kschauer
Posted

It seems I have it too.

WHAT NEXT :angry:

nasalady Contributor
nasalady
Posted

I've had geographic tongue as long as I can remember....definitely since I was a small child.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748
    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.