Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This May Be A Stupid Question


ebrbetty

Recommended Posts

ebrbetty Rising Star

most of us are lactose intolerant because of the damage to the villi...my Dr told me its ok to have dairy if I take a lactose pill. I do eat a little dairy, mostly Kraft Cheese [lactose free] and once in awhile I have Romano but if the reason I can't tolerate dairy is because of the damage to my stomach am I keeping myself from healing or cont. to cause more damage when I eat it?

its the gluten that did the damage..so I guess its ok?????


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

If lactose causes you problems, don't go there. If you have damage to your villi, it will take quite some time to heal. It has taken me almost 6 months to start the healing process and to know when I am glutened or just healing.

I am just now beginning to know the difference. Hope this will be helpful. Be patient

I am not lactose intollerent and don't feel that I am in the minority.

Know your body and respond to what you react to.

Lisa

Lisa Mentor

PS: There are no stupid questions here. :)

lovegrov Collaborator

I agree about no stupid questions. I don't think the majority of people with celiac are lactose intolerant, but if you are, lay off it for a while. Most people who ARE intolerant solely because of celiac can eventually tolerate dairy again. Not all, but many.

richard

ebrbetty Rising Star

thank you both

lisa, do you mean it took 6 months to start feeling better? I've been gluten-free about 2 months and get so upset that my belly still hurts everyday, better though

lovegrov Collaborator

Everybody is so different. I never had the hurting belly and rarely had the diarrhea, but I was extremely anemic and was basically dying of malnutrition. It was 10 weeks before I had the energy to return to work at a desk job and months before I was close to "normal."

richard

nettiebeads Apprentice

No, the diary you ingest isn't damaging your intestines. It's your body's reaction to gluten that does it. I was in the normal catagory of celiac (I think I just made that up) anyhow, after your villi heal, they will start to produce the lactic acid needed to digest diary. But I think it's very individualistic as to how much healing and how long it takes and how much diary you'll be able to tolerate afterwards. I cut out dairy for 3 months, then tried it, still had a little problem with it, but not the severe stomach cramps like before. I still don't eat as much of it as I used to, but when I do ingest diary, I'm fine. (Can't live w/o Blue Bunny ice cream)

Annette


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

I do agree with richard, which I usually do, everyone is different.

I only had the sharp, knife pains before diog., after going gluten free (or as best as I was able.), I had the D issue. It was months before I would go out of town. Living in a very small town, sometimes I could not make it to the Post Office. Worse yet, standing on my back porch, the bathroom was 20 seconds away, I got there in 25 seconds. Celiac can be a very humbling experience. I have thrown out 2 pairs of my favorite jeans and two of the best lipsticks that I did not have the will to retrieve.

This is the best week that I have had in a long time. I am getting the feel for this. I really don't miss much. I didn't like bread, pizza, beet, pasta. I think that my body was always telling me something.'

So the lesson to this story is to, always listen to your body. It will tell you what it needs.

Be patient, and diligent.

Hope th is will be helpful. - Lisa

ebrbetty Rising Star

thanks again guys.. :D

penguin Community Regular

The reason most celiacs are lactose intolerant is because the villi are flattened, and the villi produce lactase, which is the enzyme that breaks down lactose.

Lactaid pills (and milk) are full of lactase to help you digest the lactose. If it bugs you, don't eat it.

ebrbetty Rising Star

well I knew that villi produce lactase and that they get damaged from celiac disease I was just wondering if eating dairy continues to damage the villi or should I say keep it from healing.

sorry if my question bugged you..was just curious if eating it will do more damage

penguin Community Regular
well I knew that villi produce lactase and that they get damaged from celiac disease I was just wondering if eating dairy continues to damage the villi or should I say keep it from healing.

sorry if my question bugged you..was just curious if eating it will do more damage

Sorry if I misinterpreted your quuestion, the saltines made me pretty stoned

ebrbetty Rising Star

no problem...you just seemed a bit upset by my question

have a great night :D

penguin Community Regular
no problem...you just seemed a bit upset by my question

have a great night :D

Not bugged, upset, or otherwise bothered by your question. :lol::lol:

It's just that all of my wit has gone to my tummy to try to digest my stupidity :blink:

jerseyangel Proficient

Betty, The way I understand it is, when we have damaged villi, we can not digest the lactose in the milk or dairy products. I don't believe that consuming the dairy will continue to harm the villi or impede healing. I think it's more a matter of stopping it for a while to give the system a chance to heal and settle down a bit, and then if you can tolerate it, it's ok. If it's a lactose problem, there is no resulting damage.

ebrbetty Rising Star

Chelsea I hope your belly feels better very soon!!

patti, thanks, thats what I wanted to know..as I said I eat a little dairy and the lactose pills I got from England work great. I just didn't want to mess myself up more than I already am lol

loraleena Contributor

What many people don't know is that a lot of people are lactose intolerant due to the pasterization and homogenization of dairy. This kill all the enzymes we need to digest it. 50 years ago when dairy was not pasterized lactose intolerance was almost unheard of. Please go on the net and read about the benefits of raw dairy. I eat only raw cheese with no problems. But give me regular dairy and my stomach acts up. You can get raw cheese at whole foods - does not taste different - actually better. Raw milk can be found at local farms. Look on the net.

penguin Community Regular
What many people don't know is that a lot of people are lactose intolerant due to the pasterization and homogenization of dairy. This kill all the enzymes we need to digest it. 50 years ago when dairy was not pasterized lactose intolerance was almost unheard of. Please go on the net and read about the benefits of raw dairy. I eat only raw cheese with no problems. But give me regular dairy and my stomach acts up. You can get raw cheese at whole foods - does not taste different - actually better. Raw milk can be found at local farms. Look on the net.

In the US, it's hard to find raw cheese, because it's illegal to sell cheese that is aged less than 60 days. Stupid USDA <_<

Raw milk is legal to sell in a little over half the states...

Here's a site with a listing: Open Original Shared Link

ebrbetty Rising Star

you can get the raw cheese at whole foods? what is the brand name?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,246
    • Most Online (within 30 mins)
      7,748

    Kathleen weber
    Newest Member
    Kathleen weber
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Zuma888, The antibodies produced in response to gluten are made in the intestines.  When the body is provoked sufficiently, the antibodies overflow out of the intestines and into the blood stream.  Once in the blood stream, the antibodies can be measured with tTg IgA tests.  Three grams of gluten per day for two weeks minimum is enough gluten to make you feel the symptoms of having been glutened, but the antibodies are not in sufficient quantity to be measured in the blood. Ten grams of gluten per day for a minimum of two weeks is required to get the anti gluten antibodies at a high enough level in the blood stream to be measured by tTg IgA tests. So, no, occasional cross contamination or (heaven forbid) intentional cheat days will not be sufficient for tTg IgA testing.  You will still be making antibodies which will still be causing inflammation and damage to the intestines and body.  Histamine is released as part of the immune response to gluten.  High histamine levels lead to food sensitivities, brain fog, and body aches.   The damage done to the gastrointestinal tract affects the absorption of essential vitamins and minerals.  Malabsorption of fats can cause changes in stools.  Insufficient absorption of vitamins and minerals can cause damage to other organs like the thyroid if it can't get enough Selenium, iodine, iron, zinc, and Thiamine.  Brain fog and fatigue can be caused by low Thiamine and other B Complex vitamins.  Vitamin D is needed to regulate the immune system.  One gene is all that's needed to develop Celiac disease.  I know a Celiac diagnosis is a change that can be difficult to get your head around.  Many people go through the five stages of grief.  One stage is "bargaining".  Sounds like you're stuck there.  Every little cheat counts to your detriment.  But sticking to a gluten free diet, makes every meal a success.   Read the comments below the article... Best wishes!  Keep us posted on your progress!
    • Scott Adams
      No, I would not say this at all. If you were diagnosed with celiac disease and were gluten-free for a while, you could have gone into remission. Everyone's body is different, and some celiacs may be able to get regular contamination and not end up with damaged villi and positive antibody tests, while others who ingest tiny amounts will relapse and have full blown symptoms and flattened villi.  Only a full gluten challenge would reveal where you are at this point. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Pablohoyasaxa
      Great  post. The skin issue can be intolerable. I have been taking niacinamide for the past month and have improved with respect to the blistering lesions. 
    • knitty kitty
      I've found taking Niacin Vitamin B 3 in the form that causes flushing (nicotinic acid) helps immensely to clear my skin.  The flushing is harmless and goes away the longer Niacin is taken.  The flushing (vasodilation in the skin) helps the body get rid of the tTg 3 IgA antibodies that cause the blisters.  TTg 2 IgA antibodies are found in the blood and are measured in diagnostic testing for Celiac.  People with Dermatitis Herpetiformis make tTg 3 as well as tTg 2 antibodies.  Niacin Vitamin B3 in the non flushing form niacinamide also works without the flushing, but takes a bit longer.   I also avoid foods containing high levels of iodine because iodine activates the tTg 3 IgA antibodies to become more active and make more blisters.  I avoid kelp (nori, seaweed) and crustaceans,  eggs, dairy products, and iodized table salt.   Niacinamide and Nicotinic acid are water soluble and harmless.  I'd much rather take Niacin than Dapsone with scary side effects.  
×
×
  • Create New...