Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Background Heritage Question


CMCM

Recommended Posts

CMCM Rising Star

After reading all my celiac realted books, they keep stressing that celiac disease has a higher prevalence in people with Northern European/Irish/Italian heritage. I'm curious about that....what are your backgrounds on both parents' sides?

I'll start....for me, Swedish on my Dad's side, and on my mom's side Germanic/Russian/English. So I definitely fit that profile.

How about the rest of you?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bonnie Explorer

I was born in Scotland and my heritage is all Scottish!!

Yvonne

taweavmo3 Enthusiast

Part Irish from my mother's side, and Greek from my father's side. I'm not sure where the celiac genes came from.....my mom's entire family has intestinal issues, but my father's family on the maternal side all had stunted growth and late maturity. His mother was only 4'10. So maybe both, who knows. I would love to have them all gene tested, but I don't think I can get everyone to cooperate! All of my kids (only one actually tested +) have gluten reactions and are now gluten free. My brother, me and I believe my late sister (if she was still here to be tested, she was bipolar, and only 4'9 at maturity) have celiac as well. Only my other older sister seems symptom free. So it's very pervasive in my family, which I think is really interesting.

RoseNNJ Apprentice

100 percent Italian :D

hungryforlife Apprentice

My Mom's Side

GM (Scotch-Irish) Grandfather:(English- ancestor was John Wesley)

Dad's side:

Don't know? His last name was Ellis so I assume English.

jerseyangel Proficient

Italian--both sides :D

penguin Community Regular

sweedamickacanuckaho

Sweedish (dad)

Irish (mom)

French-Canadian (dad)

Native American (mom)

Blindingly pale, easily burned, redhead personality :D

Do I fit the profile, or what :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Moms side....Italian/Spanish

Dad's side....Mexican (I dont know if there's anything mixed in with that)

It had to come from my mom. <_<

mrsnj91 Explorer

Wow this is interesting!

We are having my DD tested for this so I will give you HER parents background ;) .....

Me-Irish, Spanish and American Indian

Daddy's-English and Polish

Just from the few responses....your books seem right! I will have to show my husband this as we were just talking about this over the weekend!

Added: I was looking over the responses again and noticed that some said only one side that fit that discripition. I heard a ped. GI speak this weekend and she said that BOTH parents have to carry the gene. Not necessarily have Celiac but carry the gene(s). Interesting how some on here have one parent that doesn't fit the 'mold'. Just some food for thought! I just found this post interesting.

CMCM Rising Star

Since the theory is that those areas most recently exposed to gluten/wheat would have the HIGHEST rates of celiac disease, and those areas which have eaten gluten the longest have the lowest rates (because natural selection over several thousand years has been eliminating the celiacs!!!), I would expect the very highest rates to be in Native Americans!!! There was a woman here back in January who was Native American, but I haven't seen her around for awhile. I wonder how many others are celiac and don't know it?

Another interesting thing....the original cultivated wheat did not have nearly as much gluten as the wheat does today. Because of the desirable qualities of wheat in cooking (lightness and puffiness in baking), wheat has actually been developed to have a much higher gluten content that the original wheat did, so I guess people are more affected now.

Anyhow, this is all intereting....

francelajoie Explorer

Both parents are French Canadians

mrsnj91 Explorer

The GI said that North Europian decent where at higher risk. But if you go by your theory with the American Indian then I gave a double whammy there! LOL! My guess is that American Indians had more of a corn intake as their base for grain?

Interesting on the grains evolving. I can see that.

Ursa Major Collaborator

100% German

DingoGirl Enthusiast

One-quarter Norwegian and the rest, Scottish, Irish, English.

I think there was another thread juts like this running the last few days, also inspired by that book (I'm waiting for my copy!). Seemed to me that it had gotten to be several pages....check it out!

Rachel--24 Collaborator
Added: I was looking over the responses again and noticed that some said only one side that fit that discripition. I heard a ped. GI speak this weekend and she said that BOTH parents have to carry the gene. Not necessarily have Celiac but carry the gene(s). Interesting how some on here have one parent that doesn't fit the 'mold'. Just some food for thought! I just found this post interesting.

Someone can correct me if I'm wrong but as far as I know both parents do not need to have a celiac gene in order for the child to aquire a gene. You only need one Celiac gene to develop the disease and you can get that from either parent.

CMCM Rising Star
Someone can correct me if I'm wrong but as far as I know both parents do not need to have a celiac gene in order for the child to aquire a gene. You only need one Celiac gene to develop the disease and you can get that from either parent.

I asked that of Dr. Fine when I got my test results, and he confirmed that you only actually need one celiac gene to have a predisposition. You get one gene from each parent, so you could get one celiac gene, plus a second gene from the other parent that was some non-gluten related gene, so you either could get celiac or you might not, 50% chance I guess.

gfmelissa Apprentice

My parents are portuguese and the other is english/german.

I am wondering more about that GI you heard speak that said both parents have to be carriers of the gene? did they mention what the theory is on that? If not thats cool, just wondering.

danikali Enthusiast

I don't fit the profile. I'm mostly Polish and a little bit German. Unless somewhere down the line there is something else that I don't know about. But how could you not know?

CMCM Rising Star
My parents are portuguese and the other is english/german.

I am wondering more about that GI you heard speak that said both parents have to be carriers of the gene? did they mention what the theory is on that? If not thats cool, just wondering.

No no no....I specifically asked Dr. Fine about this once...both parents do not have to give you a gene. You need only ONE gene to have problems. If you have TWO genes (one from each parent) your likelihood of having problems is far greater, however. And there are some people with no identified genes that have celiac disease, so there are obviously some genes that are related to this which have not yet been identified. I think it's about 1% with that scenario.

Smunkeemom Enthusiast

wow. it's difficult to answer. It's my girls who have celiac, and other people in my family. My mother is Irish/Scotish, and that's the side the celiac is on, so I suppose that's the answer.

luvs2eat Collaborator

Both parents are Scottish/Irish.

Angelina Newbie
After reading all my celiac realted books, they keep stressing that celiac disease has a higher prevalence in people with Northern European/Irish/Italian heritage. I'm curious about that....what are your backgrounds on both parents' sides?

I'll start....for me, Swedish on my Dad's side, and on my mom's side Germanic/Russian/English. So I definitely fit that profile.

How about the rest of you?

1/2 Irish from my father (who i dont know)

Scottish, Native American.. Mother side

I know who I got my genes from! grrr

nikki-uk Enthusiast
No no no....I specifically asked Dr. Fine about this once...both parents do not have to give you a gene. You need only ONE gene to have problems. If you have TWO genes (one from each parent) your likelihood of having problems is far greater, however. And there are some people with no identified genes that have celiac disease, so there are obviously some genes that are related to this which have not yet been identified. I think it's about 1% with that scenario.

I was trying to explain this to my 16 yr old son (who has symptoms and we want to get tested)

He wanted to know the chances of him having celiac disease.(His Dad has biopsy proven celiac disease-no gene test though)

I (tried) to explain to him that assuming his Dad has one of the two HLA markers that predispose you to celiac disease,he may have passed that gene onto him(but not necessarily so).

And even if he has passed the gene onto him,there has to be a 'trigger' for celiac disease to occur(illness, huge stress etc.)

And of course I (his Mum) may carry the gene too,(I don't have celiac disease).

In which case he would have 2 genes for celiac disease,or 1 or none.

Did everyone follow that? :blink::lol:

CMCM Rising Star
I was trying to explain this to my 16 yr old son (who has symptoms and we want to get tested)

He wanted to know the chances of him having celiac disease.(His Dad has biopsy proven celiac disease-no gene test though)

I (tried) to explain to him that assuming his Dad has one of the two HLA markers that predispose you to celiac disease,he may have passed that gene onto him(but not necessarily so).

And even if he has passed the gene onto him,there has to be a 'trigger' for celiac disease to occur(illness, huge stress etc.)

And of course I (his Mum) may carry the gene too,(I don't have celiac disease).

In which case he would have 2 genes for celiac disease,or 1 or none.

Did everyone follow that? :blink::lol:

It makes perfect sense to me. Awareness is the key....but knowing the genes from both parents is great because then you really have a firmer idea. Obviously if you have been diagnosed celiac you have at least ONE gene, but if like me, you find out you have TWO genes, then you know for sure your kids have at least one problem gene. For me, the wild card is my husband....being Irish & Norwegian he just might have one, but we don't know. I guess getting one celiac/gluten gene from each parent might mean your likelihood of eventual problems is greater than with just one. Since I have two, I therefore know my two kids have one or the other of my genes, therefore they have the predisposition at the very least and should be watching for it throughout their lives. Lacking any sort of real symptoms now, they certainly don't want to change their diets or even think about it much, but down the road if something triggers symptoms, at least they know where to start looking.....whereas I was kind of oblivious to the idea for most of my life! :D

Guest mvaught

Irish

French

Native American

German

Welch

luck of the Irish?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,088
    • Most Online (within 30 mins)
      7,748

    Clare Durham
    Newest Member
    Clare Durham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.