Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Steroids?


Mahee34

Recommended Posts

Mahee34 Enthusiast

has anyone ever been put on steroids by their GI to help cope with stomach problems after being gluten free for awhile?? I'm very concerned with gaining excess weight that comes with the whole beginning steroids and just wanted to know if anyone has experience with this and advice? thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jnifred Explorer

I use prednisone aabout every 6 weeks for arthritis flare ups. as long as I don't stay on it for long periods of time I have never had a big problem with it. I am usually not on them for longer than a week.

My dad was on Prednisone for years and he abused it a lot, took way more than prescribed and shrunk 8 inches in one year, and had that red puffy face, didn't gain too much weight, but had the other stuff going on. As long as your doc watches you and etc, and you follow his directions I wouldn't be too concerned about it. Of course that also depends on the dose.

If my flare up is bad (as it is now) I start with 30 or so mg of prednisone and taper down each day after the swelling subsides, usually only one or two days that high, which isn't really that high. I was on 10 mg a day for several months last year and was fine, no side effects at all.

Good luck, hope that answered some of your questions.

lovegrov Collaborator

No steroids for celiac alone.

richard

Mahee34 Enthusiast

i wasn't saying that steroids are given to help with my celiac. there are other issues going on that are causing problems with my stomach and steroids is aparently the solution. I'm not a doctor and I don't really claim to be, Mine if trustworthy and i listen to him.....i just know that steroids in general cause people to gain weight and that my stomach is messed up thanks due to celiac disease. see the connection.

jerseyangel Proficient

I have taken steroids in the past--when I was still sick with what the doctors thought was sinus/allergy infections. I used Prednisone and had injections of Decadron. The side effects I had were primarily facial puffiness and weight gain. My face was noticably fuller. I really don't remember any stomach issues related to the steroids--but like I said, I was still undiagnosed Celiac, so it's hard to say now. Hope that helps :)

happy4dolphins Enthusiast

I have taken Prednisone 2 x now. Once this last summer for a poison ivy outbreak. I was takig 20 mg 3 x a day for three days, and then began to tapper down. It didn't help the ivy at all, but did make me crazy by day three. GIGGLE! I had no idea where I was when I was driving back from the other side of town. I got very emotional on it too.

Now, for my second time, I was taking 10 mg once a day for inflamation of the lower spine and pelvis. By day 2, I had no pain and I was back walking and doing every thing normal again. I started taking it on Feb 24, 2006 and began weaning off of it just last week. I did well until about two weeks ago and then I started getting impulses, eating a ton, and crazy in the head again (disconnectedness).

That's my 2 cents worth :)

Nicole :ph34r:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,915
    • Most Online (within 30 mins)
      7,748

    marcusdarrell1
    Newest Member
    marcusdarrell1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
    • Xravith
      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.