Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Toe & Foot Cramps


Guest cassidy

Recommended Posts

Guest cassidy

For the last two days I have had toe and foot cramps. They start in my toes and go up my foot. If it doesn't work itself out, I've even gotten them up to my calves. Sometimes they are in both feet at the same time. It has happened 2 days a row this week and several times during each day. I think tennis shoes and tight socks make it worse, so I try to stay away from those. I drink tons of water and take vitamins. Does this happen to anyone else? Do you know how to get rid of them? Any ideas what causes this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mouse Enthusiast

How long have you been gluten-free? I used to get those several times a week and mostly when I was sleeping. Several of the toes would actually shoot straight up towards the ceiling. I would wake up screaming as the muscles would just tie themselves in knots. After I went gluten-free, I found that I have only had a couple for this past year. The only thing that I found that would get my feet, ankles and sides of the lower legs, back to normal was ice wraps. I bought these velcro wraps that have ice packs that are inserted. I still keep the ice packs in my freezer for whenever I need them. The wraps (including ice packs) are blue and you can get them at the drug store without a RX. Good luck.

trents Grand Master

Have you had your electrolytes checked?

How's your lower extremity circulation? Are you diabetic?

ebrbetty Rising Star

I've had them for the last few years, my pain Dr told me its all part of my Fibro,[most ppl with fibro get these] the last few months I get them about 5 days a week, up to 6 times a day, its very painful.

I guess I'm so used to body pain from the fibro, I have learned to live with them. celiac disease causes lots of other problems and this may be one of the symptoms for you, but for me its not because of celiac disease, we can't blame every physical ailment on celiac

plantime Contributor

I always get these cramps. I also get them in my back, across my shoulders. One doc told me that for some people, the cramps just happen, and the reason is never found. When I get them in my feet and legs, I get rid of them by consciously tightening the muscles involved, and letting it just work out. Painful, but it gets rid of them, and the muscles feel better. For my back, I can only suffer. I had muscle relaxers, but they were stolen some time ago, and I can't get a refill. Hot showers help, though.

tarnalberry Community Regular

you might also consider getting a deep tissue foot massage. it sounds like you've got excess nerve firing going on in your toes/feet, and a deep tissue massage may be able to help relax the muscles that are first tightening and staying tight, if you catch it early. this is, at best, an educated guess, though.

Martyg Apprentice

Before I was diagnosed I would get them several times a week. I thought it was from wearing higher heels for work. I wore lower heels and that did not help.

I was diagnosed July 2005 and have been gluten free. The foot/leg cramps have gotten better, but seem to more aggravated by tighter shoes or socks. In the summer when I wear mostly sandals, it does not happen as much.

I do believe it is tied in some way to the gluten, but I have been gluten free and still get them sometimes, but not quite as bad. Sure I have other food allergies too.

Good to hear it's not just me.

Marty


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

I still get cramps in my feet and sometimes my calves while lying in bed. I can usually feel one coming on in my foot, and can 'head it off' by flexing my feet.

teankerbell Apprentice

Since going gluten-free, I get the cramps - toes, feet and sometimes into the calves. :blink:

mamaw Community Regular

I too started to get these painful foot cramps after being gluten-free for over 2 1/2 years. My feet just starts to get like its paraliyzed or like a spasm that will not go away....

mamaw

trents Grand Master
Since going gluten-free, I get the cramps - toes, feet and sometimes into the calves. :blink:

Cassidy,

I ran across this today and I was reminded of your post: Open Original Shared Link

Here's the relevant part of the article:

Adults

Malabsorption. The varied signs and symptoms of malabsorption may be caused by celiac disease or many other diseases. Mild malabsorption may be asymptomatic. With its gradual onset, the classic manifestations of flatulence and bulky, greasy and foul-smelling stools may not be recognized by the patient as signs of celiac disease. Malabsorption should be suspected in any patient with weight loss and diarrhea, and the signs and symptoms of specific vitamin or nutritional deficiencies. The latter include visual disturbances, neuropathy, anemia, osteopenic bone disease, tetany, hemorrhagic diathesis or infertility.

The Columbia online encyclopedia defines tetany as:

(tt´n) (KEY) , condition of mineral imbalance in the body that results in severe muscle spasms. Tetany occurs when the concentration of calcium ions (Ca++) in extracellular fluids such as plasma falls below normal. The nervous system becomes increasingly excitable, and nerves discharge spontaneously, sending impulses to skeletal muscles and causing spasmodic contractions. Mild tetany is characterized by tingling in the fingers, toes, and lips; acute tetany, consisting of severe muscular contractions, tremors, and cramps, can result in death. Abnormally low extracellular calcium ion concentration can result from failure of the parathyroid glands to release parathyroid hormone, the substance responsible for the regulation of calcium concentration in the body; a deficiency in vitamin D, which facilitates calcium ion absorption from the gastrointestinal tract; or alkalosis, an excessively alkaline state of body fluids resulting from persistent vomiting, rapid breathing, or excess activity of the hormone aldosterone. Most forms of tetany can be treated with calcium, vitamin D, and a controlled diet. Muscle tetany is also caused by the pathogenic bacterium Clostridium tetani in the disease tetanus.

paulasimone Rookie

i get the toe cramps with a VENGEANCE! except way, way less now that i'm gluten-free.

they suck - usually my second toe, sometimes third, will just crank over to one side over another toe and just will not go back. :blink: i have found no remedy but time. i rub them too, but that just might occupy me rather than help. :rolleyes: i remember one of the worst cases was when i was little and on family vacay skiing - toe cramp in the ski boot! aiiii! :o

:)

paula

Bonnie Explorer

I also get terrible cramps in my toes and feet.

The only thing that works for me is Magnesium. I stopped taking it for a few days and the cramps came back!

Yvonne

Dlapham celiac & DH Newbie
For the last two days I have had toe and foot cramps. They start in my toes and go up my foot. If it doesn't work itself out, I've even gotten them up to my calves. Sometimes they are in both feet at the same time. It has happened 2 days a row this week and several times during each day. I think tennis shoes and tight socks make it worse, so I try to stay away from those. I drink tons of water and take vitamins. Does this happen to anyone else? Do you know how to get rid of them? Any ideas what causes this?

Yes I have had them off an on for years. They seem to get worse when my system is not balanced, which is after being "glutened" or in the summer when sweating a lot and some times it just gets off for reasons I can't identify. I have found that walking and messaging the area and using a product called "Cramp Cream" or with "Absorbine JR" will stop them. When I had a spinal cord tumor about 7 years ago, they got so bad it was unbearable until I discovered that if I put several ceramic magnets around my legs and arms, with the negative poll to the skin it would reduce them by 60 to 90%. I know that that sounds like snake oil, but there is a valid explanation behind it. The short version is that it increases the oxygen level in the tissue in the area of the magnet.

I have also found that my electrolytes are a trigger, when they are off, esp potassium, and sodium. Possibly one of these will help.

Dlapham celiac & DH Newbie
Cassidy,

I ran across this today and I was reminded of your post: Open Original Shared Link

Here's the relevant part of the article:

Adults

Malabsorption. The varied signs and symptoms of malabsorption may be caused by celiac disease or many other diseases. Mild malabsorption may be asymptomatic. With its gradual onset, the classic manifestations of flatulence and bulky, greasy and foul-smelling stools may not be recognized by the patient as signs of celiac disease. Malabsorption should be suspected in any patient with weight loss and diarrhea, and the signs and symptoms of specific vitamin or nutritional deficiencies. The latter include visual disturbances, neuropathy, anemia, osteopenic bone disease, tetany, hemorrhagic diathesis or infertility.

The Columbia online encyclopedia defines tetany as:

(tt´n) (KEY) , condition of mineral imbalance in the body that results in severe muscle spasms. Tetany occurs when the concentration of calcium ions (Ca++) in extracellular fluids such as plasma falls below normal. The nervous system becomes increasingly excitable, and nerves discharge spontaneously, sending impulses to skeletal muscles and causing spasmodic contractions. Mild tetany is characterized by tingling in the fingers, toes, and lips; acute tetany, consisting of severe muscular contractions, tremors, and cramps, can result in death. Abnormally low extracellular calcium ion concentration can result from failure of the parathyroid glands to release parathyroid hormone, the substance responsible for the regulation of calcium concentration in the body; a deficiency in vitamin D, which facilitates calcium ion absorption from the gastrointestinal tract; or alkalosis, an excessively alkaline state of body fluids resulting from persistent vomiting, rapid breathing, or excess activity of the hormone aldosterone. Most forms of tetany can be treated with calcium, vitamin D, and a controlled diet. Muscle tetany is also caused by the pathogenic bacterium Clostridium tetani in the disease tetanus.

Thanks Trents for this information. The above explanation is very interesting. I will try to see what effect extra supplementation will have on the condition.

elfstones Newbie

I get cramps in my toes and feet also. As a matter of fact I get them from my neck to my feet. I have also been dx with MS.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748

    Blough
    Newest Member
    Blough
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.