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Hmmm. 9 People Read This And No Advice?

JessicaB

By JessicaB
in Coping with Celiac Disease

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JessicaB Explorer
JessicaB
Posted

come on guys!

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psawyer Proficient
psawyer
Posted

I read your query, one of now at least 15 who have, but I don't have any relevant information to post on the topic. I had to read the topic to see what the question was, and once I saw the question, I knew that I did not know anything that would help you. I am sure I am not the only person who reads a lot of posts without responding because I don't have anything useful to contribute to the topic. I do hope that someone who can help reads and responds.

JessicaB Explorer
JessicaB
Posted
  • Author

sorry, im just confused and wish someone had the same situation as me :)

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

You can't expect less than an hour to pass and have a lot of people resond. Clicking a topic doesn't mean someone has actually read it. It's night time and it will be awhile until you get a lot of answers.

plantime Contributor
plantime
Posted

Ditto Peter. If I don't have anything different or of value to add, why should I post?

Lollie Enthusiast
Lollie
Posted

I think I missed something, What was the question?

Lollie

plantime Contributor
plantime
Posted

I don't know. I thought she would repost it in her opening post, but she didn't. There are a lot of new posts each time I come on, so I could very well have just missed it.

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jerseyangel Proficient
jerseyangel
Posted

I'm glad I'm not the only one who is confused by this.

tiredofdoctors Enthusiast
tiredofdoctors
Posted

I'm confused, too . . . :huh: Also, if no one has any information with regard to a subject, they're not going to BS you and tell you something that could potentially harm you.

Canadian Karen Community Regular
Canadian Karen
Posted

I think she is referring to this thread:

Open Original Shared Link

Karen

mouse Enthusiast
mouse
Posted

Everything I have read says that you cannot have a false positive bloodwork. You can only have a false negative test. Your doctor who did the blood work is 100% right and you do have Celiac. As far as the biopsy I cannot answer that as I never had the test. My doctor was back in the stone ages and did not think it was necessary. The only reason I can see to have a biopsy after a positive blood test is to see how much damage has been done to the Villi. I wish I had done it for that reason alone. But at the time I had never heard of Celiac and was extremely ill at the time of diagnosis.

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      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
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      By trents · Posted

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
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      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
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