Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hmmm. 9 People Read This And No Advice?

JessicaB

By JessicaB
in Coping with Celiac Disease

Recommended Posts

JessicaB Explorer
JessicaB
Posted

come on guys!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

I read your query, one of now at least 15 who have, but I don't have any relevant information to post on the topic. I had to read the topic to see what the question was, and once I saw the question, I knew that I did not know anything that would help you. I am sure I am not the only person who reads a lot of posts without responding because I don't have anything useful to contribute to the topic. I do hope that someone who can help reads and responds.

JessicaB Explorer
JessicaB
Posted
  • Author

sorry, im just confused and wish someone had the same situation as me :)

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

You can't expect less than an hour to pass and have a lot of people resond. Clicking a topic doesn't mean someone has actually read it. It's night time and it will be awhile until you get a lot of answers.

plantime Contributor
plantime
Posted

Ditto Peter. If I don't have anything different or of value to add, why should I post?

Lollie Enthusiast
Lollie
Posted

I think I missed something, What was the question?

Lollie

plantime Contributor
plantime
Posted

I don't know. I thought she would repost it in her opening post, but she didn't. There are a lot of new posts each time I come on, so I could very well have just missed it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

I'm glad I'm not the only one who is confused by this.

tiredofdoctors Enthusiast
tiredofdoctors
Posted

I'm confused, too . . . :huh: Also, if no one has any information with regard to a subject, they're not going to BS you and tell you something that could potentially harm you.

Canadian Karen Community Regular
Canadian Karen
Posted

I think she is referring to this thread:

Open Original Shared Link

Karen

mouse Enthusiast
mouse
Posted

Everything I have read says that you cannot have a false positive bloodwork. You can only have a false negative test. Your doctor who did the blood work is 100% right and you do have Celiac. As far as the biopsy I cannot answer that as I never had the test. My doctor was back in the stone ages and did not think it was necessary. The only reason I can see to have a biopsy after a positive blood test is to see how much damage has been done to the Villi. I wish I had done it for that reason alone. But at the time I had never heard of Celiac and was extremely ill at the time of diagnosis.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,746
    • Most Online (within 30 mins)
      7,748
    Hughesy
    Newest Member
    Hughesy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Theresa2407
      How Come Gluten Didnt Bother Me In Italy

      By Theresa2407 · Posted

      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Possible celiac - need advice

      By Scott Adams · Posted

      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Celiac or not??

      By Scott Adams · Posted

      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      How Come Gluten Didnt Bother Me In Italy

      By Scott Adams · Posted

      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.