When does celiac recovery get better?

[Celiac-survivor]

In April of this year I have been diagnosed celiac and I’ve been following strict gluten free since. In the beginning, I’ve felt better. However, now I’m feeling bad again. I’ve completed cut out gluten, lactose and even fructose and I still feel very fatigued, have muscle pain and my stomach swells up to looking 9 months pregnant. I also have quite bad joint swelling and rarely have any appetite. It’s been past 5 months since I have been strictly gluten free and I was hoping to feel a lot better than this. I’m beginning to lose hope and it’s stressing me out quite a bit. Has anybody felt like this during recovery? How long before you noticed a positive change?

[trents]

It is certainly possible/probable that you have developed an allergy/intolerance to some other foods. Due to the "leaky gut" syndrome that accompanies Celiac Disease, the immune system becomes dysfunctional and reacts to some benign food substances as if they were invaders.

[Ennis-TX]

The distention makes me think you could have gotten gluten in somehow, perhaps some contaminated cookware (cutting boards, colanders, scratched pots/pans, cast iron, wooden utensils, etc). Double check everything on this note and consider a elimination diet to see if it is a new food issue or if a condiment/food you thought was safe is not. Also do not trust others cooking, or eating out.

Look at going to eating 2-3 only safe whole foods (one ingredient no seasoning or minimal salt/pepper) for days up to a week only these ingredients, then change one out for a new one every 2-3 days and note any changes. (IE Eat only Eggs, Baked Chicken, Beef, for a week then change out Chicken or beef for for sweet potatoes or some kind of greens for 2 days and note any changes. If fine then choose one food to drop and try adding another change out.)  Many end up with common ones like dairy, soy, nightshades (potatoes, tomatoes, peppers), garlic, onions, corn, legumes (peanuts, lentils) as problem foods. These are normally intolerance or sensitivity issues but sometimes can be allergies. The former can go away with time and healing, allergies can lessen in severity but will always need to be avoided.

Edited September 27, 2020 by Ennis_TX

[cyclinglady]

All great advice.  I would call your doctor, because you are approach8 g six months.  You should get those antibodies tests again to see if they are on a downward tread.  If still very high or higher, you could be getting gluten into your diet.  
 

Do not eat oats, avoid processed foods as much as you can, or do not go out to eat until you see improvement.  

[Scott Adams]

For some a low FODMAP diet is the only way, in addition to their gluten-free diet:

 

[DJFL77I]

hmm well its about 3 months for me now...  still have GI discomfort tho

[DJFL77I]

dont have appetite issues tho or muscle pain, no joint pain.. energy levels normal...stool looks normal.. 

main issues for me still are some dizziness and some GI discomfort still...