Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What To Put Back In gluten-free Diet To Stay Healthy?


Susan123

Recommended Posts

Susan123 Rookie

I wanted to request some help.... I am pretty knowledgeable on what to exclude from my diet so that I don't encounter any gluten. My question is what food/vitamins do I need to incorporate to make up for the missing grains. I have gotten to the point where I just avoid bread gluten free or not because the gluten-free bread taste horrible. I am just afraid I am robbing my body of nutrients it needs. I know with vegetarians it is very important to make sure you replace certain nutrients when you don't eat meat. Keep in mind that I also need to stay away from nuts as I tend to get kidney stones.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MegGFBoston Rookie

I am fairly new to all of this - but my doctor did put me on Rx strength folic acid in addition to other vitamins and iron etc. Folic acid is not easily stored in the body - and the main source is whole grains!

Nancym Enthusiast

I think grains are highly overrated on their nutriuosness. Generally they lose it all during processing and have it sprayed back on in the form of artificial vitamins. You can more than make up for the loss by eating an assortment of vegetables, meats and fruits.

watkinson Apprentice

If you do a study on the nutrients is grains you will see that grains have nothing in them that you can't get from eating fruits, veggies, and protien. Most modern day grains are so over processed that they have becaome nothing more than a sugar anyway. Most are fortified with vitamins because they have very little nutrient value. Take a good multi vitamin, take Omega -3 fatty acids, a good B-complex and try to eat as much organic fruits and veggies as possible, and eat an organic yogut every day for the pro-biotic. If you drink juice, try cranberry or pomagranite (full of antioxidents). You will feel great in no time. Can you eat. soy? You can try chocolate covered soy nuts, or edamame (sp) (steamed soy beans with salt). They are yummy :P addicitive, I eat them like popcorn! you pop them out of the shell, kids live them becuase they are fun to eat. Great for you, lots of nutrients. You can sometimes find them in the frozen section but they are best fresh. Ususally where sushi is sold.

Wendy

ravenwoodglass Mentor
I wanted to request some help.... I am pretty knowledgeable on what to exclude from my diet so that I don't encounter any gluten. My question is what food/vitamins do I need to incorporate to make up for the missing grains. I have gotten to the point where I just avoid bread gluten free or not because the gluten-free bread taste horrible. I am just afraid I am robbing my body of nutrients it needs. I know with vegetarians it is very important to make sure you replace certain nutrients when you don't eat meat. Keep in mind that I also need to stay away from nuts as I tend to get kidney stones.

We are not birds :D , you really can get all the nutrients we need from fruits, veggies, meats, fish, poultry, eggs, etc. Don't worry about not replacing grains, you'll be fine without them. You may want to check out the threads on the SCD diet also.

CMCM Rising Star

Personally, I think we've been sold a bill of goods from the very huge and powerful grain industry. Grain products are HUMONGOUS....think of all the products...bread, cookies, crackers, an impossibly huge cereal aisle with the ridiculously overpriced cereals. The grains are processed down to the food value of cardboard, and then they add some wimpy stuff back in to make it sound nutritious. But nutritious it definitely is NOT. And then think of all the advertising spent to convince you to gorge yourself on grains to get FIBER...which you could better get from fruits and vegetables. I would say the grain industry most certainly does NOT want the word to get out that wheat is bad for the human body! And when you think about it...people are eating gluten products multiple times per day...no wonder they are addicted (because wheat...gluten...is very addicting in its own way).

LivingtheGoodLife Newbie

If you're showing signs of malnourishment, I'd recommend supplements. I take them only for specific purposes.

B complex - to aid sleep & regulate mood

Quercetin - to alleviate food sensitivities

Cal/Mag - to maintain tooth enamel/calm mood

Enzymes - as a digestion aid (stops girgling in stomach)

Probiotics - to alleviate C and bloating

EFA's - to help joints & GI tract

Manganese - to help joints


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rusla Enthusiast

Nuts do not cause kidney stones. My brother who is allergic to nuts never eats them got kidney stones and he was told it was because he does not drink enough water. He never drinks water. I who have had kidney problems but no stones eat nuts all the time but I also drink 2-3 liters of water a day.

Tofu is a great source of protein along with seeds and nuts are good for that and zinc which is necessary. Because of B-12 problems in the past I use a sublingual B-12 which I get from the health food store. I eat copious amounts of vegetables and fruit and while everyone at work is sick, I have not been.

Susan123 Rookie
Nuts do not cause kidney stones. My brother who is allergic to nuts never eats them got kidney stones and he was told it was because he does not drink enough water. He never drinks water. I who have had kidney problems but no stones eat nuts all the time but I also drink 2-3 liters of water a day.

Tofu is a great source of protein along with seeds and nuts are good for that and zinc which is necessary. Because of B-12 problems in the past I use a sublingual B-12 which I get from the health food store. I eat copious amounts of vegetables and fruit and while everyone at work is sick, I have not been.

Nuts do cause kidney stones of the calcuim nature which is 80% of them. THey are high in oxylate which contributes to kidneys stones. Other products like tea, chocolate, etc also cause kidney stones. So Nuts isn't the only thing that causes kidney stones but in the top four offenders of products containing high oxylate levels. Not driking enough water can encourage kidney stones as kidneys are not adequately filtered allowing the calcium deposits to build in stone size. I have had two kidneys in the last two years both calcium ones. I also take a diruretic that helps with stones and TheroLithXR which is added supplementation of magnesium and potassium which help keep stones from forming and all over urine chemistry.

eeyor-fan Contributor
I wanted to request some help.... I am pretty knowledgeable on what to exclude from my diet so that I don't encounter any gluten. My question is what food/vitamins do I need to incorporate to make up for the missing grains. I have gotten to the point where I just avoid bread gluten free or not because the gluten-free bread taste horrible. I am just afraid I am robbing my body of nutrients it needs. I know with vegetarians it is very important to make sure you replace certain nutrients when you don't eat meat. Keep in mind that I also need to stay away from nuts as I tend to get kidney stones.

I was pretty sick for a while after diagnoses and going gluten-free but now I'm getting and stronger everyday. I started taking Olay Energy Pack Vitamins (Olay vitamins are gluten-free and even are labeled gluten-free). I also eat lots of fruits and veggies, try to get protein from fish or chicken a couple times a week. Plus a few days ago Patti (NJ Angel) by way a Tif ( Floradamink) got me on a probiotic (must have really in my opinion for celiacs) called CULTURELLE and you can get it at CVS. And to think, I thought Patti and Tiff were learning from me and here they taught me something :). Those are my advice and believe me, anyone who knows me can tell you...I took the hard road to learning what my body needs to make up for not having the things like wheat.

Hugs

Bridge

PS Jen you changed your photo, you look different :).

jerseyangel Proficient
I was pretty sick for a while after diagnoses and going gluten-free but now I'm getting and stronger everyday. I started taking Olay Energy Pack Vitamins (Olay vitamins are gluten-free and even are labeled gluten-free). I also eat lots of fruits and veggies, try to get protein from fish or chicken a couple times a week. Plus a few days ago Patti (NJ Angel) by way a Tif ( Floradamink) got me on a probiotic (must have really in my opinion for celiacs) called CULTURELLE and you can get it at CVS. And to think, I thought Patti and Tiff were learning from me and here they taught me something :). Those are my advice and believe me, anyone who knows me can tell you...I took the hard road to learning what my body needs to make up for not having the things like wheat.

Hugs

Bridge

PS Jen you changed your photo, you look different :).

Bridget back on the board--as I live and breathe!! I just came on for a minute and saw you had posted. Great to hear you're taking the Culturelle. I'm on the 9th day, I think. So far, so good. A little 'rumbling'the first few days, though. I agree on the vitamins--I have been taking Centrum all along.

floridanative Community Regular

Hey Bridge...thanks for the compliment! Glad I'm able to help someone after everyone has helped me so much. Saying thank you would never convey the support I've felt from most everyone on this board. Now I'm just trying to help my own Mother (dx'd Monday) to stick with the gluten-free diet. She's been sick for years so she probably won't feel better in two or even four weeks like I did.

eeyor-fan Contributor
Hey Bridge...thanks for the compliment! Glad I'm able to help someone after everyone has helped me so much. Saying thank you would never convey the support I've felt from most everyone on this board. Now I'm just trying to help my own Mother (dx'd Monday) to stick with the gluten-free diet. She's been sick for years so she probably won't feel better in two or even four weeks like I did.

Good to see everyon..ya been a tough few months but I'm starting to kick butt again. Just waiting for that one lest test and then answers from that. Back to aerobics and Curves again...never thaght I'd be here 6 weeks ago!

Hugs

Bridget

Lollie Enthusiast

I wanted to ask my own question along the same lines as the original post.....Are the vitamins that important? I only ask because I have a horrible time digesting them. I always have had trouble for some reason, with vitamins. I try to eat a really healthy diet, lots of fruit and vegies. But, I notice most seem to take them. If they are really necessary, is there such a thing as a buffered vitamin or does any one have a recommendation?

Thanks,

Lollie

penguin Community Regular
I wanted to ask my own question along the same lines as the original post.....Are the vitamins that important? I only ask because I have a horrible time digesting them. I always have had trouble for some reason, with vitamins. I try to eat a really healthy diet, lots of fruit and vegies. But, I notice most seem to take them. If they are really necessary, is there such a thing as a buffered vitamin or does any one have a recommendation?

Thanks,

Lollie

I don't do well with grown up vitamins! They always make me feel sick. I take the gummy vites (kids gummy bear vitamins!) at night and they don't give me any problems. I usually take 3... and they're awful yummy! :lol:

tarnalberry Community Regular

If you eat a healthy, well rounded diet (variety is KEY!), and never relied on fortified cereal and bread for iron and folic acid, then you don't need to add anything to your diet after taking gluten out. If you did rely on artificially fortified products for these ingredients (and many americans do just that for folic acid especially), then you'll probably want to look into good sources of that nutrient or supplements. Other than that, there is nothing unique to bread/pastas that can't be found in a myriad of other foods.

Lollie Enthusiast
I don't do well with grown up vitamins! They always make me feel sick. I take the gummy vites (kids gummy bear vitamins!) at night and they don't give me any problems. I usually take 3... and they're awful yummy! :lol:

Thanks! My girls take those everday, princess style of course! I never even thought about it for my own use! I'll give it a try!

Lollie

  • 3 months later...
ms-sillyak-screwed Enthusiast

B-12 shots are helpful. I have just learned how to give myself a shot every week. I fell a lot better the very next day.

tarnalberry Community Regular

I did want to add, there have been studies done that show that celiacs that rely upon gluten-free alternatives, particularly gluten-free breads and cookies and the like, may be deficient in folic acid, since the primary source of this nutrient in the standard american diet is from fortified grains. If you're eating a variety of fresh foods, this isn't a concern, however.

clover Rookie
I wanted to ask my own question along the same lines as the original post.....Are the vitamins that important? I only ask because I have a horrible time digesting them. I always have had trouble for some reason, with vitamins. I try to eat a really healthy diet, lots of fruit and vegies. But, I notice most seem to take them. If they are really necessary, is there such a thing as a buffered vitamin or does any one have a recommendation?

Thanks,

Lollie

You can buy chewable multi-vitamins which are FAR easier to digest and will help you exponentially during those times when your immune system is at a low. Take only when you feel you need a boost.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
    • xxnonamexx
      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.