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Could it be Celiac Disease


Jasmine900

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Jasmine900 Newbie

About two months ago, I started to feel this pain in the middle of my upper abdomen after eating. This was followed by diarrhea and a loss of appetite. Then, I started to get this burning sensation in my upper abdomen which almost felt like a belt as I could feel it into my back. I was initially diagnosed with gastritis and took medications that actually helped but simply stopped working after 3 weeks. The symptoms reappeared but worse than ever. I couldn't eat anything at all and constantly had this burning sensation in my upper abdomen. My stomach felt super tight, and I used to get this weird pain in different spots as if it was being pulled inward from the inside. I went to a different doctor who diagnosed Colitis. I started taking new medications which again helped at first and then simply stopped working after around 3 weeks. Woke up in the night from pain in my upper abdomen under my left rib cage. The burning started again soon after in my upper abdomen up into my chest. My stomach feels hard and tight and I have more frequent bowel movements (no diarrhea). I still have this pain on the left side and the middle and sometimes on the right side as well. I had an ultrasound done which didn't show anything abnormal. Also had a complete blood count done which showed elevated levels of white blood cells. I also felt extreme pressure on my chest which makes it difficult to breathe. In addition, I have been experiencing tingling in my hands and in my right leg from the knee down but don't know if that is in any way related (I sit all day at work so that could also be a reason). Has someone else experienced anything like this? I am really sorry for this lengthy post, but I don't know what to do anymore.


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trents Grand Master

Sounds like it could be Celiac Disease but could be other things too or Celiac and other things. Request Celiac antibody blood tests before you attempt to eliminate gluten. What meds are you taking for the colitis?

cyclinglady Grand Master

You should really get to a Gastroenterologist and get screened for celiac disease (blood tests to start)  and checked for other illnesses like Crohn’s or a non-functioning gallbladder.  It can be impossible to diagnose based on symptoms alone because they often overlap.  But it could very well be autoimmune disease.  The elevated white blood cell count usually indicates infection.  Please find a doctor who can help you.  

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      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
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