Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could it be Celiac Disease

Jasmine900
 Share

Recommended Posts

Jasmine900 Newbie
Jasmine900
Posted

About two months ago, I started to feel this pain in the middle of my upper abdomen after eating. This was followed by diarrhea and a loss of appetite. Then, I started to get this burning sensation in my upper abdomen which almost felt like a belt as I could feel it into my back. I was initially diagnosed with gastritis and took medications that actually helped but simply stopped working after 3 weeks. The symptoms reappeared but worse than ever. I couldn't eat anything at all and constantly had this burning sensation in my upper abdomen. My stomach felt super tight, and I used to get this weird pain in different spots as if it was being pulled inward from the inside. I went to a different doctor who diagnosed Colitis. I started taking new medications which again helped at first and then simply stopped working after around 3 weeks. Woke up in the night from pain in my upper abdomen under my left rib cage. The burning started again soon after in my upper abdomen up into my chest. My stomach feels hard and tight and I have more frequent bowel movements (no diarrhea). I still have this pain on the left side and the middle and sometimes on the right side as well. I had an ultrasound done which didn't show anything abnormal. Also had a complete blood count done which showed elevated levels of white blood cells. I also felt extreme pressure on my chest which makes it difficult to breathe. In addition, I have been experiencing tingling in my hands and in my right leg from the knee down but don't know if that is in any way related (I sit all day at work so that could also be a reason). Has someone else experienced anything like this? I am really sorry for this lengthy post, but I don't know what to do anymore.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Sounds like it could be Celiac Disease but could be other things too or Celiac and other things. Request Celiac antibody blood tests before you attempt to eliminate gluten. What meds are you taking for the colitis?

cyclinglady Grand Master
cyclinglady
Posted

You should really get to a Gastroenterologist and get screened for celiac disease (blood tests to start)  and checked for other illnesses like Crohn’s or a non-functioning gallbladder.  It can be impossible to diagnose based on symptoms alone because they often overlap.  But it could very well be autoimmune disease.  The elevated white blood cell count usually indicates infection.  Please find a doctor who can help you.  

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,686
    • Most Online (within 30 mins)
      7,748
    lonewolf2
    Newest Member
    lonewolf2
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Hummer01
      Diagnosis confusion

      By Hummer01 · Posted

      Hi all, just wanted to post an update.  I have been gluten free for about 1.5 months now and seeing improvement already in the bathroom.  Recently I had a visit with another GI doctor for a 2nd opinion. He said that while my blood tests and scope are not a "slam dunk" for celiac, he believes it's more likely than not that I have it. His advice was to stay with a celiac-level gluten free diet (no CC) for 6-12 months then retest to make sure TTG-IGA is still negative. He also said that my CRP should return to a normal level at this time if the culprit was inflammation in the small intestine due to celiac.  Today I had a follow up with the original GI that performed the scope. She is confident it is NCGS and says I can still have gluten sometimes. When I asked about the visible duodenum damage, she said it is just "irritation" from gluten because the biopsies were negative. She also said that my positive EMA isn't valuable because it has "a high false positive rate."  I guess I'm having trouble reconciling the totally different advice from these 2 GI's. I want to believe the new doctor more at this point because what he said just makes more sense to me, and he gave an actionable timeline for possible next steps. Feeling lost and disappointed at this point and wanted to write it down here in case anyone has input. Thank you.   
    • knitty kitty
      Help!

      By knitty kitty · Posted

      @junell, Can you get a DNA test to look for genes for Celiac Disease?   Have you had your thyroid checked? Have you been checked for nutritional deficiencies?  Being on a restricted diet for so long and especially now since you are having symptoms can cause malabsorption resulting in vitamin deficiencies.   Talk to your doctor and dietician about supplementing with essential vitamins and minerals.
    • Rebeccaj
      symptomatic ?

      By Rebeccaj · Posted

      Hello , I would like to know what happens to people living or working in a industry or living with people that are non celiac or allergy Pron or anaphylaxis.    what are the symptoms and have you reached neurological symptoms during Airbourne exposure or hours later. persistent just ptsd related or unknown as its usually only high inflammation in the body when consumed with Vegas nerve symptoms of ingested or neuroglial of ingestion of inhalation accidently as my doctor has given me the ok to work but then my boss has let me go for a focal seizure as  Allery or ptsd unsure  any Insite of what someone else has gone through I was diagnosed when I was 27 so gluten free for the rest of my life but my family are not . ?
    • Beverage
      This Roller Coaster Ride Needs to Stop

      By Beverage · Posted

      I strongly agree with others about processed gluten free foods, like breads and pasta, being bad for us. Read the labels, full of this starch and that starch, seed oils that are inflammatory, etc. Before you were celiac, you probably wouldn't even touch something with those ingredients. I do much better with whole foods, meat, veggies, a little fruit. I made 90% myself, make extra and freeze it for future meals. Cutting out processed gluten free food and eating mostly real whoke food helped me feel much better. And definitely benfotiamine!
    • knitty kitty
      Burning sensation when I wake up

      By knitty kitty · Posted

      Please be sure to try Benfotiamine or Thiamine Hydrochloride.  The form Thiamine Mononitrate is not absorbed nor utilized well.  Benfotiamine is much more bioavailable.  Perhaps Thiamine Mononitrate was in your previous B Complex supplements, explaining why they didn't work for you.   All the B vitamins work together.  Thiamine needs the other B vitamins to make enzymes and ATP, so you will need to take them.  Taking them in individual supplements is fine.  I've done the same.  Just remember you need all eight.   Let me know how it's going for you!
×
×
  • Create New...