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So tired of being scared.Please help:((


Sabaarya

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knitty kitty Grand Master
11 hours ago, Sabaarya said:

But it started after Lexapro.. I don’t know. One of the side effects of Lexapro is upset stomach and digestive issues maybe it’s related to that. I don’t know

I was prescribed Lexapro and had increasing digestive problems.  I did some research and found a study that shows NSaids, PPI's, and SSRI's cause continuing damage to the villi in our small intestine.

"Factors associated with villus atrophy in symptomatic coeliac disease patients on a gluten-free diet"

https://pubmed.ncbi.nlm.nih.gov/28220520/

And the synopsis and explanation...

And. ..Here...

https://celiac.org/about-the-foundation/featured-news/2017/05/medication-use-associated-persistent-villous-atrophy/

I found getting off the SSRI's and increasing tryptophan, an amino acid related to niacin, helped me immensely.  Do NOT take tryptophan supplements with SSRI'S!  Serotonin syndrome can result.

"A systematic review of the effect of L-tryptophan supplementation on mood and emotional functioning"

https://pubmed.ncbi.nlm.nih.gov/32272859/

"The Effects of Dietary Tryptophan on Affective Disorders"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4393508/

"Influence of Tryptophan and Serotonin on Mood and Cognition with a Possible Role of the Gut-Brain Axis"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4728667/

"Top 10 Foods Highest in Tryptophan"

https://www.myfooddata.com/articles/high-tryptophan-foods.php

Hope this helps!


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Sabaarya Community Regular
1 hour ago, knitty kitty said:

I was prescribed Lexapro and had increasing digestive problems.  I did some research and found a study that shows NSaids, PPI's, and SSRI's cause continuing damage to the villi in our small intestine.

"Factors associated with villus atrophy in symptomatic coeliac disease patients on a gluten-free diet"

https://pubmed.ncbi.nlm.nih.gov/28220520/

And the synopsis and explanation...

And. ..Here...

https://celiac.org/about-the-foundation/featured-news/2017/05/medication-use-associated-persistent-villous-atrophy/

I found getting off the SSRI's and increasing tryptophan, an amino acid related to niacin, helped me immensely.  Do NOT take tryptophan supplements with SSRI'S!  Serotonin syndrome can result.

"A systematic review of the effect of L-tryptophan supplementation on mood and emotional functioning"

https://pubmed.ncbi.nlm.nih.gov/32272859/

"The Effects of Dietary Tryptophan on Affective Disorders"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4393508/

"Influence of Tryptophan and Serotonin on Mood and Cognition with a Possible Role of the Gut-Brain Axis"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4728667/

"Top 10 Foods Highest in Tryptophan"

https://www.myfooddata.com/articles/high-tryptophan-foods.php

Hope this helps!

Thank you :)

The thing is that it really helps with my bowel movements and anxiety. For the last 8 days I mostly had 1 bowel movement and it was solid. Also the feeling of not emptying my bowel became less.I used to take Lexapro a year ago and it did cause upset stomach which resolved after a month,but this mild pain under my rib is something that I haven’t experienced on my previous Lexapro intake. Anyways it something that bothers me and probably makes me to stop it. I will try for 1 more week and if it’s not get better I will stop it. Although I’ve also heard it’s not ok to start and stop SSRi on and off.

knitty kitty Grand Master

@Sabaarya

Most antidepressants take between two to six weeks to start working.  

Have you tried eating a prune or two before meals to help with your bowel movements?  Prunes are full of water soluble fiber that helps with digestion.  Prunes can slow down diarrhea and bulk out  so a better stool is formed.

Have you been checked for Diabetes?  I found I was prone to bouts of depression if my blood glucose levels got too high after eating carbohydrates or got too low between meals.  

Keep a food/mood/poo'd journal to track your symptoms.  

Hope this helps. 

 

Lizabeth Snodgrass Newbie
On 12/28/2021 at 7:42 PM, Sabaarya said:

It’s been a months since I’m back to US and I got  worse. I was much better in London and felt improvement. Since we back My bowel movement changed from once a day to 3 times a day. It’s either loose or solid depends on what I eat. I feel like all veggies make my stool fluffy and loose. I’m scared of eating. My blood work after 3 months on diet came back much better. Anemia panel got better,vitamin D got better . I do feel like not emptying my bowel completely. I asked my doctor he said it probably related to diet change. My stool was actually better before gluten-free diet. The worst thing is that I can’t sleep at nights,my brain is not relaxing. I’m just panicking and scared all the time. Anyone here with marsh 3 a score damage and did you have ups and downs until you get completely healed or it was right away after gluten-free diet. I just want to be ok again, I want my brain and my body relax and I just want to stop crying for no reason:((

Have you tried flaxseed? 

Diamonds Apprentice
5 hours ago, knitty kitty said:

I was prescribed Lexapro and had increasing digestive problems.  I did some research and found a study that shows NSaids, PPI's, and SSRI's cause continuing damage to the villi in our small intestine.

"Factors associated with villus atrophy in symptomatic coeliac disease patients on a gluten-free diet"

https://pubmed.ncbi.nlm.nih.gov/28220520/

And the synopsis and explanation...

And. ..Here...

https://celiac.org/about-the-foundation/featured-news/2017/05/medication-use-associated-persistent-villous-atrophy/

I found getting off the SSRI's and increasing tryptophan, an amino acid related to niacin, helped me immensely.  Do NOT take tryptophan supplements with SSRI'S!  Serotonin syndrome can result.

"A systematic review of the effect of L-tryptophan supplementation on mood and emotional functioning"

https://pubmed.ncbi.nlm.nih.gov/32272859/

"The Effects of Dietary Tryptophan on Affective Disorders"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4393508/

"Influence of Tryptophan and Serotonin on Mood and Cognition with a Possible Role of the Gut-Brain Axis"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4728667/

"Top 10 Foods Highest in Tryptophan"

https://www.myfooddata.com/articles/high-tryptophan-foods.php

Hope this helps!

Yes I suspected this that my medications are cause bad reaction in stomach intestines. I'm on 2 horrid  medicines ..that no doubt are doing this 2 me ..what can I do ?

Wheatwacked Veteran

Choline is associated with both anxiety and right quadrant gut pain, which you indicate you have. It takes 4 dozen eggs a day to reach the upper safe limit.  The only way to know if you are getting enough choline is by tracking choline intake. You might want to see a doctor about gall bladder disease. Since the Lexipro is helping you, give it more time. In the meantime,  get a bottle of Phosphotidyl Choline (cheaper than an office visit and give it some time. There isn't a listed interaction between Lexipro and choline supplements but SSRi's including Lexipro do cause vitamin deficiencies (https://www.optimallivingdynamics.com/blog/7-important-nutrients-depleted-by-psychiatric-drugs-antidepressants-antipsychotics-stimulants-benzodiazepines-induced-guide-vitamins-medications) including folate. When you are deficient in folate you need more choline.

Quote

The body needs choline to synthesize phosphatidylcholine and sphingomyelin, two major phospholipids vital for cell membranes.... The DV for choline is 550 mg for adults and children age 4 years and olderthe 2013–2014 National Health and Nutrition Examination Survey (NHANES) found that ... In adults, the average daily choline intake from foods and beverages is 402 mg in men and 278 mg in women. Intakes from supplements contribute a very small amount to total choline intakes...Choline is involved in functions that overlap with those of folate and other B vitamins. Many studies do not assess the status of all B vitamins, which can confound results and obscure the true relationship between choline and the observed outcome. The FNB has established ULs for choline from food and supplements based on the amounts of choline that are associated with hypotension and fishy body odor 

Choline is required to produce acetylcholine, a neurotransmitter that plays an important role in regulating memory, mood and intelligence   https://www.healthline.com/nutrition/what-is-choline#brain-function

Quote

Despite its importance in the central nervous system as a precursor for acetylcholine and membrane phosphatidylcholine, the role of choline in mental illness has been little studied...Results: The lowest choline quintile was significantly associated with high anxiety levels... a significant inverse association was found between choline quintiles and anxiety levels   https://pubmed.ncbi.nlm.nih.gov/19656836/

Sabaarya Community Regular
14 hours ago, Wheatwacked said:

Choline is associated with both anxiety and right quadrant gut pain, which you indicate you have. It takes 4 dozen eggs a day to reach the upper safe limit.  The only way to know if you are getting enough choline is by tracking choline intake. You might want to see a doctor about gall bladder disease. Since the Lexipro is helping you, give it more time. In the meantime,  get a bottle of Phosphotidyl Choline (cheaper than an office visit and give it some time. There isn't a listed interaction between Lexipro and choline supplements but SSRi's including Lexipro do cause vitamin deficiencies (https://www.optimallivingdynamics.com/blog/7-important-nutrients-depleted-by-psychiatric-drugs-antidepressants-antipsychotics-stimulants-benzodiazepines-induced-guide-vitamins-medications) including folate. When you are deficient in folate you need more choline.

Choline is required to produce acetylcholine, a neurotransmitter that plays an important role in regulating memory, mood and intelligence   https://www.healthline.com/nutrition/what-is-choline#brain-function

I will give it time and also will take my vitamins, B complex and vitamin D. Thank you :)


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LeeL Newbie

Just a suggestion that you are also checked for Hashimoto’s. Celiac and Hashimoto’s are apparently related.

Sabaarya Community Regular
On 1/17/2022 at 2:22 AM, Lizabeth Snodgrass said:

Have you tried flaxseed? 

No

2 hours ago, LeeL said:

Just a suggestion that you are also checked for Hashimoto’s. Celiac and Hashimoto’s are apparently related.

Checked month ago. It was negative,doctor said no Hashimoto 

cristiana Veteran
(edited)

Hi Sabaarya

"Anyone here with marsh 3 a score damage and did you have ups and downs until you get completely healed or it was right away after gluten-free diet. I just want to be ok again, I want my brain and my body relax"

 Ups and downs sounds just like me for a while.  And yes, I was marsh 3 too.

On the mental health side of things, one might expect recovery could be plotted on a graph as a smooth upward line, but in actual fact, I have found recovery is more like a jagged line, with an overall upward trend.

Dr Tim Cantopher, in his book, "Depression, The Curse of the Strong", uses a graph to illustrate this point.  So someone recovering from depression will find some days are good, and other days bad - sometimes to the point that one questions one's recovery - but in recovery, there will be ups and downs in the graph, but an over all upward trajectory. 

In terms of anxiety, Paul David explains these as "setbacks" in his book "At Last a Life" or on his website, "Anxiety No More".   https://anxietynomore.co.uk/anxiety_setbacks/  

If you are taking medication under medical supervision, stick to doctor's orders, but you may well find it helpful to read Dr Stephen Llardi's book "The Depression Cure" that a GP I know recommends.  You can read its reviews on Amazon.  Llardi's book helps by focusing "on six key lifestyle elements that have largely disappeared in healthy doses from modern life:

- physical exercise
- omega-3 fatty acids
- natural sunlight exposure
- restorative sleep
- social connectedness
- meaningful, engaging activity"

I found the above enormously helpful.    

Today, my TTG numbers are normal again, but my digestion is still all over the place at times - I've had a colonoscopy, and a sigmoidoscopy, and nothing was found, so my gastroenterologist has decided I have IBS which I know is very much affected by my mood.   But over all, I do feel a lot better now - it has just taken time.

I hope some of this might help.

Cristiana

 

Edited by cristiana
Kate333 Rising Star

Hi Sabaarya.  As others have said, stress and celiac disease together are not unusual.  I, too, have had chronic, bad anxiety/depression since late 2019, when I was first diagnosed, then it worsened again when the Covid pandemic hit.   Do I consider celiac disease the "cause" of my GI stress?  No.  In my case, I think it was the opposite:  my extreme, chronic stress may have triggered celiac disease because stress has been long linked to activation of the dormant celiac disease gene (which almost half of people have) into full-blown celiac disease.  

Regardless of the cause, the important thing is to take care of your mental health, a real challenge for so many of us in this seemingly endless pandemic.  It sounds like you are doing just that so kudos to you!  It also sounds like your GI doc is wonderful!  So, I would trust the advice given and stick with Lexapro for now, esp. because you have observed that it has so quickly, dramatically improved your digestion and mood.   I, too, have found a low-dose antidepressant very helpful.  You might also consider joining an online support group for those with anxiety issues.  And check out Anxietycentre.com which is a wonderful website that explains the MANY physical symptoms caused by anxiety, including upset GI system, body aches/pains (which may explain your rib discomfort). 

Another suggestion is to ask your GI or primary care dr. to do an updated TTG-IGA blood test to assess the current levels of gluten antibodies.  If it's normal, your celiac disease is likely healing well on the gluten-free diet.  If results show numbers still in the abnormal range, you may be still getting exposed to gluten and may need to be more careful with what you eat.  Even very small amounts (inadvertent cross-contamination) can upset a delicate GI system. 

Best of luck on your healing journey!

  

 

Kate333 Rising Star

Someone posted studies and made the conclusion that antidepressants "cause" villous atrophy.  I looked at that 2017 study (cited in a link) in-depth.  The study noted, "The impact of medication use was very small, and as our results are preliminary, we need more studies before we can draw conclusions about their impact on intestinal healing in celiac disease.”  I don't believe that study data has even been peer reviewed or confirmed.  Also, that study did not mention the Lexapro brand.  Therefore, I think it a big leap to jump to a conclusion that Lexapro or any other SSRI "causes" villous atrophy based on vague, unproven claims.  Just sayin...  

 

 

Scott Adams Grand Master

Perhaps the study found undiagnosed celiacs who might not need an SSRI at all? It would be interesting to do a study that screened people on SSRI's for celiac disease, to see if they might have it at higher rates than the general population.

Sabaarya Community Regular
2 hours ago, Kate333 said:

Hi Sabaarya.  As others have said, stress and celiac disease together are not unusual.  I, too, have had chronic, bad anxiety/depression since late 2019, when I was first diagnosed, then it worsened again when the Covid pandemic hit.   Do I consider celiac disease the "cause" of my GI stress?  No.  In my case, I think it was the opposite:  my extreme, chronic stress may have triggered celiac disease because stress has been long linked to activation of the dormant celiac disease gene (which almost half of people have) into full-blown celiac disease.  

Regardless of the cause, the important thing is to take care of your mental health, a real challenge for so many of us in this seemingly endless pandemic.  It sounds like you are doing just that so kudos to you!  It also sounds like your GI doc is wonderful!  So, I would trust the advice given and stick with Lexapro for now, esp. because you have observed that it has so quickly, dramatically improved your digestion and mood.   I, too, have found a low-dose antidepressant very helpful.  You might also consider joining an online support group for those with anxiety issues.  And check out Anxietycentre.com which is a wonderful website that explains the MANY physical symptoms caused by anxiety, including upset GI system, body aches/pains (which may explain your rib discomfort). 

Another suggestion is to ask your GI or primary care dr. to do an updated TTG-IGA blood test to assess the current levels of gluten antibodies.  If it's normal, your celiac disease is likely healing well on the gluten-free diet.  If results show numbers still in the abnormal range, you may be still getting exposed to gluten and may need to be more careful with what you eat.  Even very small amounts (inadvertent cross-contamination) can upset a delicate GI system. 

Best of luck on your healing journey!

  

 

Thank you:). My antibodies all were in normal range at my diagnose. They confirmed my celiac disease with positive biopsy and genetic panel. In my situation I think the same as you. Since I remember myself I was always anxious and it probably triggered my celiac disease.

MADMOM Community Regular
On 1/3/2022 at 7:46 PM, Scott Adams said:

You likely know this already, but be sure your diet is 100% gluten-free, and this often means avoid eating out, as that is the most likely source of contamination.

If you're sure that your diet, makeup, medications, cosmetics, etc., are gluten-free, it's also possible you have some additional food intolerance issues, some of which might just be temporary and caused by your current gut damage. Common intolerances are cow's milk/casein, corn, soy, eggs, etc. Try keeping a food diary to see if you notice a connection. If you find a food that might be triggering it, cut it out of your diet for a few months, and write down any changes after you ad it back. 

This article may be helpful:

Too much stress will not be good for your recovery, so try to relax with the knowledge that your gut should be healing, but it can take months. I had March III lesions when I was diagnosed, and it took me around 2 years to recover. Afterwards I was able to add back several foods that bothered me due to gut damage.

what are Marsh 3 lesions? 

Scott Adams Grand Master

It is a grading scale that assigns a score to the villi damage seen during an Endoscopy. From this article regarding Michael Marsh:

Quote

Dr. Michael N.  Marsh began his illustrious career in medicine with his graduation from the University of Leeds, School of Medicine in 1960.  After a brief foray into obstetrics, he specialized in gastroenterology and dedicated most of the next 40 years to sub-specialty research on celiac disease.  His work unveiled many facets of the immunological reactions to gluten inherent in celiac disease which provided a foundation for many subsequent advances in celiac research that followed.  He developed the rectal challenge protocol which, although it continues to be experimental, is probably the best single test for identifying celiac disease and only celiac disease.  As if that were not enough, he also developed the Marsh system to aid pathologists in categorizing the various forms of altered villous morphology that are consistent with celiac disease.  Dr. Marsh’s retirement in 2000 was a loss to every celiac patient on the planet.  Although he went on to publish another book about celiac disease and write and publish several more papers before he shifted to the pursuit of yet another doctoral degree (his fourth by North American standards).  

 

 

knitty kitty Grand Master
4 hours ago, Kate333 said:

Someone posted studies and made the conclusion that antidepressants "cause" villous atrophy.  I looked at that 2017 study (cited in a link) in-depth.  The study noted, "The impact of medication use was very small, and as our results are preliminary, we need more studies before we can draw conclusions about their impact on intestinal healing in celiac disease.”  I don't believe that study data has even been peer reviewed or confirmed.  Also, that study did not mention the Lexapro brand.  Therefore, I think it a big leap to jump to a conclusion that Lexapro or any other SSRI "causes" villous atrophy based on vague, unproven claims.  Just sayin...  

 

 

It is a peer reviewed study.  But everyone has to decide for themselves what they want to believe.

https://onlinelibrary.wiley.com/doi/full/10.1111/apt.13988

"Medication use and persistent villus atrophy

Non-steroidal anti-inflammatory drug and PPI use was highly prevalent, with over a quarter of the sample listing medications within each of these classes (Table 1). The risk of persistent villus atrophy was increased among users of PPIs compared to non-users (48% vs. 35%, P < 0.001), as well as for users of NSAIDs, selective serotonin reuptake inhibitors (SSRIs) and statins (Table 3). Only PPI use was associated with increased risk of severe persistent villus atrophy (Table S1)."

"We analysed medication use, symptom characteristics and serology to identify factors associated with persistence of villus atrophy despite gluten-free diet. Notably, we found the use of medications within three classes – PPIs, NSAIDs and SSRIs – independently predicted persistent villus atrophy: a novel finding."

"In this study, we identified several novel risk factors for persistent villus atrophy. In particular, use of NSAIDs, PPIs and SSRIs appears to be associated with impaired mucosal healing."

 

 

Sabaarya Community Regular
4 hours ago, knitty kitty said:

It is a peer reviewed study.  But everyone has to decide for themselves what they want to believe.

https://onlinelibrary.wiley.com/doi/full/10.1111/apt.13988

"Medication use and persistent villus atrophy

Non-steroidal anti-inflammatory drug and PPI use was highly prevalent, with over a quarter of the sample listing medications within each of these classes (Table 1). The risk of persistent villus atrophy was increased among users of PPIs compared to non-users (48% vs. 35%, P < 0.001), as well as for users of NSAIDs, selective serotonin reuptake inhibitors (SSRIs) and statins (Table 3). Only PPI use was associated with increased risk of severe persistent villus atrophy (Table S1)."

"We analysed medication use, symptom characteristics and serology to identify factors associated with persistence of villus atrophy despite gluten-free diet. Notably, we found the use of medications within three classes – PPIs, NSAIDs and SSRIs – independently predicted persistent villus atrophy: a novel finding."

"In this study, we identified several novel risk factors for persistent villus atrophy. In particular, use of NSAIDs, PPIs and SSRIs appears to be associated with impaired mucosal healing."

 

 

Overall I’m very sensitive to any kind of medication and I believe that they can cause delay in digestive healing,but as my doctor said I need to take my anxiety under control. My mom’s cancer also makes me very anxious. Last week she had ctscan and I was feeling hyper anxious until we got results. Thank God everything is stable. I need to find therapist as well so I can stop using any kind of antidepressants. I’m planing to start accupunture. 
thank you 🙏

knitty kitty Grand Master

@Sabaarya,

Continue taking your B Complex supplement.  Ask your health provider to discuss the benefits of supplementing B vitamins, especially as regards these following studies.  

Taking Vitamin B6 (pyridoxine), folate, tryptophan and magnesium are the supplements I take (in addition to a B Complex) when I'm anxious.  High homocysteine levels are associated with anxiety (and cancer).  Tryptophan, B6, folate and magnesium help lower the homocysteine levels.

I was extremely anxious.  I was so anxious I could not function, not at work, not at home.  I was put on a variety of pharmaceuticals, including lexapro, but none of them worked because I was not deficient in pharmaceuticals.  I was deficient in the raw materials, the building blocks, vitamins and minerals my body needed to correct its dysfunction.  I firmly believe through my personal experience that the body can heal itself if given the vitamins and minerals it is lacking because of malabsorption caused by Celiac Disease.  And there's accredited scientific studies proving this.

"Effect of B vitamin supplementation on plasma homocysteine levels in celiac disease"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2653396/

"In conclusion, celiac disease, the presence of villous atrophy, vitamin B6 and folate are independent determinants of tHcy levels. Use of B-vitamin supple-ments lowers tHcy levels, even if villous atrophy persists."

And...

"Low serum concentrations of vitamin B6 and iron are related to panic attack and hyperventilation attack"

https://pubmed.ncbi.nlm.nih.gov/23603926/

Best wishes

Jim Rockford Rookie

If you took every supplement, vitamin, ssri etc. that has been recommended you definitely will have gastric distress.

I have been through a similar situation. You may find it helpful to take a walk or just sit outside and enjoy. Simplify your diet. CBT can also be helpful with anxiety and worrying. There are some things we cannot control, also.
 

This forum is a great help when new symptoms arise. Many users have a lot of the same problems and concerns. I always find it reassuring that we are not alone in trying to navigate through life with this very difficult condition.

Wheatwacked Veteran

For some vitamins, like Thiamine, the only way to tell if thiamin deficiency if causing your symptoms is 

On 1/20/2022 at 6:59 AM, knitty kitty said:

none of them worked because I was not deficient in pharmaceuticals.  I was deficient in the raw materials, the building blocks, vitamins and minerals my body needed to correct its dysfunction.  I firmly believe through my personal experience that the body can heal itself if given the vitamins and minerals it is lacking because of malabsorption caused by Celiac Disease.  And there's accredited scientific studies proving this.

Hear! Hear!

I discussed with my doctor the fact that I've been on 10,000 IU vitamin D3 daily since 2015. Sept 2019 my D plasma was 44 ng/ml, last September (2021) it was 87 and last Friday it dropped to 80 ng/ml. She is fine with me continuing, along with the other vitamins I take. By the way, I have not reacted to gluten in over a year.

B12

B complex

B5 1000 mg

Phosphotidyl Choline 840 mg

Lithium 5 mg

Dhea 100 mg

vitamin C 1000 mg

Calcium 1000 mg

vitamin D3 250 mcg (10,000 IU)

Blue-Sky Enthusiast

A different option is to try different options until you find something that works well.

Soluble fiber helps with IBS and IBS-C. There are lots of different supplements or foods with fiber, just make sure they are gluten free. 

Probiotics may help.

There is information online SSRIs are effective for treating IBS from crohns and UC. 

Zinc, magnesium and selenium help with IBS-d

Recovery from Celiac disease damage happens more often on the second year after diagnosis rather than the first, and also matches with a higher overall education level which likely means people get better at avoiding cross contamination with time. 

Sabaarya Community Regular
25 minutes ago, Blue_Sky said:

A different option is to try different options until you find something that works well.

Soluble fiber helps with IBS and IBS-C. There are lots of different supplements or foods with fiber, just make sure they are gluten free. 

Probiotics may help.

There is information online SSRIs are effective for treating IBS from crohns and UC. 

Zinc, magnesium and selenium help with IBS-d

Recovery from Celiac disease damage happens more often on the second year after diagnosis rather than the first, and also matches with a higher overall education level which likely means people get better at avoiding cross contamination with time. 

I start to feel improvement after 2 weeks of being on Lexapro,I don’t have pain under my right rib anymore. My bowel movement became normal,feeling of not completely emptying my bowel became much less. For the past  4 days I feel pressure in my ears. I had heavy period and since my ferritin level and iron is not that high I’m assuming the pressure is caused by that. My anemia panel got better but I still need to take supplements,cause my levels are on the low range of normal. 

knitty kitty Grand Master
6 hours ago, Wheatwacked said:

For some vitamins, like Thiamine, the only way to tell if thiamin deficiency if causing your symptoms is 

Hear! Hear!

I discussed with my doctor the fact that I've been on 10,000 IU vitamin D3 daily since 2015. Sept 2019 my D plasma was 44 ng/ml, last September (2021) it was 87 and last Friday it dropped to 80 ng/ml. She is fine with me continuing, along with the other vitamins I take. By the way, I have not reacted to gluten in over a year.

B12

B complex

B5 1000 mg

Phosphotidyl Choline 840 mg

Lithium 5 mg

Dhea 100 mg

vitamin C 1000 mg

Calcium 1000 mg

vitamin D3 250 mcg (10,000 IU)

Try adding some Magnesium to help with the function of Vitamin D!

Magnesium Supplementation in Vitamin D Deficiency

https://pubmed.ncbi.nlm.nih.gov/28471760/

 

  • 1 month later...
Diamonds Apprentice
On 1/19/2022 at 10:52 PM, MADMOM said:

what are Marsh 3 lesions? 

Hi Scott . If you don't mind . Can you give me that Tirosint liquid formation again. This time I will buy it.   Do you know if I can buy it in England UK . that's where I am ? 

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    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
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