Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin D Question


mouse

Recommended Posts

mouse Enthusiast

The new Reumotolgist that I went to a couple of weeks ago, ran some blood tests on me. They called last week and said that my vitamin D was low and they phoned in an RX for it. I took one last Wednesday, then Saturday and I have to wait for tomorrow to take another. I noticed a little more energy the first time I took it and then on Saturday I had more energy then the first time. It only lasted one day and today I am utterly whipped and am getting ABSOLUTELY nothing done. I can't wait until I take the next one tomorrow as I am hoping the energy lasts a little longer. Maybe enough to play catch up. I am taking 50,000 units each time. DOES ANYONE KNOW HOW LONG IT TAKES BEFORE IT STAYS in me. I am to take these twice a week for 6 weeks and then another blood test. I have to have some energy tomorrow to get dressed and go in for the Osteoporsis test.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I was tested to have low vitamin D a couple of months ago as well. I don't know why you have to take those specific pills. I bought Carlson's cod liver oil (apparently the best on the market) which doesn't taste bad (they put lemon in it) and take two tablespoonfuls a day (twice the recommended normal dose). That gives me essential fatty acids as well as lots of vitamin D and vitamin A. Personally, I think this is better than vitamin D pills, and is probably absorbed easier, too.

I wonder if you could take that as well?

mouse Enthusiast

I see the same doctor next week and will ask him about the Cod Liver Oil. My Mom used to give it to me daily as a child. I was a sickly little bugger - now we know why. I thought it tasted Yucky, but will do whatever it takes to give me more energy. I like this new doctor as he and his PA know something about Celiac and even test often for it. They don't know everything, but seem to be willing to learn. Between the two of them I spent over two hours with them and they never once glanced at their watches :lol: . To bad they are a drive and a half away from me. If I could only bring my GP up to their level of knowledge on this disease.

Thank you Ursula for posting.

jerseyangel Proficient

Armetta--Just want to tell you that if you go with the Carlson's Cod Liver Oil, the taste is really not bad at all. If you took it plain (unflavored) as a child, this is nothing like that--just kind of a light lemon flavor--not fishy at all.

Ursula--I always look forward to reading your posts--you're so well informed!

mamaw Community Regular

Am I the only one with to much vit D? The doc told me not to take extra vit D or go out to much. I told him I only get my Vit d in my multi vit & min. He didn't make a big deal or ? but I still to this day wonder how come I have to much Vit D. I wish doctors would learn to put info pieces together instead of just fluffing bits off here and there.

Of course that would mean the docs would have to put forth some effort. I'm beginning to believe that there are only a handful of caring doctors in the U.S. My luck I haven't found one in my neck of the woods...

mamaw

GlutenFreeAl Contributor

That's funny because I have the opposite problem - I'm vitamin D deficient and my doctor didn't tell me what to do about it.

This is how our conversation went:

Dr: "Your vitamin D levels are very low. Take a calcium supplement with Vitamin D."

Me: "I do. every day."

Dr: "Oh. Well in your case I would not recommend sun exposure because you're too fair."

THANKS FOR THE HELP, DOC!!!

Does anyone have a gluten free D supplement (or Calcium and D) that they would recommend??

prinsessa Contributor

There are Cod Liver oil pills you can take if you don't like the taste. I buy them for the kids because they love them (they like to chew them). You could also try to get a little more sun which is the way your body makes Vit D. I don't know if you have dark skin or not, but I have heard that peole with dark skin have more problems with Vit D deficiency especially if they live somewhere that there isn't a lot of sun.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

Salmon is an excellent source of vitamin D. This site says that a 4 oz seving of salmon will give you more than 100% of your daily value of vitamin D:

Open Original Shared Link

Here is a link to foods that are high in vitamin D:

Open Original Shared Link

Ursa Major Collaborator
Am I the only one with to much vit D? The doc told me not to take extra vit D or go out to much. I told him I only get my Vit d in my multi vit & min. He didn't make a big deal or ? but I still to this day wonder how come I have to much Vit D. I wish doctors would learn to put info pieces together instead of just fluffing bits off here and there.

Of course that would mean the docs would have to put forth some effort. I'm beginning to believe that there are only a handful of caring doctors in the U.S. My luck I haven't found one in my neck of the woods...

mamaw

Mamaw, it is almost impossible to have too much vitamin D, especially if you don't take mega doses of it. Your doctor is ill informed. If he really believes that the 'daily recommended dosages' the government tells you are necessary for good health are all you need, than he ought to be shot (just kidding). The recommended dose for vitamin C is so low, that it barely keeps you alive, never mind actually being well.

It is healthy (and actually even necessary for health) even for fair skinned people to get at least ten minutes a day of sunshine on unprotected skin. That should give you just enough vitamin D in the summer, but in the winter (unless you live in a warm, sunny climate all year round), you really need to supplement. The vitamin D you get in your calcium supplement is not enough.

Your body can't make too much vitamin D just by being outside. And actually, an upper, toxic level has never been established. With some vitamins you can definitely get too much, like vitamin A. With others, you just excrete any excess, without doing any harm.

Here is a link, and this is an excerpt from this page: Open Original Shared Link

* Vitamin D (ie, cholecalciferol) is present in most dairy products, egg yolks, liver, and fish.

o RDA is 400 IU for persons older than 1 year.

o Supplements usually are 400 IU per tablet.

o Acute toxic dose is not established, and chronic toxic dose is more than 50,000 IU/d in adults. In children, 400 IU/d is potentially toxic. A wide variance in potential toxicity exists.

o Vitamin D increases serum calcium levels by facilitating calcium absorption and mobilizing calcium from bone.

Now, to actually get 50,000 IU a day, you'd have to take megadoses of vitamins (you wouldn't be ABLE to get enough sunshine and take enough supplements for that, I don't think).

Here is another excellent link, with a great quiz:Open Original Shared Link

mamaw Community Regular

Hi Ursula

Yes the doc flat out told me I have way high levels of vit D in my system. I challenged him to figure out why and how I got this way. I'm fair skinned and in my younger years redheaded with freckles. I don't spend a great deal of time in the hot weather between noon and three so I again challenged him to find out how this could be. I always thought I didn't get enough sun because it doesn't go well with me. I turn red in two seconds and even with transition lenses (get darker in sunlight) and a pair of sunglasses My eyes just go crazy. I have never heard of to much D either.I have rosacea of my face and neck area so that's another reason I stay out of the sun so I'm really baffled by having to much D.

I now days do not put much stock into what doctors say because I don't think they care about people , theyjust want to make a living and if they can keep you coming back they are getting rich .They mask the problem by giving drugs to cover -up the real issue instead of repairing the issue.

I was dx'd about 3 1/2 years ago with Lou Gerhig's disease. At that time I said I don't have that and the doc patted me on the back and said reality will set in and I have it. It's a terrible disease with a life expectancy of 3-5 years and most don't get to that point . MOst are with feeding tubes and in wheelchairs by before 5 years. I'm still walking, talking, and eating just fine. I still say I don't have this . I'm 85% better since going gluten-free and when I tell the specialist this he laughs at me and shakes his head in disbelief..

Oh well so much for my faith in the medical community....

mamaw

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,333
    • Most Online (within 30 mins)
      7,748

    Donna Chem
    Newest Member
    Donna Chem
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.