Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test results


Choccylab
Go to solution Solved by Choccylab,

Recommended Posts

Choccylab Newbie

Hi I’ve just been tested for celiac due to a recent blood test showing B12, vit d, folate, and ferritin deficiency. I had the blood test due to lots of symptoms pointing to celiac. My father and his sister are both diagnosed celiacs.

Ive had this result back so far and can’t get a gp appointment for two weeks …

IgA Endomysial Ab - positive 

I also have these tests but results aren’t available yet. 
ANTI-ENDOMYSIAL ABS

S IgA tissue transglutaminase
 

Does the positive one mean I could be celiac ? 
thank you 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Yes. This test is also known as the EGA. You will likely be asked to have an endoscopy with biopsy of the small bowel done for confirmation. Do not begin a gluten free diet until all testing is complete.

Scott Adams Grand Master

This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. 

 

 

  • Solution
Choccylab Newbie

Thank you both for the replies. I’ll have a read and await my gp follow up appointment 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,066
    • Most Online (within 30 mins)
      7,748

    USARay
    Newest Member
    USARay
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Congrats! Can you share the recipe? We just picked up a bread maker from an estate sale and are experimenting. 
    • StuartJ
      I am her husband, we have been married for 28 years
    • trents
      So, @StuartJ, are you @rjane's celiac spouse?
    • StuartJ
      Update: great news, she made a gluten-free loaf yesterday, switching the Xanthan for cornstarch, and adding a little more milk than the recipe called for, also used a regular quick bake setting instead of the gluten free.  The result was a superb and delicious bread that I could eat, enjoy and 24 hours later still no side effects!  😊
    • trents
      Welcome to the forum, @Natosha! For future reference, when you share celiac blood antibody test scores, it is helpful to also include reference ranges for negative vs. positive since there are no industry standards in place. Each lab uses different scales. But, you have told us the results of the testing were negative, so we have the big picture. Looks like you had two tests run: tTG-IGA and DGP-IGA. One that should have been run and wasn't is "total IGA" which goes by some other names as well. Total IGA is important to run because it checks for IGA deficiency. If a person is IGA deficient, their individual IGA celiac antibody test scores will be artificially low and false negatives can be generated. Some doctors are under the mistaken impression that IGA deficiency only occurs in toddlers but we have had any number of adult contributors on this forum who were IGA deficient. I bring this up as you might ask that your PCP test you for IGA deficiency. No, three days of being gluten free would not likely have much impact on your test scores. I am also assuming that prior to that, you were eating liberal amounts of wheat products and not skimping on them because you suspected they made you ill. If you don't have celiac disease you may very well have NCGS (Non Celiac Gluten Sensitivity). NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both. I am including an article that discusses the various antibody tests that can be run for celiac disease detection. Your doc only ordered two. As you can see, there are several others. One one misses, another may catch. Some are more sensitive than others or are more specific. You could ask your doc for a "full celiac panel". For reference, you would need to be eating an amount of gluten daily for several weeks equivalent to what would be found in 4-6 slices of wheat bread leading up to the day of the blood draw or the testing to be valid. This is what current "gluten challenge" guidelines are recommending. By, the way, your doctor referring to starting the gluten free diet to address gluten sensitivity as a "fad" is not a good sign. That's a bad attitude and probably reflects outdated knowledge concerning gluten disorders. I think I would be shopping for another doc.
×
×
  • Create New...