Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

European travel with Celiac Disease


CJF

Recommended Posts

CJF Rookie

I'm heading to the UK for a vacation the end of this month on a tour with Road Scholar. I haven't been out of the US since my diagnosis so I'm a little concerned about exposure to gluten during my travels. Most of our meals are provided by the tour. Either the hotels we are staying at, or places we will visit. Road Scholar is aware of my dietary needs as well.

Any helpful hints about navigating the restaurants in England is greatly appreciated.

Also are there any medications out there to help mitigate the effects of exposure to gluten?

Thanks in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

Traveling to the UK with celiac disease is actually one of the easier European destinations thanks to strong allergen labeling laws and widespread awareness. Since Road Scholar is already aware of your dietary needs, take these extra steps for peace of mind: First, pack gluten-free translation cards (even though English is spoken, these clearly explain cross-contamination risks to kitchen staff). The UK uses the "Crossed Grain" symbol for certified GF foods, and most supermarkets (like Tesco, Sainsbury’s, and Marks & Spencer) have excellent GF sections—stock up on snacks like GF biscuits or cereal bars for backup. When eating at restaurants, pubs are often surprisingly celiac-friendly (look for places displaying Coeliac UK accreditation), and don’t hesitate to ask about dedicated fryers for fish and chips. For your tour meals, politely double-check with staff at each location—hotel breakfasts can be tricky with shared toasters, so request sealed GF bread or yogurt/fruit alternatives.

As for medications, there’s currently no FDA-approved treatment for gluten exposure—some find digestive enzymes (like GliadinX -- they are a sponsor here) help with minor symptoms, but they don’t prevent damage. Pack your usual remedies (peppermint oil for bloating, anti-nausea meds, etc.) and consider bringing a doctor’s note for any prescription medications. The Coeliac UK website has a fantastic restaurant guide and emergency food listings—download their app before you go. Bon voyage, and enjoy your trip with confidence!

cristiana Veteran
(edited)

@Scott Adams has done an amazing job at explaining the situation.  Shop at Asda, Morrisons, Tesco's, Sainsbury's, Marks & Spencers and Waitrose which have great gluten free sections and you won't go hungry.  Even small Co-op corner shops tend to have a dedicated gluten free area.  I haven't had much luck with the German store, LIdl.  Can't speak for Aldi but I think they may have a gluten free section.. 

Food labelling has become very strict here so you should be able to shop anywhere and trust their labels - if the product comes from a shared line, it will say 'May contain traces of gluten'.  If that is the case, avoid those products.  I am not sure how long you are here for but if you are here for a while I second that you join Coeliac UK who produce an app which will help you navigate the supermarket.

Personally, I would not eat pasta or pizza out., as in the words of a Food Inspector I know, there is just too much glutenous flour about in these places.  

When you order anything, make a big deal about the fact that you are a coeliac.  My line is... "I'm very sorry to be a pain but please can you make sure to tell the chef that I am a coeliac and because I throw up very quickly after being served gluten by mistake!"   That tends to work get the message home!  I find as soon as they hear that they type/write coeliac/or allergy in very big letters on the chit for the kitchen!

When the food comes out,  at the point of service, always double check what they are serving IS actually gluten free.  Twice I have narrowly avoided being glutened because my daughter or I double checked the bread was gluten free:  the poor, harried waiting staff had made a mistake and put the wrong bread on the plate.

We don't seem to have the medication that you have for glutening episodes, as you do in the US, so if you can I'd bring some with you.  

 

Edited by cristiana
CJF Rookie

Thank you for your response. I had read that they are more careful in the UK and the wait staff are much more aware. 

I always bring gluten-free snacks with me when I travel even here in the US. Airports are  a nightmare to find anything that is gluten-free to eat. If you are lucky enough to find a Chick-fil-A in the airport the fries(chips) are a safe bet as they are fried in a fryer that is dedicated. Five Guys is also a pretty safe bet. While the only thing they fry is their fries, they also are very careful when cooking their burgers and will change gloves, and put them on a clean grill.

Thanks again for all the info. All I don't want is to get sick on a much anticipated trip from food that has gluten in it.

  • 2 months later...
CJF Rookie

Safely home from my recent trip to the UK. I had zero gut issues while traveling around this pretty country.

Our tour leader was very good at making sure the 2 of us with gluten issues on our tour were well taken care of. 

We often got our meals before the rest of the group and adaptations to the menu for us were well thought out and very tasty.

I just wish restaurants here in the USA took as much pride in making food that everyone can enjoy. Many of the hotels and pubs we ate at had numerous options that were safe for us with wheat/gluten restrictions to eat.

 

Scott Adams Grand Master

It's great to hear that the trip went well, and the general consensus I hear about gluten-free travel in Europe, including my own experiences, is that it is much easier done in comparison to traveling and eating gluten-free in the USA. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,702
    • Most Online (within 30 mins)
      7,748

    sayoca1639
    Newest Member
    sayoca1639
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Grahamsnaturalworld
      Where can I find a gastro in adelaide who can diagnose refractory celiac disease have seen 3 so far and don't understand the most obvious question, why my celiac symptoms did not resolve on a gluten free diet the symptoms just got worse as it is attacking my nervous system. 
    • ShariW
      I recently traveled to Spain and Portugal. I was with a tour group, they knew I needed to be gluten-free and made sure the kitchens preparing the group meals were aware. But just in case, I took Gliadin-X with me and took it for every evening meal - and most other meals. The one time I got glutened was from lunch early in the trip - had to be from cross-contamination. I had not taken Gliadin-X before that meal, which made for a pretty miserable day. Learned my lesson... 😞 
    • Hummer01
      Hi trents, thanks for the response.  The 2nd opinion doctor said that if my CRP is still elevated at that time, he would advise me to look at Crohns/UC or another autoimmune issue. The colonoscopy I had this year seemed to rule those 2 out for now so he still believed celiac may explain it. No previous doctors have suggested any explanation for it even after calling to tell me it was a concerning result.  I guess it feels tough knowing I have positive blood testing, permissive genetics, and visible duodenum changes... and somehow it's NCGS instead of celiac. I'm still surprised the biopsies came back negative when the doctor was so sure they would be positive.
    • trents
      "He also said that my CRP should return to a normal level at this time if the culprit was inflammation in the small intestine due to celiac." But with if the elevated CRP levels are caused by some other inflammatory process going on in your body? "She also said that my positive EMA isn't valuable because it has "a high false positive rate." Totally wrong! This is a highly accurate test for celiac disease, that requires specialized expertise to perform and interpret, and it is more expensive than other blood tests. It is generally used as a last test to confirm celiac disease after a positive tTG-IgA test. The sensitivity of a test refers to its ability to correctly identify individuals with the condition. For the EMA-IgA blood test, the sensitivity is generally very high, ranging from 90% to 98%. This means that the test can accurately detect celiac disease in a significant percentage of people who have the condition. The specificity of a test refers to its ability to correctly identify individuals without the condition. For the EMA-IgA blood test, the specificity is also high, typically around 95% to 100%. This indicates that the test can effectively rule out celiac disease in individuals who do not have the condition. Taken from the following article: Looking at the whole picture, I am wondering if you are transitioning from NCGS to celiac disease. Some experts in the gluten disorder field believe NCGS can be a precursor to celiac disease.
    • Hummer01
      Hi all, just wanted to post an update.  I have been gluten free for about 1.5 months now and seeing improvement already in the bathroom.  Recently I had a visit with another GI doctor for a 2nd opinion. He said that while my blood tests and scope are not a "slam dunk" for celiac, he believes it's more likely than not that I have it. His advice was to stay with a celiac-level gluten free diet (no CC) for 6-12 months then retest to make sure TTG-IGA is still negative. He also said that my CRP should return to a normal level at this time if the culprit was inflammation in the small intestine due to celiac.  Today I had a follow up with the original GI that performed the scope. She is confident it is NCGS and says I can still have gluten sometimes. When I asked about the visible duodenum damage, she said it is just "irritation" from gluten because the biopsies were negative. She also said that my positive EMA isn't valuable because it has "a high false positive rate."  I guess I'm having trouble reconciling the totally different advice from these 2 GI's. I want to believe the new doctor more at this point because what he said just makes more sense to me, and he gave an actionable timeline for possible next steps. Feeling lost and disappointed at this point and wanted to write it down here in case anyone has input. Thank you.   
×
×
  • Create New...