Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

International Walk For Celiac Disease

lisaemu

Recommended Posts

lisaemu Contributor
lisaemu
Posted

Not sure which message topic to put this in...but anyone doing the walk for celiac disease? Its may 21st in Michigan, but it seems like theres a few in other places around the country.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IronedOut Apprentice
IronedOut
Posted

I'm walking in Baltimore!!

I am way over the top with excitement about this and my family and friends are all tired of hearing about it. I am thrilled to feel well enough to do it. :P

Good luck to you up north. :D

Rusla Enthusiast
Rusla
Posted

It is also in May in Calgary, Alberta.

Guhlia Rising Star
Guhlia
Posted

Oh my GOSH!!! When's the one in Baltimore?!?!?! Where in Baltimore?!?!?!? Is there a website?!?!?! Please please please, more info!!!

IronedOut Apprentice
IronedOut
Posted

Open Original Shared Link

Edit - Hit the post button way to fast on that one!!

Here is the info on the walk in Baltimore. Hope to see you there.

moonunit Apprentice
moonunit
Posted

It's in San Diego on May 20th. I plan to be there and bring as many friends and family with me as I can get!

Lauren M Explorer
Lauren M
Posted
I'm walking in Baltimore!!

I am way over the top with excitement about this and my family and friends are all tired of hearing about it. I am thrilled to feel well enough to do it. :P

Good luck to you up north. :D

I'm doing the one in B-more too! I'm team Celiac4Life (which currently only consists of myself and my Mother haha). I was actually going to post on here to see if anyone would like to (pretty please) sponsor me.

You can sponsor by going to this site:

Open Original Shared Link

And if there are any individuals who would like to join my team, let me know!

- Lauren

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mart Contributor
mart
Posted

No walk going on here :( . I think we're the only people with Celiac in Miami!

Rusla Enthusiast
Rusla
Posted

I would like to do the walk here but I am not in my former race walking shape.

flagbabyds Collaborator
flagbabyds
Posted

i wish i could do the one in san diego, but i have a major all cali soccer tournament that and the next weekend.

Lauren M Explorer
Lauren M
Posted

For anyone who wants to walk but can't, remember that you can still donate for the cause ;)

Open Original Shared Link

Sorry to keep pushing it, but I'd appreciate whatever you can give, we're all working together! My goal is $2000 - help me achieve it! :blink::P

- Lauren

Corrine Rookie
Corrine
Posted

Rusla,

When is the one in May? I hope to be visiting Calgary May 12th-16th. And thanks for the info on Moxi's. My daughter was happy to hear that.

Corrine

carriecraig Enthusiast
carriecraig
Posted

Anyone walking in the Metro NYC one on June 4th?

Lauren M Explorer
Lauren M
Posted
For anyone who wants to walk but can't, remember that you can still donate for the cause ;)

Open Original Shared Link

Sorry to keep pushing it, but I'd appreciate whatever you can give, we're all working together! My goal is $2000 - help me achieve it! :blink::P

- Lauren

THANK YOU to whoever sponsored me! ;):D

- Lauren

plantime Contributor
plantime
Posted

I have a bone to pick with the quiz on your website, Lauren. One of the questions is true or false: you have to have an intestinal biopsy to confirm diagnosis of celiac disease. The answer is FALSE!! The biopsy is the gold standard, but it is not the only way to diagnose celiac, nor is it required for confirmation.

Rusla Enthusiast
Rusla
Posted
Rusla,

When is the one in May? I hope to be visiting Calgary May 12th-16th. And thanks for the info on Moxi's. My daughter was happy to hear that.

Corrine

Corrine, unfortunately I just saw on the site that it has been postponed until 2007. I guess that gives me time to get in shape for it. I am glad it made your daughter happy. They don't have a big selection but they had somethings and it was good.

Lauren M Explorer
Lauren M
Posted
I have a bone to pick with the quiz on your website, Lauren. One of the questions is true or false: you have to have an intestinal biopsy to confirm diagnosis of celiac disease. The answer is FALSE!! The biopsy is the gold standard, but it is not the only way to diagnose celiac, nor is it required for confirmation.

Sorry, but that's not really "my" site - ie I didn't write that. That's the generic webpage for people who are participating in the walk, and I just added my name and a couple personal touches. I couldn't change everything though. Sorry for the confusion.

- Lauren

plantime Contributor
plantime
Posted

I wondered why you would put that answer! Thanks for the link, I can't do the walk, but I do want to sponsor someone. Now I just have to get my husband to say OK! (It's his money I'll be using, so I think I should clear it with him, first! :D )

Lauren M Explorer
Lauren M
Posted
I wondered why you would put that answer! Thanks for the link, I can't do the walk, but I do want to sponsor someone. Now I just have to get my husband to say OK! (It's his money I'll be using, so I think I should clear it with him, first! :D )

hehe, yes I know better than to put that answer! I wonder who made the quiz? I actually haven't looked at it, I hope it doesn't have any other inaccuracies!

And thank you!

- Lauren

carriecraig Enthusiast
carriecraig
Posted
We didn't know about it.

Where can I get more information about it? We're interested!

Postd by Julia's Husband

Hi Julia's husband,

Here is the link for the NYC walk: Open Original Shared Link

Rusla Enthusiast
Rusla
Posted
I wondered why you would put that answer! Thanks for the link, I can't do the walk, but I do want to sponsor someone. Now I just have to get my husband to say OK! (It's his money I'll be using, so I think I should clear it with him, first! :D )

Make him walk in it and sponsor him.

  • 4 weeks later...
Becky6 Enthusiast
Becky6
Posted

Belle and I will be walking at the one in MN!

  • 3 years later...
hsm123psu Newbie
hsm123psu
Posted

I'm doing the one in B-more too! I'm team Celiac4Life (which currently only consists of myself and my Mother haha). I was actually going to post on here to see if anyone would like to (pretty please) sponsor me.

You can sponsor by going to this site:

Open Original Shared Link

And if there are any individuals who would like to join my team, let me know!

- Lauren

is there a link that shows groups/teams for the Baltimore event? Thanks!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,656
    • Most Online (within 30 mins)
      7,748
    Sandy Bromberg
    Newest Member
    Sandy Bromberg
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Medication

      By trents · Posted

      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      Medication

      By knitty kitty · Posted

      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      Medication

      By Julie 911 · Posted

      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Medication

      By trents · Posted

      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.