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Reflux Discussion

Jnkmnky

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ebrbetty Rising Star
ebrbetty
Posted
my reflux is getting so bad---i am having trouble swallowing my food down. i'm going to have to go see a gi---i've just put it off for so long. sometimes when i burp, my food comes upt to the back of my throat.

christine

christine, do you have acid/burning too? if nothing else works, try baking soda..it will calm it down!

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chrissy Collaborator
chrissy
Posted

i don't get alot of burning---unless something gets stuck. i once had food stuck in my esophagus for 30-45 min. it was awful and hurt so bad. i couldn't swallow anything. i'd throw up fluid from my esophagus,(nothing from my stomach, since it was blocked) get a little relief, and then the pain would start up again. i am wondering if i have a stricture. i also feel like i have something caught in there sometimes. i used to get horrible chest pains that would hurt all the way to my teeth. my husband loves to use baking soda for heartburn.

christine

Jnkmnky Collaborator
Jnkmnky
Posted
  • Author
i don't get alot of burning---unless something gets stuck. i once had food stuck in my esophagus for 30-45 min. it was awful and hurt so bad. i couldn't swallow anything. i'd throw up fluid from my esophagus,(nothing from my stomach, since it was blocked) get a little relief, and then the pain would start up again. i am wondering if i have a stricture. i also feel like i have something caught in there sometimes. i used to get horrible chest pains that would hurt all the way to my teeth. my husband loves to use baking soda for heartburn.

christine

I don't know what your insurance looks like, but for me, I'd rather try one of the procedures rather than live with the symptoms of reflux. For me, anyway, it's all I can focus on when it gets going. It rules my life. I haven't gone off the prilosec today because I didn't want to be in the throws of fiery agony for easter baskets and hunting.. That would be a bummer. So, I'll go off the meds when my kids go back to school on Monday... I have to say, I'm scared of how it's going to go! :mellow:

chrissy Collaborator
chrissy
Posted

the meds are so darn expensive---even with insurance. i would like to do a fundo on one of my twins. my baby has had a fundo. i think i need an endo done----then i can decide what to do from there. right now i am taking nexium---my doc gave me a months worth of samples.

christine

key Contributor
key
Posted

JnkMnky,

I have the burning in my throat when I get heartburn. I don't have the actual food coming back up in my mouth or anything. I went off prilosec for a month without a problem. Then got careless about caffeine, mainly had coffee two days in a row and I was miserable. So this is my worst trigger. I am on prilosec again for three days, but gave up the coffee again and so I am hoping to go off the prilosec tomorrow again. I just need to follow the diet that is best for me.

Hope you get some relief. I can feel your pain. It is a miserable thing to have.

Monica

Jnkmnky Collaborator
Jnkmnky
Posted
  • Author
JnkMnky,

I have the burning in my throat when I get heartburn. I don't have the actual food coming back up in my mouth or anything. I went off prilosec for a month without a problem. Then got careless about caffeine, mainly had coffee two days in a row and I was miserable. So this is my worst trigger. I am on prilosec again for three days, but gave up the coffee again and so I am hoping to go off the prilosec tomorrow again. I just need to follow the diet that is best for me.

Hope you get some relief. I can feel your pain. It is a miserable thing to have.

Monica

My problem is that I've been on the prilosec for so long( 2 1/2 months ), that a rebound effect is very likely. I tried to go off it while my husband was home and WHOA! I couldn't take the pain. I took a pill by 1pm on the second day. Plus, I burped constantly. I opened my mouth to talk and burps came out. It wasn't a small deal. It was like constant. So, I am off coffee, past the headache stage, and ready to go tomorrow for the big quit. I'm really nervous about how bad it will be because I was hunched over, gripping my chest after only one day off the prilosec! :unsure: I relate to that "heart attack" feeling.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
My problem is that I've been on the prilosec for so long( 2 1/2 months ), that a rebound effect is very likely. I tried to go off it while my husband was home and WHOA! I couldn't take the pain. I took a pill by 1pm on the second day. Plus, I burped constantly. I opened my mouth to talk and burps came out. It wasn't a small deal. It was like constant. So, I am off coffee, past the headache stage, and ready to go tomorrow for the big quit. I'm really nervous about how bad it will be because I was hunched over, gripping my chest after only one day off the prilosec! :unsure: I relate to that "heart attack" feeling.

Can you take Tums? Do they contain gluten? Or Mylanta?

Maybe the baby reflux diet (half as much twice as often) might help?

And stay away from citrus , tomato sauce, and other acidic or spicy foods for a while! I wonder if rice can help with the acid?

Good luck--let us know how it's going!

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Jnkmnky Collaborator
Jnkmnky
Posted
  • Author

Thanks fiddle... the GI told me to get a few bottles of mylanta and prepare for the worst. Tums doesn't help me much at all. He said to expect it to be pretty bad for at least the couple first days... by the FIFTH :o day to expect it to be better IF it's going to get better!!! double yikes! :o:o

key Contributor
key
Posted

Jnkmnky,

I don't know why, but Tums and Rolaids makes mine worse, I believe. I don't understand it at all. I think I do need to stay away from high fat, dairy and mainly coffee and diet soda. I don't know why Mt. Dew doesn't bother me. So strange. I don't like all the sugar in them though, so I really just need to give all my addictions up. I was on Prilosec for a month and tried to go off of it once or twice in there, but couldn't. THen I quit it after a month and I wasn't drinking coffee and I was fine for like three weeks. Drank coffee two days and it was back again. Very annoying. I don't have it as bad as you do I guess. I have been on Prilosec for four days again, but I am planning on going off now that I quit coffee.

I really believe though that not eating the foods that give us troubles can help it, if not cure it. Just being committed to it is hard for me. There are already so many things I can't have.

Monica

Jnkmnky Collaborator
Jnkmnky
Posted
  • Author

Well, I'm commited to going coffee free. I did it once for like three years, so I know I can do it. I AM doing it right now... just that I really like the stuff. Well, it's no longer a choice when the consequence is inability to function, I guess. Being gluten free, mostly dairy free, coffee and soda free... well, it's all for the best. The burps have already started. Everytime I MOVE.. seriously. :( At least it hasn't started hurting! :)

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Could exercise help? Maybe it would help foods--and acid-- move faster through the system?

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    • Scott Adams
      Test interpretations

      By Scott Adams · Posted

      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
    • trents
      Test interpretations

      By trents · Posted

      Since you compromised the validity of the antibody testing by experimenting with gluten withdrawal ahead of the testing, you are faced with two options: 1. Reintroduce significant amounts of gluten into your diet for a period of weeks, i.e., undertake a "gluten challenge". The most recent guidelines are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat-based bread) for at least two weeks leading up to the day of testing. Note: I would certainly give it more than two weeks to be sure. 2. Be willing to live with the ambiguity of not knowing whether gluten causes you problems because you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no test for NCGS. Celiac disease must first be ruled out and we have tests for it. Celiac disease has an autoimmune base. NCGS does not. GI symptoms overlap. In the early stages of celiac disease, other body systems may not be showing stress or damage so, symptomatically, it would be difficult to distinguish between celiac disease and NCGS. Both conditions require elimination of gluten from the diet for symptom relief. Some experts feel that NCGS can be a precursor to celiac disease.
    • suek54
      Need advice for some relief!

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      Hi Kayla Huge sympathies. I was diagnosed in December, after 8 months of the most awful rash, literally top to toe. Mine is a work in progress. Im on just 50mg dapsone at the moment but probably need an increased dose to properly put the lid on it. As you have been now glutened, I wondered whether it might be worth asking for a skin biopsy to finally get a proper diagnosis? Sue  
    • MicG
      Test interpretations

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      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol. 
    • trents
      Test interpretations

      By trents · Posted

      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
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