Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reflux Discussion


Jnkmnky

Recommended Posts

ebrbetty Rising Star
my reflux is getting so bad---i am having trouble swallowing my food down. i'm going to have to go see a gi---i've just put it off for so long. sometimes when i burp, my food comes upt to the back of my throat.

christine

christine, do you have acid/burning too? if nothing else works, try baking soda..it will calm it down!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chrissy Collaborator

i don't get alot of burning---unless something gets stuck. i once had food stuck in my esophagus for 30-45 min. it was awful and hurt so bad. i couldn't swallow anything. i'd throw up fluid from my esophagus,(nothing from my stomach, since it was blocked) get a little relief, and then the pain would start up again. i am wondering if i have a stricture. i also feel like i have something caught in there sometimes. i used to get horrible chest pains that would hurt all the way to my teeth. my husband loves to use baking soda for heartburn.

christine

Jnkmnky Collaborator
i don't get alot of burning---unless something gets stuck. i once had food stuck in my esophagus for 30-45 min. it was awful and hurt so bad. i couldn't swallow anything. i'd throw up fluid from my esophagus,(nothing from my stomach, since it was blocked) get a little relief, and then the pain would start up again. i am wondering if i have a stricture. i also feel like i have something caught in there sometimes. i used to get horrible chest pains that would hurt all the way to my teeth. my husband loves to use baking soda for heartburn.

christine

I don't know what your insurance looks like, but for me, I'd rather try one of the procedures rather than live with the symptoms of reflux. For me, anyway, it's all I can focus on when it gets going. It rules my life. I haven't gone off the prilosec today because I didn't want to be in the throws of fiery agony for easter baskets and hunting.. That would be a bummer. So, I'll go off the meds when my kids go back to school on Monday... I have to say, I'm scared of how it's going to go! :mellow:

chrissy Collaborator

the meds are so darn expensive---even with insurance. i would like to do a fundo on one of my twins. my baby has had a fundo. i think i need an endo done----then i can decide what to do from there. right now i am taking nexium---my doc gave me a months worth of samples.

christine

key Contributor

JnkMnky,

I have the burning in my throat when I get heartburn. I don't have the actual food coming back up in my mouth or anything. I went off prilosec for a month without a problem. Then got careless about caffeine, mainly had coffee two days in a row and I was miserable. So this is my worst trigger. I am on prilosec again for three days, but gave up the coffee again and so I am hoping to go off the prilosec tomorrow again. I just need to follow the diet that is best for me.

Hope you get some relief. I can feel your pain. It is a miserable thing to have.

Monica

Jnkmnky Collaborator
JnkMnky,

I have the burning in my throat when I get heartburn. I don't have the actual food coming back up in my mouth or anything. I went off prilosec for a month without a problem. Then got careless about caffeine, mainly had coffee two days in a row and I was miserable. So this is my worst trigger. I am on prilosec again for three days, but gave up the coffee again and so I am hoping to go off the prilosec tomorrow again. I just need to follow the diet that is best for me.

Hope you get some relief. I can feel your pain. It is a miserable thing to have.

Monica

My problem is that I've been on the prilosec for so long( 2 1/2 months ), that a rebound effect is very likely. I tried to go off it while my husband was home and WHOA! I couldn't take the pain. I took a pill by 1pm on the second day. Plus, I burped constantly. I opened my mouth to talk and burps came out. It wasn't a small deal. It was like constant. So, I am off coffee, past the headache stage, and ready to go tomorrow for the big quit. I'm really nervous about how bad it will be because I was hunched over, gripping my chest after only one day off the prilosec! :unsure: I relate to that "heart attack" feeling.

Fiddle-Faddle Community Regular
My problem is that I've been on the prilosec for so long( 2 1/2 months ), that a rebound effect is very likely. I tried to go off it while my husband was home and WHOA! I couldn't take the pain. I took a pill by 1pm on the second day. Plus, I burped constantly. I opened my mouth to talk and burps came out. It wasn't a small deal. It was like constant. So, I am off coffee, past the headache stage, and ready to go tomorrow for the big quit. I'm really nervous about how bad it will be because I was hunched over, gripping my chest after only one day off the prilosec! :unsure: I relate to that "heart attack" feeling.

Can you take Tums? Do they contain gluten? Or Mylanta?

Maybe the baby reflux diet (half as much twice as often) might help?

And stay away from citrus , tomato sauce, and other acidic or spicy foods for a while! I wonder if rice can help with the acid?

Good luck--let us know how it's going!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jnkmnky Collaborator

Thanks fiddle... the GI told me to get a few bottles of mylanta and prepare for the worst. Tums doesn't help me much at all. He said to expect it to be pretty bad for at least the couple first days... by the FIFTH :o day to expect it to be better IF it's going to get better!!! double yikes! :o:o

key Contributor

Jnkmnky,

I don't know why, but Tums and Rolaids makes mine worse, I believe. I don't understand it at all. I think I do need to stay away from high fat, dairy and mainly coffee and diet soda. I don't know why Mt. Dew doesn't bother me. So strange. I don't like all the sugar in them though, so I really just need to give all my addictions up. I was on Prilosec for a month and tried to go off of it once or twice in there, but couldn't. THen I quit it after a month and I wasn't drinking coffee and I was fine for like three weeks. Drank coffee two days and it was back again. Very annoying. I don't have it as bad as you do I guess. I have been on Prilosec for four days again, but I am planning on going off now that I quit coffee.

I really believe though that not eating the foods that give us troubles can help it, if not cure it. Just being committed to it is hard for me. There are already so many things I can't have.

Monica

Jnkmnky Collaborator

Well, I'm commited to going coffee free. I did it once for like three years, so I know I can do it. I AM doing it right now... just that I really like the stuff. Well, it's no longer a choice when the consequence is inability to function, I guess. Being gluten free, mostly dairy free, coffee and soda free... well, it's all for the best. The burps have already started. Everytime I MOVE.. seriously. :( At least it hasn't started hurting! :)

Fiddle-Faddle Community Regular

Could exercise help? Maybe it would help foods--and acid-- move faster through the system?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

    2. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

    3. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    4. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

    5. - Scott Adams replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Schar's products contain wheat!

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,614
    • Most Online (within 30 mins)
      7,748

    FilbyFam
    Newest Member
    FilbyFam
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Hector, have you had a follow-up biopsy to check the progress of small bowel villous lining recovery after going gluten free?
    • knitty kitty
      @HectorConvector, Please try adding Niacin to your supplements.  Low Niacin has a connection with suicidal ideation.  Been here, done that.  Niacin made me feel better mentally and physically.  Omega Three fats will help, too. For pain, Thiamine, B12 and, Pyridoxine B6 have been shown to have analgesic effects when taken together.  I know this works because I've cracked some vertebrae and this combination relieves the pain.  I was prescribed opioids, but couldn't function or poop, so... I can highly recommend these vitamins for pain relief.   I adopted a paleo diet, the Autoimmune Protocol Diet which has been shown to improve intestinal health.  Improving intestinal health improves mental health because of the gut brain-axis.  Important neurotransmitter Serotonin is made in the digestive system.   Please Read... Association between dietary niacin intake and suicidal ideation: mediating role of C-reactive protein https://pubmed.ncbi.nlm.nih.gov/40859220/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/
    • Scott Adams
      Hi Florence, thank you for clarifying — and no worries at all about late-night writing. I appreciate you explaining that you’re specifically asking about gluten cross-reactivity, particularly the proposed immune cross-reaction between alpha-gliadin and certain non-gluten foods on a gluten-free diet. It’s an interesting and often confusing topic. The Vojdani & Tarash paper you mentioned did report antibody cross-reactivity in laboratory settings, which has led to a lot of discussion in the gluten-free community. However, it’s important to note that in-vitro antibody reactions (in a lab dish) don’t always translate into clinically meaningful reactions inside the human body. At this point, major celiac research centers generally conclude that true immune cross-reactivity to non-gluten foods in people with celiac disease hasn’t been clearly demonstrated in well-controlled human studies. That said, many individuals do report symptoms with foods like corn, dairy, oats, or others, and those reactions can absolutely be real — they just may involve different mechanisms, such as food intolerance, FODMAP sensitivity, separate immune responses, or individual gut permeability differences rather than molecular mimicry of gliadin specifically. If certain foods consistently trigger symptoms for you, keeping a structured food and symptom log and discussing it with a knowledgeable gastroenterologist or dietitian may help clarify patterns. It’s a nuanced area, and your question is thoughtful — we just have to separate what’s biologically plausible in theory from what’s been conclusively demonstrated in patients.
    • Scott Adams
      I’m really sorry you’re dealing with such intense burning pain right now. When symptoms get that overwhelming, it can feel unbearable and even trigger really dark thoughts, and that’s a sign of just how much you’ve been carrying — not a sign of weakness. It makes sense that you’d want to go back to a lower-carb, meat-and-vegetable approach if that’s helped reduce symptoms before; sometimes dialing things back to simple, whole foods can calm inflammation or gut irritation. At the same time, your safety and mental health matter just as much as the physical symptoms. If the suicidal thoughts are feeling strong or hard to control, please consider reaching out for immediate support — in the U.S., you can call or text 988 for the Suicide & Crisis Lifeline, or go to the nearest emergency room if you feel at risk. You don’t have to handle this alone. It may also be worth checking in with your doctor soon to review what’s changed and see if there are adjustments or treatments that could ease the burning pain more effectively. You deserve relief, and you deserve support while you figure this out.
    • Scott Adams
      By the way, a few years back Nestle launched gluten-free DiGiorno pizza which also used Codex quality wheat starch, but due to backlash from the celiac community quickly reformulated and it is now wheat-free. Personally I think it's not a good direction to go, considering the many alternatives available now.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.