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I Got My Biospy Results....

monicaleestudios

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monicaleestudios Newbie
monicaleestudios
Posted

So! I did a little backtracking with my old GI they were very nice and sent over my results from an endoscopy taken in 2003. He did check from sprue and it read: Fragments of duodenal musosa with reactive changes. No villous atrophy. So I take that as a no. Even though the Er doctor last week sent blood work off for Celiac. I think it is happening backwards. The endoscopy is the "real" test. Right? And that is negative? Right? help! Was that too long ago?

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Guhlia Rising Star
Guhlia
Posted

It is VERY possible that the tissue that they sampled didn't have villous atrophy. It's also VERY possible that other areas may have shown villous atrophy if sampled. Don't take the biopsy results as the be all and end all, it's still possible that you have Celiac. If your bloodwork comes back positive, I would just assume that it's correct (unless you're on a gluten free diet already, then it wouldn't be accurate). Even if it comes back negative, you may want to try the gluten free diet anyway to see if you feel better. A lot of us on this board take the positive reaction to dietary changes as the "real" diagnosis. Good luck!

tiffjake Enthusiast
tiffjake
Posted
He did check from sprue and it read: Fragments of duodenal musosa with reactive changes.

That sounds like something to me.....I would go gluten free after reading that, but thats me, I agree with Gulhia, they might have missed a damaged patch. But that is my opinion.

Ursa Major Collaborator
Ursa Major
Posted

I agree with Jake, it sounds like damage, just no atrophy YET. By now you might have a lot more damage, unless you have been gluten free in the meantime.

Guest nini
Guest nini
Posted

I agree with the others. The biopsy is an archaic outdated methodology of testing and misses far too many cases of celiac. The response to the diet is the best indication. Your Dr. could have not taken enough samples or taken samples from areas that are not yet damaged OR what it sounds like to me, JUST DIDN'T RECOGNIZE the early stages of the disease.

monicaleestudios Newbie
monicaleestudios
Posted
  • Author

Thanks so much for your responses! I did recieve a call from my doctor that said the blood tests were negative. So that's 2 negatives BUT I have been on a strict gluten free diet for just 4 days and feel much less bloating. (missing a decent tasting cookie, tho) So I was wondering if maybe I could slim my diet down to wheat free? I will do some research on that.

I may remain Gluten free for a month or so to see how it goes. You all are amazing, eating is so a part of everyday life and you really have to think about every choice!

I believe I will ask for a copy of my blood results and look them over myself. This message board has been so helpful!

I feel sometimes that I get particularly ill after picking up "prepared" foods. IE I can't eat the cookies made in bakery at a grocery store, often can't eat the cut up fruit from the store and those protein drinks "all natural" at Whole Foods go right through me. I was thining it may be a preservative. So I will keep searching.

Nancym Enthusiast
Nancym
Posted

I really think the dietary test should be enough of a diagnosis! Kind of hard to argue with what the body is telling ya!

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aikiducky Apprentice
aikiducky
Posted

You could also repeat the biopsy. The results from three years ago only tell you what the situation was three years ago, if you do indeed have celiac then it's possible that you have developed more damage in the time since. Just an idea.

Pauliina

Aquina1300 Rookie
Aquina1300
Posted

Hello Monicaleestudios:D

It seems that a gluten free diet is the only sure way to know.

I haven't actually had the blood test results yet but I think they are going to be negative because of a message a nurse left on my machine today.

I'm not sure if I'm going to do a biopsy or not. It seems that a biopsy may miss the early stages or not get any of the damaged areas. :unsure:

But I don't really want to go gluten free unless I have to and know for sure that I have an intolerance.

Let me know what you decide to do. I'd really like to know.

Thanks

Aquina1300

monicaleestudios Newbie
monicaleestudios
Posted
  • Author

So after talking to a couple of friends who are well versed in Celiac and the diagnoises. I got a copy of the blood tests to have them looked over by somone else. And in the meantime I have been eating gluten free, not getting to wrapped up but still leary of my ER visit. I will stay Gluten free for several weeks and then have a big pasta dinner and a beer and see how I feel. Sounds extreme? Maybe I will hopefully have someone look at my blood tests during that time. The came back neagative but I simply cannot read them myself. I have been feeling great, though. Maybe because I have been completely free of any kind of processed food the last week! :rolleyes:

Aquina1300 Rookie
Aquina1300
Posted

Hello Monicaleestudios :D

Let me know what happens when you have beer and pasta after being gluten free for a while. I'd really like to know. I think it's smart to get a second opinion on your blood results. Good luck.

-Aquina

ravenwoodglass Mentor
ravenwoodglass
Posted
So after talking to a couple of friends who are well versed in Celiac and the diagnoises. I got a copy of the blood tests to have them looked over by somone else. And in the meantime I have been eating gluten free, not getting to wrapped up but still leary of my ER visit. I will stay Gluten free for several weeks and then have a big pasta dinner and a beer and see how I feel. Sounds extreme? Maybe I will hopefully have someone look at my blood tests during that time. The came back neagative but I simply cannot read them myself. I have been feeling great, though. Maybe because I have been completely free of any kind of processed food the last week! :rolleyes:

Please remember when you do the challenge that for some it can be 3 to 4 days before you see a reaction. You would also want to consume it for more than one day if you don't react quickly. You also may want to test with something like triscuits instead of pasta and beer, you need to know your reacting to gluten and not dairy or yeast. Lots of us react more quickly but it is an intolerance so don't think if you don't have a problem the night you do the challenge or the next day that you are not going to react. Don't want you thinking your in the clear on gluten and caught a 'bug' if this happens to you.

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