Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I See A Specialist?

francelajoie

By francelajoie
in Doctors

Recommended Posts

francelajoie Explorer
francelajoie
Posted

I need advice,

I was diagnosed gluten intolorent and possible Celiac by my family doctor. I just found out that there is a Celiac center less than an hour from here. Should I go?

I've been gluten free since last July and I feel great. Would a diagnosis change anything?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted
I need advice,

I was diagnosed gluten intolorent and possible Celiac by my family doctor. I just found out that there is a Celiac center less than an hour from here. Should I go?

I've been gluten free since last July and I feel great. Would a diagnosis change anything?

Nope--if you feel great on the diet, there's nothing that a specialist can do that being gluten-free can't. The diet is the only treatment for Celiac. Glad to hear you're doing so well :)

Ursa Major Collaborator
Ursa Major
Posted

I agree, it would just be a waste of time and money. Obviously you know what you're doing, you feel great, no need to bother.

mmaccartney Explorer
mmaccartney
Posted

I've been exploring this myself. I am pursuing a formal diagnosis from an MD. Why? I believe that Celiac disease (and my associated arthritis) qualify as a disability under the americans with disabilities act. A formal dx would give me protection under that act.

Now, if you are looking for more answers for your own peace of mind, I'll give you the advice my rhuemotologist (whos mother is a celiac) gave me:

"Why do you want further testing, or further diagnosis? You already know what is wrong with you, you changed your diet and your getting better...what more do you need to know?? Stay of gluten, and get healthy!"

I still wanted more answers, so I ended up at Enterolab. The results there confirmed everything, and surprised me with the fact that I have a celiac gene (DQ2) and a gluten intolerance gene(DQ3). The casien intolerance surprised me as well....it wasn't the cheapest testing at $390 BUT my insurance is paying for it!!!!!!!!

the gene testing results were important to me as I have two sons. Having two genes tells me that there is a 100% chance that they recieved at least one of the genes from me. Thus they are presdisposed to celiac, or gluten intolerance, or both (like me). This has spurred me to take action to have them further tested as they may be reacting with no visible symptoms!!!!

francelajoie Explorer
francelajoie
Posted
  • Author

Thanks guys...I think I will just continue the diet. At least I know the center is there if I ever need to go.

Eugene Newbie
Eugene
Posted
I still wanted more answers, so I ended up at Enterolab. The results there confirmed everything, and surprised me with the fact that I have a celiac gene (DQ2) and a gluten intolerance gene(DQ3). The casien intolerance surprised me as well....it wasn't the cheapest testing at $390 BUT my insurance is paying for it!!!!!!!!

Michael,

What is Enterolab anf how does one get tested?

TIA, Eugene

Jnkmnky Collaborator
Jnkmnky
Posted

A dx isn't going to make your life better. There are things you will be UNable to do if you have a dx of Celiac disease. Stuff like Joining the military, becoming a priest, getting good health insurance. You can face obstacles with a dx of celiac disease. Best to keep it quiet, imo. There really is no benefit that I've encountered with this dx... sometimes you hear that you can itemize the food costs on your taxes, but that's such a load of bunk. Who's done it? There's nothing to gain with this dx OTHER than your HEALTH!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,539
    • Most Online (within 30 mins)
      7,748
    Josiemc
    Newest Member
    Josiemc
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.