Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

jerseyangel Proficient

All I know is that I eat potatoes just about every day--they are the one food that I know won't cause me problems. My comfort food. We're all different, though, so I would think any food could cause a person problems. The only other thing I believe that potatoes can cause (along with the other nightshades) is joint pain.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
Rachel--24 Collaborator
Okay... I will take your word on it.... I trust you... you are like the chemist of this group.. :D

:lol::lol: Thats funny. I think I flunked chemistry.

What symptoms are you getting from the potatoes? I used to peel them cuz I think the skins bothered me...right now I'm avoiding them altogether because the MSG diet says to avoid potatoes due to most of them being sprayed with the Auxigro. I've tried them more than once though...all different kinds and I still get symptoms....mainly bloating and fluid retention.

Rachel--24 Collaborator
Okay, I exaggerated just a bit...I actually only bought 8. :rolleyes: I've been sort of good though...I've had those in the house and only ate the 1st one last night. I should take them back, but I can't bring myself to do it, lol. It's truly intervention material here. Change a couple of letters of my name and it spells DENIAL! :lol:

LOL!

Yesterday I happened to be looking in the cabinets...I have no idea why since I cant have anything in there! I always do this though....as if I was a normal person just casually looking for something to eat....YEAH RIGHT.

Well....I found 2 ziplock baggies of those crackers I was eating! I forgot I had put some in baggies and now that I know they are there....its very tempting. For some reason I cant bring myself to throw stuff away cuz you never know...a miracle could happen. Tomorrow I could wake up totally able to eat ANYTHING I want. :lol:

Oh yeah...and like if that really happened would I really be running to the cabinet to get those plain rice crackers anyway....NOT! I'd be on my way to the store for some chicken n a biskit crackers with some cheese spread!

Rachel--24 Collaborator
Okay.... at the risk of sounding really stupid... what the heck are night shades? I thought those were the things we close at night on our windows.. :D

:lol::lol:

Ummm...yeah I guess those would be called nightshades too. :D

I found this thread on nightshades for you

Open Original Shared Link

I know Lisa Baker just recently posted a thread asking what nightshades were. I was trying to find it but couldnt right now. I'll check again later. :)

AndreaB Contributor

Floridian,

Ursula has something about nightshades in her sig I think. I know it Potatoes, tomatoes, eggplant I think and maybe green peppers. Don't quote me on that though. Check out Ursula's sig. :)

Fiddle-Faddle Community Regular

The only thinkg I can think of re potatoes is that they might be like oats--our immune systems might mistake them for gluten, and attack our bodies just as though we'd eqaten gluten.

potatoes, tomatoes, peppers (or any color) are all members of the nightshade family.

Green12 Enthusiast

I actually did hear that about potatoes and gluten you guys. It was something I came across when I researched going gluten free, before I even came to this board. I can't remember where I found the info or what exactly the connection was.

LOL!

Yesterday I happened to be looking in the cabinets...I have no idea why since I cant have anything in there! I always do this though....as if I was a normal person just casually looking for something to eat....YEAH RIGHT.

Well....I found 2 ziplock baggies of those crackers I was eating! I forgot I had put some in baggies and now that I know they are there....its very tempting. For some reason I cant bring myself to throw stuff away cuz you never know...a miracle could happen. Tomorrow I could wake up totally able to eat ANYTHING I want. :lol:

Oh yeah...and like if that really happened would I really be running to the cabinet to get those plain rice crackers anyway....NOT! I'd be on my way to the store for some chicken n a biskit crackers with some cheese spread!

:lol::lol: so true Rachel, the last thing you would want to eat if you could eat anything in the world would be those darn rice crackers :lol::lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

Ok guys. If this thing with potatoes is real, does that mean we should avoid those? I don't have any obvious symptoms or anything like that. I could always buy the small red or white potatoes.

I have noticed that I have a problem with cereals lately. My stomach just can't take much of it. Of course the last time I had them I was using Rice Dream, maybe I'm just becoming more sensitive. I'll have to try cereal with a different milk and see what happens.

jerseyangel Proficient

This is serious! I eat potoatoes all the time--but since cutting out the intolerances, I feel good. Now I'm worried :o

Rachel--24 Collaborator
I actually did hear that about potatoes and gluten you guys. It was something I came across when I researched going gluten free, before I even came to this board. I can't remember where I found the info or what exactly the connection was.

Ok...now I wanna know what this is all about. :huh:

Maybe someone who knows will come along and enlighten us cuz I still dont see how it makes sense...but thats just me....always looking for a logical explanation. :rolleyes:

Maybe there just isnt one. But gluten free diets are largely based on potato products and I've never heard of anyone having damage from potatoes. :unsure:

jerseyangel Proficient

I was just thinking, it could be the starch that is disagreeing with you. I can not tolerate rice, tapioca, or any other grain that I have tried. Tapioca is a starch, and gives me the same reaction as gluten--not good at all. So, possibly, if you react to potatoes, it's the starch. That would make sense, I think?

jerseyangel Proficient

YES! A crystal ball would be very nice, and save us all a lot of time :D

penguin Community Regular

Trust me, there is nothing gluteny about potatoes. Seriously. They're not even a grain, they are a starch, but not a grain like WBRO or corn or rice. Potatoes are made up of starch, water, and cell walls.

You may have issues with starches in general, or nightshades, or large quantities of tapioca, but it's not a gluten thing unless you've cc'ed.

Haha, I'm watching the Crucible. Sometimes I think this board gets like that :blink:

AndreaB Contributor
What kind of cerial have you been eating?

Erewhon rice with berries (gluten free), perky o's. I'd had granola (I know oat before those, not doing oats anymore unless I buy the gluten free ones), a few weeks ago.

I also think the starch thing makes sense.

Rachel--24 Collaborator

The Perky O's are made on the same lines with barley, soy and corn. I dont know how well they clean the machinery. It seems like they've just started testing for gluten. Suppossedly they test under 50 ppm's. This must be new because a couple months ago I reacted to them and at that time they still had wheat on the same line and were not testing for gluten.

Good for them for making it a dedicated wheat free facility...but really...what good does it do if they still run barley on the same lines?? <_<

jerseyangel Proficient

Thanks Floridian--that's what I thought. Cutting them out can be useful for people with joint problems. I do think the starch could cause a GI problem, though. Luckily, they don't affect me that way because they're the only starch I have left! :D

AndreaB Contributor

Ok. I'm back. Hubby decided to do a pedicure for me. :D He's so sweet.

Now, I've never had a reaction to gluten before, but I am allergic and intolerant to soy. Of course I got the cinnamon ones and I'm not used to cinnamon. :blink:

Floridian,

How about avocadoes, coconut oil, any nuts you can eat.

AndreaB Contributor

Well now, that does add quite a bit to your list of can not's doesn;t it. :P

I also have a low allergic response to bananas and haven't been eating them for 2 months. Going to make sorbet tonight and add enjoy life chocolate chips. Hopefully I'll be ok and Seth too. :unsure:

Rachel--24 Collaborator

Ok...I have a question. Hopefully someone knows this. Are all dates dried? What are dates exactly? You know like raisins are dried grapes....are dates just a dried version of something else? :unsure:

The reson I'm asking is because I was eating dates. They seem fresh and have pits....I never really knew if they were fresh or dried. I had no problems with them so I figured...."Great...I can eat any dried fruits". Wrong. :ph34r:

I bought bags of dried fruit all organic and unsulphered but they are making me so bloated and gassy and constipated. :(

It doesnt matter which ones I try...they all do it.

So maybe those dates I was eating werent a dried fruit? Could they have been fresh? I didnt get bloated at all with those and right now my tummy hurts and its super hard. Its definately a different pain than the ovary stuff. So I think I can tell the difference from intestinal pain and ovary pain now.

miamia Rookie
Okay, this got my attention! How do you make crackers? :huh:

Floridian-

This is my problem I am good at baking but not at keeping track of measurments and so on. The crackers Imake are millet crackers. How do you do with millet? It is one of the only grains I can tolerate.

Miamia

Green12 Enthusiast
Ok...I have a question. Hopefully someone knows this. Are all dates dried? What are dates exactly? You know like raisins are dried grapes....are dates just a dried version of something else? :unsure:

The reson I'm asking is because I was eating dates. They seem fresh and have pits....I never really knew if they were fresh or dried. I had no problems with them so I figured...."Great...I can eat any dried fruits". Wrong. :ph34r:

I bought bags of dried fruit all organic and unsulphered but they are making me so bloated and gassy and constipated. :(

It doesnt matter which ones I try...they all do it.

So maybe those dates I was eating werent a dried fruit? Could they have been fresh? I didnt get bloated at all with those and right now my tummy hurts and its super hard. Its definately a different pain than the ovary stuff. So I think I can tell the difference from intestinal pain and ovary pain now.

I believe dates are fresh, however there is such a thing as dried dates, they roll them in oat flour. Also you can get fresh figs. (I think there are also dried figs, so make sure you get the fresh if you do try them out).

But someone can correct me if I am wrong....

miamia Rookie
Casava crackers? I dont think I've ever seen them at my Whole Foods. Are they with all the other crackers or somewhere else? I love anything with one or two ingredients too...that why I went for the rice snaps. Only 2 ingredients...unless you count the gluten...then theres actually 3. :lol:

Rachel-

I don't know if this was supposed to be funny- but it got me laughing. I live in New York and they carry them at the whole foods here but no where else. I think the brand is gluten fortitude(s) and I think they have a web site I will try to find it out for you.

I tried the lamn again tonight- definitly much better for me than chicken and it has enough taste that I don't really need to add anything to it- a definite plus.

Miamia

Rachel--24 Collaborator
Ok...I have a question. Hopefully someone knows this. Are all dates dried? What are dates exactly? You know like raisins are dried grapes....are dates just a dried version of something else? :unsure:

The reson I'm asking is because I was eating dates. They seem fresh and have pits....I never really knew if they were fresh or dried. I had no problems with them so I figured...."Great...I can eat any dried fruits". Wrong. :ph34r:

I bought bags of dried fruit all organic and unsulphered but they are making me so bloated and gassy and constipated. :(

It doesnt matter which ones I try...they all do it.

So maybe those dates I was eating werent a dried fruit? Could they have been fresh? I didnt get bloated at all with those and right now my tummy hurts and its super hard. Its definately a different pain than the ovary stuff. So I think I can tell the difference from intestinal pain and ovary pain now.

Ooooh...I'm answering my own question.

I found this:

Only one variety grown commercially in the United States - Barhi - can be eaten fresh

Those just happen to be the ones I was eating and am ok with. I guess I cant do dried fruit cuz none of the other dates I've tried or the other dried fruits have agreed with me.

No wonder...I found it strange that I could eat those Barhi ones and not the other dates that are from the same company and in the same containers. I tried the Medjool ones and reacted.

I love it when things make sense. :D

Heres a link all about dates...in case anyone is interested.

Open Original Shared Link

Rachel-

I don't know if this was supposed to be funny- but it got me laughing. I live in New York and they carry them at the whole foods here but no where else. I think the brand is gluten fortitude(s) and I think they have a web site I will try to find it out for you.

I tried the lamn again tonight- definitly much better for me than chicken and it has enough taste that I don't really need to add anything to it- a definite plus.

Miamia

Bummer they dont have them here....I wonder why?

I like lamb...I dont put anything on it either. I only buy one kind though. You know how when you cook beef or lamb or any meat really...you get that yummy grease and juice?? Well I loved that stuff...I like the grease and flavors...I would pour it all over my meat. Well that was a big problem as far as causing reactions so now I buy these lamb sirloin tips and steam them so no juice. They are yummy but expensive.

I believe dates are fresh, however there is such a thing as dried dates, they roll them in oat flour. Also you can get fresh figs. (I think there are also dried figs, so make sure you get the fresh if you do try them out).

But someone can correct me if I am wrong....

Ooooh...next I'll have to try and find fresh figs. I discovered I love figs but I've been eating the dried ones. They're like candy to me but of course with each one I pop into my mouth my stomach grows harder and harder. I'm like Donna in that I cant stop myself. :ph34r:

Haha, I'm watching the Crucible. Sometimes I think this board gets like that :blink:

What is the Crucible? :huh:

Rachel--24 Collaborator

Tonight I was crying because I got frusterated with my symptoms after eating all the dried fruit. Same thing happened last night but I didnt cry over it. I was just feeling really frusterated not knowing why this stuff was bothering me when I'd been eating the dates just fine.

My friend called while I was crying and listened to me vent my frusterations. Then I felt bad for crying and being such a downer. I apologized because I know if I'm crying people worry about me and I didnt want her to worry. She told me not to be sorry....that she calls me because she just wants to talk to me whether I'm crying or not. She said she's just happy to be able to talk to me. That made me feel alot better.

I'm thankful I have such wonderful caring people in my life. :)

AndreaB Contributor
Tonight I was crying because I got frusterated with my symptoms after eating all the dried fruit. Same thing happened last night but I didnt cry over it. I was just feeling really frusterated not knowing why this stuff was bothering me when I'd been eating the dates just fine.

My friend called while I was crying and listened to me vent my frusterations. Then I felt bad for crying and being such a downer. I apologized because I know if I'm crying people worry about me and I didnt want her to worry. She told me not to be sorry....that she calls me because she just wants to talk to me whether I'm crying or not. She said she's just happy to be able to talk to me. That made me feel alot better.

I'm thankful I have such wonderful caring people in my life. :)

Rachel,

Hugs and glad your friend was able to be there for you. :)

Plus all your cyber friends. It's a little harder to cry on our shoulders though. :P

Sometimes I get down and it is always nice to come talk to you guys. :rolleyes:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.